Experiences of young people living with cancer in nonmetropolitan areas: a review of the literature
This review explores the literature on experiences of young people (15–39 years) living with cancer from nonmetropolitan areas, given most available research has focused on those living in major metropolitan areas. The purpose of the review was to inform (a) clinical practice and (b) future research...
Published in: | Journal of Adolescent and Young Adult Oncology |
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Mary Ann Liebert, Inc.
2020
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Online Access: | https://researchonline.jcu.edu.au/60822/6/jayao.2019.0053.pdf |
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ftjamescook:oai:researchonline.jcu.edu.au:60822 2024-02-11T10:03:52+01:00 Experiences of young people living with cancer in nonmetropolitan areas: a review of the literature Sariman, Jodi A. Harris, Nonie M. Harvey, Desley Sansom-Daly, Ursula M. 2020 application/pdf https://researchonline.jcu.edu.au/60822/6/jayao.2019.0053.pdf unknown Mary Ann Liebert, Inc. https://doi.org/10.1089/jayao.2019.0053 https://researchonline.jcu.edu.au/60822/ https://researchonline.jcu.edu.au/60822/6/jayao.2019.0053.pdf Sariman, Jodi A., Harris, Nonie M., Harvey, Desley, and Sansom-Daly, Ursula M. (2020) Experiences of young people living with cancer in nonmetropolitan areas: a review of the literature. Journal of Adolescent and Young Adult Oncology, 9 (2). pp. 133-144. restricted Article PeerReviewed 2020 ftjamescook https://doi.org/10.1089/jayao.2019.0053 2024-01-22T23:44:49Z This review explores the literature on experiences of young people (15–39 years) living with cancer from nonmetropolitan areas, given most available research has focused on those living in major metropolitan areas. The purpose of the review was to inform (a) clinical practice and (b) future research on young people living with cancer in nonmetropolitan areas. An integrative review method explored peer-reviewed publications in CINAHL, Medline, PsycINFO, SSCI, PsycARTICLES, Socindex, and Google Scholar for literature published over the past 20 years. Twelve studies (reported in 17 articles) were eligible for inclusion, of which most (n = 8) had been conducted in Australia. Findings highlighted “the tyranny of distance” from metropolitan specialist cancer care centers negatively affected young people's health (e.g., delayed diagnoses), with financial distress1, psychosocial, cultural, and other challenges resulting. Negative effects were heightened during major treatment transitions at diagnosis, during, and after cancer treatment. One study found some Indigenous Australians did not report symptoms and refused referrals if it necessitated travelling long distances. Five studies did not report greater challenges experienced by nonmetropolitan compared with metropolitan respondents. Health care professionals helping young people can mitigate negative challenges through education and support at diagnosis about financial distress and psychosocial challenges. We recommend further research target ways to minimize delays in diagnosis, reporting of symptoms or accepting allied health referrals, psychosocial upheaval, financial distress, and explore issues particular to First Nations people, to inform services how to meet unique needs of young people living with cancer from nonmetropolitan areas. Article in Journal/Newspaper First Nations James Cook University, Australia: ResearchOnline@JCU Journal of Adolescent and Young Adult Oncology 9 2 133 144 |
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James Cook University, Australia: ResearchOnline@JCU |
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ftjamescook |
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description |
This review explores the literature on experiences of young people (15–39 years) living with cancer from nonmetropolitan areas, given most available research has focused on those living in major metropolitan areas. The purpose of the review was to inform (a) clinical practice and (b) future research on young people living with cancer in nonmetropolitan areas. An integrative review method explored peer-reviewed publications in CINAHL, Medline, PsycINFO, SSCI, PsycARTICLES, Socindex, and Google Scholar for literature published over the past 20 years. Twelve studies (reported in 17 articles) were eligible for inclusion, of which most (n = 8) had been conducted in Australia. Findings highlighted “the tyranny of distance” from metropolitan specialist cancer care centers negatively affected young people's health (e.g., delayed diagnoses), with financial distress1, psychosocial, cultural, and other challenges resulting. Negative effects were heightened during major treatment transitions at diagnosis, during, and after cancer treatment. One study found some Indigenous Australians did not report symptoms and refused referrals if it necessitated travelling long distances. Five studies did not report greater challenges experienced by nonmetropolitan compared with metropolitan respondents. Health care professionals helping young people can mitigate negative challenges through education and support at diagnosis about financial distress and psychosocial challenges. We recommend further research target ways to minimize delays in diagnosis, reporting of symptoms or accepting allied health referrals, psychosocial upheaval, financial distress, and explore issues particular to First Nations people, to inform services how to meet unique needs of young people living with cancer from nonmetropolitan areas. |
format |
Article in Journal/Newspaper |
author |
Sariman, Jodi A. Harris, Nonie M. Harvey, Desley Sansom-Daly, Ursula M. |
spellingShingle |
Sariman, Jodi A. Harris, Nonie M. Harvey, Desley Sansom-Daly, Ursula M. Experiences of young people living with cancer in nonmetropolitan areas: a review of the literature |
author_facet |
Sariman, Jodi A. Harris, Nonie M. Harvey, Desley Sansom-Daly, Ursula M. |
author_sort |
Sariman, Jodi A. |
title |
Experiences of young people living with cancer in nonmetropolitan areas: a review of the literature |
title_short |
Experiences of young people living with cancer in nonmetropolitan areas: a review of the literature |
title_full |
Experiences of young people living with cancer in nonmetropolitan areas: a review of the literature |
title_fullStr |
Experiences of young people living with cancer in nonmetropolitan areas: a review of the literature |
title_full_unstemmed |
Experiences of young people living with cancer in nonmetropolitan areas: a review of the literature |
title_sort |
experiences of young people living with cancer in nonmetropolitan areas: a review of the literature |
publisher |
Mary Ann Liebert, Inc. |
publishDate |
2020 |
url |
https://researchonline.jcu.edu.au/60822/6/jayao.2019.0053.pdf |
genre |
First Nations |
genre_facet |
First Nations |
op_relation |
https://doi.org/10.1089/jayao.2019.0053 https://researchonline.jcu.edu.au/60822/ https://researchonline.jcu.edu.au/60822/6/jayao.2019.0053.pdf Sariman, Jodi A., Harris, Nonie M., Harvey, Desley, and Sansom-Daly, Ursula M. (2020) Experiences of young people living with cancer in nonmetropolitan areas: a review of the literature. Journal of Adolescent and Young Adult Oncology, 9 (2). pp. 133-144. |
op_rights |
restricted |
op_doi |
https://doi.org/10.1089/jayao.2019.0053 |
container_title |
Journal of Adolescent and Young Adult Oncology |
container_volume |
9 |
container_issue |
2 |
container_start_page |
133 |
op_container_end_page |
144 |
_version_ |
1790600199885815808 |