The effects of parenting a child diagnosed with cancer : distress, resilience and vital exhaustion : living with death in your face
Study I. Aim: Studies of parental reactions to a child’s cancer have traditionally been carried out within the framework of psychiatry and psychopathology. We studied the significance of individual resource factors strengthening parents’ resilience to long-term cancer-related distress, a focus that...
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2017
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ftkarolinskainst:oai:openarchive.ki.se:10616/46130 2024-04-28T08:26:16+00:00 The effects of parenting a child diagnosed with cancer : distress, resilience and vital exhaustion : living with death in your face Guðmundsdóttir, Eygló 2017-11-13 application/pdf http://hdl.handle.net/10616/46130 eng eng Inst för kvinnors och barns hälsa / Dept of Women's and Children's Health I. Gudmundsdóttir, E., Schirren, M., Boman, K. K. (2011). Psychological resilience and long-term distress in Swedish and Icelandic parents' adjustment to childhood cancer. Acta Oncol. 50(3), 373-380. ::doi::10.3109/0284186X.2010.489572 ::pmid::20586659 ::isi::000288323800008 II. Gudmundsdóttir, E., Hörnquist, L, & Boman K. K. (2013). Psychological outcomes in Swedish and Icelandic parents following a child’s cancer—in the light of site-related differences. Support Care Cancer. 21:1637–1645. ::doi::10.1007/s00520-012-1708-0 ::pmid::23381059 ::isi::000318516700015 III. Gudmundsdóttir, E., Harris, R. A., Gísladóttir, B., Lindahl Norberg, A. Parental Vital Exhaustion in the aftermath of a child's cancer diagnosis. [Manuscript] 978-91-7676-901-0 http://hdl.handle.net/10616/46130 info:eu-repo/semantics/openAccess info:eu-repo/semantics/doctoralThesis dok 2017 ftkarolinskainst 2024-04-03T16:47:46Z Study I. Aim: Studies of parental reactions to a child’s cancer have traditionally been carried out within the framework of psychiatry and psychopathology. We studied the significance of individual resource factors strengthening parents’ resilience to long-term cancer-related distress, a focus that has rarely been used. Participants and methods: The two-nation Nordic sample included 333 parents; 159 of whom had experienced a child’s cancer, and 174 reference parents. We studied the sense of coherence (SOC) using the SOC-13 questionnaire. For assessing distress reactions we used a primarily illness-specific 11-dimensional Parental Psychosocial Distress in Cancer (PPD-C) self-report questionnaire developed for use with parents of childhood cancer patients, and the General Health Questionnaire (GHQ). Resilience was defined as absence of/less severe distress. Results: Low SOC was significantly associated with more severe distress in all dimensions of the PPD-C and GHQ. The influence of SOC varied with parents’ gender, showing a stronger modifying influence among mothers. Mothers and fathers also differed in their utilization of professional psychosocial support when confronted with the child’s cancer. Conclusion: Parental resilience to cancer-related distress varies with identifiable strength factors. A strengths-oriented approach helps in understanding parental adjustment to childhood cancer. Addressing resilience helps to identify parents at risk and in need of professional support when faced with a child’s cancer. Study II. Aim: Determining the incidence of disease-related distress symptoms in parents from two treatment sites: a large specialized childhood cancer (CC) center in Sweden and a smaller pediatric unit in Iceland. The two groups were compared by considering differences in center type and care organization. Methods: Participants were 306 parents of 188 CC patients, in- or off-treatment. Illness-specific distress was assessed using the multi-dimensional Parental Psychosocial Distress in Cancer (PPD-C) ... Doctoral or Postdoctoral Thesis Iceland Karolinska Institutet: Publications |
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Open Polar |
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Karolinska Institutet: Publications |
op_collection_id |
ftkarolinskainst |
language |
English |
description |
