Bioethical concepts in theory and practice: an exploratory study of prenatal screening in Iceland.
To access publisher full text version of this article. Please click on the hyperlink in Additional Links field. A hallmark of good antenatal care is to respect prospective parent's choices and provide information in a way that encourages their autonomy and informed decision making. In this pape...
Published in: | Medicine, Health Care and Philosophy |
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Online Access: | http://hdl.handle.net/2336/224993 https://doi.org/10.1007/s11019-010-9291-y |
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ftlandspitaliuni:oai:www.hirsla.lsh.is:2336/224993 2023-05-15T16:48:32+02:00 Bioethical concepts in theory and practice: an exploratory study of prenatal screening in Iceland. Gottfreðsdóttir, Helga Arnason, Vilhjálmur Department of Midwifery, Faculty of Nursing, University of Iceland, Eiríksgata 34, IS-101, Reykjavík, Iceland. helgagot@hi.is 2012-05-21 http://hdl.handle.net/2336/224993 https://doi.org/10.1007/s11019-010-9291-y en eng Kluwer Academic Publishers http://dx.doi.org/10.1007/s11019-010-9291-y Med. Health. Care. Philos. 2011, 14(1):53-61 1572-8633 20949321 doi:10.1007/s11019-010-9291-y http://hdl.handle.net/2336/224993 Medicine, health care, and philosophy Archived with thanks to Medicine, health care, and philosophy Bioethical Issues Choice Behavior Female Genetic Testing Guidelines as Topic Health Policy Humans Iceland Informed Consent Parents Pregnancy Prenatal Diagnosis Article 2012 ftlandspitaliuni https://doi.org/10.1007/s11019-010-9291-y 2022-05-29T08:21:46Z To access publisher full text version of this article. Please click on the hyperlink in Additional Links field. A hallmark of good antenatal care is to respect prospective parent's choices and provide information in a way that encourages their autonomy and informed decision making. In this paper, we analyse the meaning of autonomous and informed decision making from the theoretical perspective and attempt to show how those concepts are described among prospective parents in early pregnancy and in the public media in a society where NT screening is almost a norm. We use interviews with Icelandic prospective parents in early pregnancy (N = 40) and material covering the discourse around prenatal screening in the media over 5 years period. Our analysis indicates that both prospective parents and the public media include ethical terms in their rhetoric around prenatal screening although those concepts differ in their expression. We conclude that the context in which these decisions are taken does not encourage moral reflection. Prospective parents describe that there is a lack of dialogue with professionals when decisions are made about screening. With routine offer of screening the conceptualization of bioethical concepts finds its own way through a mainstream discourse which has limited connections to the theoretical notions. This has been neglected in the implementation of screening, as limited effort has been subject to audit with reference to explore how the offer of screening and informed choice is experienced among prospective parents. Article in Journal/Newspaper Iceland Hirsla - Landspítali University Hospital research archive Medicine, Health Care and Philosophy 14 1 53 61 |
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Hirsla - Landspítali University Hospital research archive |
op_collection_id |
ftlandspitaliuni |
language |
English |
topic |
Bioethical Issues Choice Behavior Female Genetic Testing Guidelines as Topic Health Policy Humans Iceland Informed Consent Parents Pregnancy Prenatal Diagnosis |
spellingShingle |
Bioethical Issues Choice Behavior Female Genetic Testing Guidelines as Topic Health Policy Humans Iceland Informed Consent Parents Pregnancy Prenatal Diagnosis Gottfreðsdóttir, Helga Arnason, Vilhjálmur Bioethical concepts in theory and practice: an exploratory study of prenatal screening in Iceland. |
topic_facet |
Bioethical Issues Choice Behavior Female Genetic Testing Guidelines as Topic Health Policy Humans Iceland Informed Consent Parents Pregnancy Prenatal Diagnosis |
description |
To access publisher full text version of this article. Please click on the hyperlink in Additional Links field. A hallmark of good antenatal care is to respect prospective parent's choices and provide information in a way that encourages their autonomy and informed decision making. In this paper, we analyse the meaning of autonomous and informed decision making from the theoretical perspective and attempt to show how those concepts are described among prospective parents in early pregnancy and in the public media in a society where NT screening is almost a norm. We use interviews with Icelandic prospective parents in early pregnancy (N = 40) and material covering the discourse around prenatal screening in the media over 5 years period. Our analysis indicates that both prospective parents and the public media include ethical terms in their rhetoric around prenatal screening although those concepts differ in their expression. We conclude that the context in which these decisions are taken does not encourage moral reflection. Prospective parents describe that there is a lack of dialogue with professionals when decisions are made about screening. With routine offer of screening the conceptualization of bioethical concepts finds its own way through a mainstream discourse which has limited connections to the theoretical notions. This has been neglected in the implementation of screening, as limited effort has been subject to audit with reference to explore how the offer of screening and informed choice is experienced among prospective parents. |
author2 |
Department of Midwifery, Faculty of Nursing, University of Iceland, Eiríksgata 34, IS-101, Reykjavík, Iceland. helgagot@hi.is |
format |
Article in Journal/Newspaper |
author |
Gottfreðsdóttir, Helga Arnason, Vilhjálmur |
author_facet |
Gottfreðsdóttir, Helga Arnason, Vilhjálmur |
author_sort |
Gottfreðsdóttir, Helga |
title |
Bioethical concepts in theory and practice: an exploratory study of prenatal screening in Iceland. |
title_short |
Bioethical concepts in theory and practice: an exploratory study of prenatal screening in Iceland. |
title_full |
Bioethical concepts in theory and practice: an exploratory study of prenatal screening in Iceland. |
title_fullStr |
Bioethical concepts in theory and practice: an exploratory study of prenatal screening in Iceland. |
title_full_unstemmed |
Bioethical concepts in theory and practice: an exploratory study of prenatal screening in Iceland. |
title_sort |
bioethical concepts in theory and practice: an exploratory study of prenatal screening in iceland. |
publisher |
Kluwer Academic Publishers |
publishDate |
2012 |
url |
http://hdl.handle.net/2336/224993 https://doi.org/10.1007/s11019-010-9291-y |
genre |
Iceland |
genre_facet |
Iceland |
op_relation |
http://dx.doi.org/10.1007/s11019-010-9291-y Med. Health. Care. Philos. 2011, 14(1):53-61 1572-8633 20949321 doi:10.1007/s11019-010-9291-y http://hdl.handle.net/2336/224993 Medicine, health care, and philosophy |
op_rights |
Archived with thanks to Medicine, health care, and philosophy |
op_doi |
https://doi.org/10.1007/s11019-010-9291-y |
container_title |
Medicine, Health Care and Philosophy |
container_volume |
14 |
container_issue |
1 |
container_start_page |
53 |
op_container_end_page |
61 |
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1766038612229488640 |