The experience of informal caregiving within Saudi society: expressed needs and expectations
Abstract Background Even though informal caregivers have always been a major element within any society, their contribution to the healthcare system has only recently been recognized. Accordingly, the sustainability of their informal social role is becoming a major concern to policymakers. In Saudi...
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ftdoajarticles:oai:doaj.org/article:ef3ecf08ed08477394da5d8e889692d2 2023-05-15T15:16:20+02:00 The experience of informal caregiving within Saudi society: expressed needs and expectations Soha Almehmadi Abeer M. Alrashed 2023-02-01T00:00:00Z https://doi.org/10.1186/s42506-023-00130-y https://doaj.org/article/ef3ecf08ed08477394da5d8e889692d2 EN eng SpringerOpen https://doi.org/10.1186/s42506-023-00130-y https://doaj.org/toc/2090-262X doi:10.1186/s42506-023-00130-y 2090-262X https://doaj.org/article/ef3ecf08ed08477394da5d8e889692d2 Journal of the Egyptian Public Health Association, Vol 98, Iss 1, Pp 1-9 (2023) Informal caregivers Elderly Long-term care Individuals with disability Saudi society Arctic medicine. Tropical medicine RC955-962 Public aspects of medicine RA1-1270 article 2023 ftdoajarticles https://doi.org/10.1186/s42506-023-00130-y 2023-03-26T01:33:34Z Abstract Background Even though informal caregivers have always been a major element within any society, their contribution to the healthcare system has only recently been recognized. Accordingly, the sustainability of their informal social role is becoming a major concern to policymakers. In Saudi Arabia, recognition of informal caregiving is still limited. This study was carried out to investigate the experience of caregiving in informal settings through identifying the needs of the caregivers along with their expectations of the formal system. Methods A cross-sectional study was conducted to measure the experience of Saudi informal caregivers who were caring for at least one individual with a dependency resulting from either disability, aging, or both. A self-administered questionnaire was designed specifically for this study with 88% reliability. A convenient sample of 300 caregivers was invited electronically through 14 websites supporting families with dependent individuals. Results Of the eligible participants (n = 271), about two-thirds were caring for one elderly person or more, while one-third were caring for individual(s) with disabilities. The two groups did not differ in their needs; their greatest perceived needs were necessary equipment for care recipients, free time to socialize, alternative care setting, and proper income. Overall, the needs on the system level were the highest, followed by the needs on the financial level, then on the social level. On the other hand, the caregivers of individuals with disabilities had greater expectations of formal support than caregivers of the elderly. The greatest expectation among the participants was facilitating care recipients’ mobility within their communities. Overall, the expectations of information support were the highest followed by the expectations of financial support and then material support. Conclusion The participants expressed great expectations of formal support along with some unmet needs. Further research is recommended to emphasize the ... Article in Journal/Newspaper Arctic Directory of Open Access Journals: DOAJ Articles Arctic Journal of the Egyptian Public Health Association 98 1 |
institution |
Open Polar |
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Directory of Open Access Journals: DOAJ Articles |
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ftdoajarticles |
language |
English |
topic |
Informal caregivers Elderly Long-term care Individuals with disability Saudi society Arctic medicine. Tropical medicine RC955-962 Public aspects of medicine RA1-1270 |
spellingShingle |
Informal caregivers Elderly Long-term care Individuals with disability Saudi society Arctic medicine. Tropical medicine RC955-962 Public aspects of medicine RA1-1270 Soha Almehmadi Abeer M. Alrashed The experience of informal caregiving within Saudi society: expressed needs and expectations |
topic_facet |
Informal caregivers Elderly Long-term care Individuals with disability Saudi society Arctic medicine. Tropical medicine RC955-962 Public aspects of medicine RA1-1270 |
description |
Abstract Background Even though informal caregivers have always been a major element within any society, their contribution to the healthcare system has only recently been recognized. Accordingly, the sustainability of their informal social role is becoming a major concern to policymakers. In Saudi Arabia, recognition of informal caregiving is still limited. This study was carried out to investigate the experience of caregiving in informal settings through identifying the needs of the caregivers along with their expectations of the formal system. Methods A cross-sectional study was conducted to measure the experience of Saudi informal caregivers who were caring for at least one individual with a dependency resulting from either disability, aging, or both. A self-administered questionnaire was designed specifically for this study with 88% reliability. A convenient sample of 300 caregivers was invited electronically through 14 websites supporting families with dependent individuals. Results Of the eligible participants (n = 271), about two-thirds were caring for one elderly person or more, while one-third were caring for individual(s) with disabilities. The two groups did not differ in their needs; their greatest perceived needs were necessary equipment for care recipients, free time to socialize, alternative care setting, and proper income. Overall, the needs on the system level were the highest, followed by the needs on the financial level, then on the social level. On the other hand, the caregivers of individuals with disabilities had greater expectations of formal support than caregivers of the elderly. The greatest expectation among the participants was facilitating care recipients’ mobility within their communities. Overall, the expectations of information support were the highest followed by the expectations of financial support and then material support. Conclusion The participants expressed great expectations of formal support along with some unmet needs. Further research is recommended to emphasize the ... |
format |
Article in Journal/Newspaper |
author |
Soha Almehmadi Abeer M. Alrashed |
author_facet |
Soha Almehmadi Abeer M. Alrashed |
author_sort |
Soha Almehmadi |
title |
The experience of informal caregiving within Saudi society: expressed needs and expectations |
title_short |
The experience of informal caregiving within Saudi society: expressed needs and expectations |
title_full |
The experience of informal caregiving within Saudi society: expressed needs and expectations |
title_fullStr |
The experience of informal caregiving within Saudi society: expressed needs and expectations |
title_full_unstemmed |
The experience of informal caregiving within Saudi society: expressed needs and expectations |
title_sort |
experience of informal caregiving within saudi society: expressed needs and expectations |
publisher |
SpringerOpen |
publishDate |
2023 |
url |
https://doi.org/10.1186/s42506-023-00130-y https://doaj.org/article/ef3ecf08ed08477394da5d8e889692d2 |
geographic |
Arctic |
geographic_facet |
Arctic |
genre |
Arctic |
genre_facet |
Arctic |
op_source |
Journal of the Egyptian Public Health Association, Vol 98, Iss 1, Pp 1-9 (2023) |
op_relation |
https://doi.org/10.1186/s42506-023-00130-y https://doaj.org/toc/2090-262X doi:10.1186/s42506-023-00130-y 2090-262X https://doaj.org/article/ef3ecf08ed08477394da5d8e889692d2 |
op_doi |
https://doi.org/10.1186/s42506-023-00130-y |
container_title |
Journal of the Egyptian Public Health Association |
container_volume |
98 |
container_issue |
1 |
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1766346632437170176 |