BIOBANKS: GOVERNANCE IN COMPARATIVE PERSPECTIVE

• Other Authors: Gottweis, Herbert, Petersen, Alan
• Language: English
• Published: 2008
• Subjects: Biobanks; Bioethics; Confidentiality; Drugs and Drug Industry; Genetics; Molecular Biology and Microbiology; Genetics and Human Ancestry; International and Political Dimensions of Biology and Medicine; Information Science Ethics; Informed Consent; Klaus; Pálsson; Petersen; Tutton; Iceland
• Online Access: http://hdl.handle.net/10822/548364

List of contributors -- Acknowledgements -- List of abbreviations -- Pt. 1. Conceptualizing biobanks -- 1. Biobanks and governance: an introduction / Herbert Gottweis and Alan Petersen -- 2. Biobanks in action: new strategies in the governance of life / Herbert Gottweis -- Pt. 2. How to build a biobank: comparing different approaches -- 3. The rise and fall of a biobank: the case of Iceland / Gísli Pálsson -- 4. Estonia: ups and downs of a biobank project / Rain Eensaar -- 5. Patient organizations as the (un)usual suspects: the biobanking activities of the Association Française contre les Myopathies and its Généthon DNA and Cell Bank / Michaela Mayrhofer -- 6. 'This is not a national biobank .': the politics of local biobanks in Germany / Ingrid Schneider -- 7. Governing DNA: prospects and problems in the proposed large United States population cohort / Amy Fletcher -- 8. Governance by stealth: large-scale pharmacogenomics and biobanking in Japan / Robert Triendl and Herbert Gottweis -- Pt. 3. Biobanks, publics, and citizenship -- 9. UK Biobank: bioethics as a technology of governance / Oonagh Corrigan and Alan Petersen -- 10. Biobanks and the biopolitics of inclusion and representation / Richard Tutton -- 11. The informed consenters: governing biobanks in Scandinavia / Lars Øystein Ursin, Klaus Hoeyer and John-Arne Skolbekken -- 12. Framing consent: the politics of 'engagement' in an Australian biobank project / Beverly McNamara and Alan Petersen -- 13. Governing through biobanks: research populations in Israel / Barbara Prainsack -- Index