Ethical and methodological issues in research with Sami experiencing disability
Background: A study of disability among the indigenous Sami people in Norway presented a number of ethical and methodological challenges rarely addressed in the literature. Objectives: The main study was designed to examine and understand the everyday life, transitions between life stages and democr...
Published in: | International Journal of Circumpolar Health |
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ftdoajarticles:oai:doaj.org/article:f0d6ad99c79a442cb1cbba000147d728 2023-05-15T15:10:40+02:00 Ethical and methodological issues in research with Sami experiencing disability Line Melbøe Ketil Lenert Hansen Bjørn-Eirik Johnsen Gunn Elin Fedreheim Tone Dinesen Gunn-Tove Minde Marit Rustad 2016-07-01T00:00:00Z https://doi.org/10.3402/ijch.v75.31656 https://doaj.org/article/f0d6ad99c79a442cb1cbba000147d728 EN eng Taylor & Francis Group http://www.circumpolarhealthjournal.net/index.php/ijch/article/view/31656/pdf_76 https://doaj.org/toc/2242-3982 2242-3982 doi:10.3402/ijch.v75.31656 https://doaj.org/article/f0d6ad99c79a442cb1cbba000147d728 International Journal of Circumpolar Health, Vol 75, Iss 0, Pp 1-7 (2016) ethical and methodological issues Sami indigenous health disability Norway Arctic medicine. Tropical medicine RC955-962 article 2016 ftdoajarticles https://doi.org/10.3402/ijch.v75.31656 2022-12-31T14:12:39Z Background: A study of disability among the indigenous Sami people in Norway presented a number of ethical and methodological challenges rarely addressed in the literature. Objectives: The main study was designed to examine and understand the everyday life, transitions between life stages and democratic participation of Norwegian Sami people experiencing disability. Hence, the purpose of this article is to increase the understanding of possible ethical and methodological issues in research within this field. The article describes and discusses ethical and methodological issues that arose when conducting our study and identifies some strategies for addressing issues like these. Methods: The ethical and methodological issues addressed in the article are based on a qualitative study among indigenous Norwegian Sami people experiencing disability. The data in this study were collected through 31 semi-structured in-depth interviews with altogether 24 Sami people experiencing disability and 13 next of kin of Sami people experiencing disability (8 mothers, 2 fathers, 2 sister and 1 guardian). Findings and discussion: The researchers identified 4 main areas of ethical and methodological issues. We present these issues chronologically as they emerged in the research process: 1) concept of knowledge when designing the study, 2) gaining access, 3) data collection and 4) analysis and accountability. Conclusion: The knowledge generated from this study has the potential to benefit future health research, specifically of Norwegian Sami people experiencing disability, as well as health research concerning indigenous people in general, providing scientific-based insight into important ethical and methodological issues in research with indigenous people experiencing disability. Article in Journal/Newspaper Arctic Circumpolar Health International Journal of Circumpolar Health sami Directory of Open Access Journals: DOAJ Articles Arctic Norway International Journal of Circumpolar Health 75 1 31656 |
institution |
Open Polar |
collection |
Directory of Open Access Journals: DOAJ Articles |
op_collection_id |
ftdoajarticles |
language |
English |
topic |
ethical and methodological issues Sami indigenous health disability Norway Arctic medicine. Tropical medicine RC955-962 |
spellingShingle |
ethical and methodological issues Sami indigenous health disability Norway Arctic medicine. Tropical medicine RC955-962 Line Melbøe Ketil Lenert Hansen Bjørn-Eirik Johnsen Gunn Elin Fedreheim Tone Dinesen Gunn-Tove Minde Marit Rustad Ethical and methodological issues in research with Sami experiencing disability |
topic_facet |
ethical and methodological issues Sami indigenous health disability Norway Arctic medicine. Tropical medicine RC955-962 |
description |
Background: A study of disability among the indigenous Sami people in Norway presented a number of ethical and methodological challenges rarely addressed in the literature. Objectives: The main study was designed to examine and understand the everyday life, transitions between life stages and democratic participation of Norwegian Sami people experiencing disability. Hence, the purpose of this article is to increase the understanding of possible ethical and methodological issues in research within this field. The article describes and discusses ethical and methodological issues that arose when conducting our study and identifies some strategies for addressing issues like these. Methods: The ethical and methodological issues addressed in the article are based on a qualitative study among indigenous Norwegian Sami people experiencing disability. The data in this study were collected through 31 semi-structured in-depth interviews with altogether 24 Sami people experiencing disability and 13 next of kin of Sami people experiencing disability (8 mothers, 2 fathers, 2 sister and 1 guardian). Findings and discussion: The researchers identified 4 main areas of ethical and methodological issues. We present these issues chronologically as they emerged in the research process: 1) concept of knowledge when designing the study, 2) gaining access, 3) data collection and 4) analysis and accountability. Conclusion: The knowledge generated from this study has the potential to benefit future health research, specifically of Norwegian Sami people experiencing disability, as well as health research concerning indigenous people in general, providing scientific-based insight into important ethical and methodological issues in research with indigenous people experiencing disability. |
format |
Article in Journal/Newspaper |
author |
Line Melbøe Ketil Lenert Hansen Bjørn-Eirik Johnsen Gunn Elin Fedreheim Tone Dinesen Gunn-Tove Minde Marit Rustad |
author_facet |
Line Melbøe Ketil Lenert Hansen Bjørn-Eirik Johnsen Gunn Elin Fedreheim Tone Dinesen Gunn-Tove Minde Marit Rustad |
author_sort |
Line Melbøe |
title |
Ethical and methodological issues in research with Sami experiencing disability |
title_short |
Ethical and methodological issues in research with Sami experiencing disability |
title_full |
Ethical and methodological issues in research with Sami experiencing disability |
title_fullStr |
Ethical and methodological issues in research with Sami experiencing disability |
title_full_unstemmed |
Ethical and methodological issues in research with Sami experiencing disability |
title_sort |
ethical and methodological issues in research with sami experiencing disability |
publisher |
Taylor & Francis Group |
publishDate |
2016 |
url |
https://doi.org/10.3402/ijch.v75.31656 https://doaj.org/article/f0d6ad99c79a442cb1cbba000147d728 |
geographic |
Arctic Norway |
geographic_facet |
Arctic Norway |
genre |
Arctic Circumpolar Health International Journal of Circumpolar Health sami |
genre_facet |
Arctic Circumpolar Health International Journal of Circumpolar Health sami |
op_source |
International Journal of Circumpolar Health, Vol 75, Iss 0, Pp 1-7 (2016) |
op_relation |
http://www.circumpolarhealthjournal.net/index.php/ijch/article/view/31656/pdf_76 https://doaj.org/toc/2242-3982 2242-3982 doi:10.3402/ijch.v75.31656 https://doaj.org/article/f0d6ad99c79a442cb1cbba000147d728 |
op_doi |
https://doi.org/10.3402/ijch.v75.31656 |
container_title |
International Journal of Circumpolar Health |
container_volume |
75 |
container_issue |
1 |
container_start_page |
31656 |
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1766341650466996224 |