Study I. Aim: Studies of parental reactions to a child’s cancer have traditionally been carried out within the framework of psychiatry and psychopathology. We studied the significance of individual resource factors strengthening parents’ resilience to long-term cancer-related distress, a focus that has rarely been used. Participants and methods: The two-nation Nordic sample included 333 parents; 159 of whom had experienced a child’s cancer, and 174 reference parents. We studied the sense of coherence (SOC) using the SOC-13 questionnaire. For assessing distress reactions we used a primarily illness-specific 11-dimensional Parental Psychosocial Distress in Cancer (PPD-C) self-report questionnaire developed for use with parents of childhood cancer patients, and the General Health Questionnaire (GHQ). Resilience was defined as absence of/less severe distress. Results: Low SOC was significantly associated with more severe distress in all dimensions of the PPD-C and GHQ. The influence of SOC varied with parents’ gender, showing a stronger modifying influence among mothers. Mothers and fathers also differed in their utilization of professional psychosocial support when confronted with the child’s cancer. Conclusion: Parental resilience to cancer-related distress varies with identifiable strength factors. A strengths-oriented approach helps in understanding parental adjustment to childhood cancer. Addressing resilience helps to identify parents at risk and in need of professional support when faced with a child’s cancer. Study II. Aim: Determining the incidence of disease-related distress symptoms in parents from two treatment sites: a large specialized childhood cancer (CC) center in Sweden and a smaller pediatric unit in Iceland. The two groups were compared by considering differences in center type and care organization. Methods: Participants were 306 parents of 188 CC patients, in- or off-treatment. Illness-specific distress was assessed using the multi-dimensional Parental Psychosocial Distress in Cancer (PPD-C) ... |
format |
Doctoral or Postdoctoral Thesis |
author |
Guðmundsdóttir, Eygló |
spellingShingle |
Guðmundsdóttir, Eygló The effects of parenting a child diagnosed with cancer : distress, resilience and vital exhaustion : living with death in your face |
author_facet |
Guðmundsdóttir, Eygló |
author_sort |
Guðmundsdóttir, Eygló |
title |
The effects of parenting a child diagnosed with cancer : distress, resilience and vital exhaustion : living with death in your face |
title_short |
The effects of parenting a child diagnosed with cancer : distress, resilience and vital exhaustion : living with death in your face |
title_full |
The effects of parenting a child diagnosed with cancer : distress, resilience and vital exhaustion : living with death in your face |
title_fullStr |
The effects of parenting a child diagnosed with cancer : distress, resilience and vital exhaustion : living with death in your face |
title_full_unstemmed |
The effects of parenting a child diagnosed with cancer : distress, resilience and vital exhaustion : living with death in your face |
title_sort |
effects of parenting a child diagnosed with cancer : distress, resilience and vital exhaustion : living with death in your face |
publisher |
Inst för kvinnors och barns hälsa / Dept of Women's and Children's Health |
publishDate |
2017 |
url |
http://hdl.handle.net/10616/46130 |
genre |
Iceland |
genre_facet |
Iceland |
op_relation |
I. Gudmundsdóttir, E., Schirren, M., Boman, K. K. (2011). Psychological resilience and long-term distress in Swedish and Icelandic parents' adjustment to childhood cancer. Acta Oncol. 50(3), 373-380. ::doi::10.3109/0284186X.2010.489572 ::pmid::20586659 ::isi::000288323800008 II. Gudmundsdóttir, E., Hörnquist, L, & Boman K. K. (2013). Psychological outcomes in Swedish and Icelandic parents following a child’s cancer—in the light of site-related differences. Support Care Cancer. 21:1637–1645. ::doi::10.1007/s00520-012-1708-0 ::pmid::23381059 ::isi::000318516700015 III. Gudmundsdóttir, E., Harris, R. A., Gísladóttir, B., Lindahl Norberg, A. Parental Vital Exhaustion in the aftermath of a child's cancer diagnosis. [Manuscript] 978-91-7676-901-0 http://hdl.handle.net/10616/46130 |
op_rights |
info:eu-repo/semantics/openAccess |
_version_ |
1797585721983238144 |