Laying the Foundation for Real-World Evidence Studies of Psoriatic Disease in Newfoundland and Labrador

• Published in: International Journal of Population Data Science
• Main Authors: Winifred Badaiki, Evelyn Pyper, Kendra Lester, Janelle Skeard, Michelle Penney, Janey Shin, Brenda Fisher, Huong Hew, Susanne Gulliver, Wayne Gulliver, Proton Rahman
• Format: Article in Journal/Newspaper
• Language: English
• Published: Swansea University 2022
• Subjects: Real world data; psoriasis; real world evidence; research partnership; Newfoundland and Labrador; Demography. Population. Vital events; HB848-3697; Newfoundland
• Online Access: https://doi.org/10.23889/ijpds.v7i1.1690; https://doaj.org/article/b822f14c00d44ed382be84d8483b3a57

The Janssen and Newfoundland and Labrador Health Innovation Partnership (JANL-HIP) was established to carry out Real-World Evidence (RWE) projects to generate evidence about disease pathways, healthcare delivery, the effects of clinical interventions. Doing so will support and influence clinical decision-making in Newfoundland and Labrador (NL). This case study describes the foundational elements necessary for a~real-world evidence~generation project in NL and may provide learning for the effective execution of real-world studies in other jurisdictions. It uses an ongoing project in psoriatic disease in NL to illustrate the partnership and the benefits of RWE studies. Ultimately, the JANL-HIP RWE project aims to inform decisions that will drive improvements in health outcomes, system delivery, and policy mutually beneficial to health ecosystem stakeholders.