An Integrated Knowledge Translation Approach to Develop a Shared Decision-making Strategy for Use by Inuit in Cancer Care: A Qualitative Study

Background: In relation to the general Canadian population, Inuit face increased cancer risks and barriers to health services use. In shared decision-making (SDM), health care providers and patients make health care decisions together. Enhanced participation in cancer care decisions is a need for In...

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Published in:Current Oncology
Main Authors: J. Jull, A. Hizaka, A. J. Sheppard, A. Kewayosh, P. Doering, L. MacLeod, G. Joudain, J. Plourde, D. Dorschner, The Inuit Medical Interpreter Team, M. Rand, M. Habash, I. D. Graham
Format: Text
Language:English
Published: Multidisciplinary Digital Publishing Institute 2019
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Online Access:https://doi.org/10.3747/co.26.4729
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spelling ftmdpi:oai:mdpi.com:/1718-7729/26/3/4729/ 2023-08-20T04:07:35+02:00 An Integrated Knowledge Translation Approach to Develop a Shared Decision-making Strategy for Use by Inuit in Cancer Care: A Qualitative Study J. Jull A. Hizaka A. J. Sheppard A. Kewayosh P. Doering L. MacLeod G. Joudain J. Plourde D. Dorschner The Inuit Medical Interpreter Team M. Rand M. Habash I. D. Graham 2019-06-01 application/pdf https://doi.org/10.3747/co.26.4729 EN eng Multidisciplinary Digital Publishing Institute https://dx.doi.org/10.3747/co.26.4729 https://creativecommons.org/licenses/by/4.0/ Current Oncology; Volume 26; Issue 3; Pages: 192-204 inuit shared decision-making integrated knowledge translation co-creation decision coaching field tests Text 2019 ftmdpi https://doi.org/10.3747/co.26.4729 2023-08-01T00:46:36Z Background: In relation to the general Canadian population, Inuit face increased cancer risks and barriers to health services use. In shared decision-making (SDM), health care providers and patients make health care decisions together. Enhanced participation in cancer care decisions is a need for Inuit. Integrated knowledge translation (KT) supports the development of research evidence that is likely to be patient-centred and applied in practice. Objective: Using an integrated KT approach, we set out to promote the use of SDM by Inuit in cancer care. Methods: An integrated KT study involving researchers with a Steering Committee of cancer care system partners who support Inuit in cancer care (“the team”) consisted of 2 theory-driven phases: (1) using consensus-building methods to tailor a previously developed SDM strategy and developing training in the SDM strategy; and (2) training community support workers (CSWS) in the SDM strategy and testing the SDM strategy with community members. Results: The team developed a SDM strategy that included a workshop and a booklet with 6 questions for use by CSWS with patients. The SDM strategy (training and booklet) was finalized based on feedback from 5 urban-based Inuit CSWS who were recruited and trained in using the strategy. Trained CSWS were matched with 8 community members, and use of the SDM strategy was assessed during interviews, reported as 6 themes. Participants found the SDM strategy to be useful and feasible for use. Conclusions: An integrated KT approach of structured research processes with partners developed a SDM strategy for use by Inuit in cancer care. Further work is needed to test the SDM strategy. Text inuit MDPI Open Access Publishing Current Oncology 26 3 192 204
institution Open Polar
collection MDPI Open Access Publishing
op_collection_id ftmdpi
language English
topic inuit
shared decision-making
integrated knowledge translation
co-creation
decision coaching
field tests
spellingShingle inuit
shared decision-making
integrated knowledge translation
co-creation
decision coaching
field tests
J. Jull
A. Hizaka
A. J. Sheppard
A. Kewayosh
P. Doering
L. MacLeod
G. Joudain
J. Plourde
D. Dorschner
The Inuit Medical Interpreter Team
M. Rand
M. Habash
I. D. Graham
An Integrated Knowledge Translation Approach to Develop a Shared Decision-making Strategy for Use by Inuit in Cancer Care: A Qualitative Study
topic_facet inuit
shared decision-making
integrated knowledge translation
co-creation
decision coaching
field tests
description Background: In relation to the general Canadian population, Inuit face increased cancer risks and barriers to health services use. In shared decision-making (SDM), health care providers and patients make health care decisions together. Enhanced participation in cancer care decisions is a need for Inuit. Integrated knowledge translation (KT) supports the development of research evidence that is likely to be patient-centred and applied in practice. Objective: Using an integrated KT approach, we set out to promote the use of SDM by Inuit in cancer care. Methods: An integrated KT study involving researchers with a Steering Committee of cancer care system partners who support Inuit in cancer care (“the team”) consisted of 2 theory-driven phases: (1) using consensus-building methods to tailor a previously developed SDM strategy and developing training in the SDM strategy; and (2) training community support workers (CSWS) in the SDM strategy and testing the SDM strategy with community members. Results: The team developed a SDM strategy that included a workshop and a booklet with 6 questions for use by CSWS with patients. The SDM strategy (training and booklet) was finalized based on feedback from 5 urban-based Inuit CSWS who were recruited and trained in using the strategy. Trained CSWS were matched with 8 community members, and use of the SDM strategy was assessed during interviews, reported as 6 themes. Participants found the SDM strategy to be useful and feasible for use. Conclusions: An integrated KT approach of structured research processes with partners developed a SDM strategy for use by Inuit in cancer care. Further work is needed to test the SDM strategy.
format Text
author J. Jull
A. Hizaka
A. J. Sheppard
A. Kewayosh
P. Doering
L. MacLeod
G. Joudain
J. Plourde
D. Dorschner
The Inuit Medical Interpreter Team
M. Rand
M. Habash
I. D. Graham
author_facet J. Jull
A. Hizaka
A. J. Sheppard
A. Kewayosh
P. Doering
L. MacLeod
G. Joudain
J. Plourde
D. Dorschner
The Inuit Medical Interpreter Team
M. Rand
M. Habash
I. D. Graham
author_sort J. Jull
title An Integrated Knowledge Translation Approach to Develop a Shared Decision-making Strategy for Use by Inuit in Cancer Care: A Qualitative Study
title_short An Integrated Knowledge Translation Approach to Develop a Shared Decision-making Strategy for Use by Inuit in Cancer Care: A Qualitative Study
title_full An Integrated Knowledge Translation Approach to Develop a Shared Decision-making Strategy for Use by Inuit in Cancer Care: A Qualitative Study
title_fullStr An Integrated Knowledge Translation Approach to Develop a Shared Decision-making Strategy for Use by Inuit in Cancer Care: A Qualitative Study
title_full_unstemmed An Integrated Knowledge Translation Approach to Develop a Shared Decision-making Strategy for Use by Inuit in Cancer Care: A Qualitative Study
title_sort integrated knowledge translation approach to develop a shared decision-making strategy for use by inuit in cancer care: a qualitative study
publisher Multidisciplinary Digital Publishing Institute
publishDate 2019
url https://doi.org/10.3747/co.26.4729
genre inuit
genre_facet inuit
op_source Current Oncology; Volume 26; Issue 3; Pages: 192-204
op_relation https://dx.doi.org/10.3747/co.26.4729
op_rights https://creativecommons.org/licenses/by/4.0/
op_doi https://doi.org/10.3747/co.26.4729
container_title Current Oncology
container_volume 26
container_issue 3
container_start_page 192
op_container_end_page 204
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