Outcomes of the Health Data Research Network (HDRN) Canada and Canadian Longitudinal Study on Aging (CLSA) Partnership
Objective and Approach The Canadian Longitudinal Study on Aging (CLSA) is the largest national longitudinal cohort study, following ~50,000 adults across 10 provinces for at least 20 years. Health Data Research Network (HDRN) Canada is a distributed pan-Canadian network including members in all 13 p...
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Swansea University
2024
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Online Access: | https://doi.org/10.23889/ijpds.v9i5.2745 https://doaj.org/article/b15cd4b723b04d7ebc280ea80b24bc1a |
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ftdoajarticles:oai:doaj.org/article:b15cd4b723b04d7ebc280ea80b24bc1a 2024-09-30T14:38:56+00:00 Outcomes of the Health Data Research Network (HDRN) Canada and Canadian Longitudinal Study on Aging (CLSA) Partnership Anne Hayes Sophie Hogeveen Jodi Gatley Andrew Costa Lauren Griffith Aaron Jones Sarah Youssef Parminder Raina Andrea Gruneir Carrie Anne Whyte Carla Hovey Marie-Chantal Ethier Donna Curtis Maillet Mahmoud Azimaee Erik Youngson Tim Choi Lindsey Gilbert Magda Nunes De Melo Lindsay Stewart Kendra Lester Katelyn Frizzell Robyn Kydd Mary-Ann Standing Charles Burchill Dave Towns Jean-Francois Cantin 2024-09-01T00:00:00Z https://doi.org/10.23889/ijpds.v9i5.2745 https://doaj.org/article/b15cd4b723b04d7ebc280ea80b24bc1a EN eng Swansea University https://ijpds.org/article/view/2745 https://doaj.org/toc/2399-4908 doi:10.23889/ijpds.v9i5.2745 2399-4908 https://doaj.org/article/b15cd4b723b04d7ebc280ea80b24bc1a International Journal of Population Data Science, Vol 9, Iss 5 (2024) Demography. Population. Vital events HB848-3697 article 2024 ftdoajarticles https://doi.org/10.23889/ijpds.v9i5.2745 2024-09-17T16:00:48Z Objective and Approach The Canadian Longitudinal Study on Aging (CLSA) is the largest national longitudinal cohort study, following ~50,000 adults across 10 provinces for at least 20 years. Health Data Research Network (HDRN) Canada is a distributed pan-Canadian network including members in all 13 provinces and territories. In February 2021, the organizations partnered with the objective to provide researchers with efficient access to multi-regional CLSA data linked to other health/health-related data through HDRN Canada’s data centres. A Steering Committee was convened including representatives from all parties to oversee the process from data sharing agreements (DSAs), negotiating terms of access, through to data transfer and linkage. Results In Spring 2024, linkage was complete at four data centres (Ontario, New Brunswick, British Columbia, and Nova Scotia), with a DSA also in place for Newfoundland and Labrador. DSAs are nearing approval at three others (Manitoba, Prince Edward Island, and Quebec), and in progress in Alberta. Saskatchewan is working towards participation. Conclusions The HDRN Canada-CLSA partnership is on the way to making linked provincial CLSA cohort data available in all participating jurisdictions, facilitated by streamlined agreements and processes. Implications Collaborative efforts of organizations such as HDRN Canada and CLSA to foster data linkages and streamline data access at a multi-regional level offers an unparalleled opportunity to explore the intersection between aging and health care utilization. Research enabled by this initiative will inform health care decision making and evidence-based policy development at multiple levels, from the individual to multiple levels of government. Article in Journal/Newspaper Newfoundland Prince Edward Island Directory of Open Access Journals: DOAJ Articles British Columbia ENVELOPE(-125.003,-125.003,54.000,54.000) Canada Newfoundland International Journal of Population Data Science 9 5 |
institution |
Open Polar |
collection |
Directory of Open Access Journals: DOAJ Articles |
op_collection_id |
ftdoajarticles |
language |
English |
topic |
Demography. Population. Vital events HB848-3697 |
spellingShingle |
Demography. Population. Vital events HB848-3697 Anne Hayes Sophie Hogeveen Jodi Gatley Andrew Costa Lauren Griffith Aaron Jones Sarah Youssef Parminder Raina Andrea Gruneir Carrie Anne Whyte Carla Hovey Marie-Chantal Ethier Donna Curtis Maillet Mahmoud Azimaee Erik Youngson Tim Choi Lindsey Gilbert Magda Nunes De Melo Lindsay Stewart Kendra Lester Katelyn Frizzell Robyn Kydd Mary-Ann Standing Charles Burchill Dave Towns Jean-Francois Cantin Outcomes of the Health Data Research Network (HDRN) Canada and Canadian Longitudinal Study on Aging (CLSA) Partnership |
topic_facet |
Demography. Population. Vital events HB848-3697 |
description |
Objective and Approach The Canadian Longitudinal Study on Aging (CLSA) is the largest national longitudinal cohort study, following ~50,000 adults across 10 provinces for at least 20 years. Health Data Research Network (HDRN) Canada is a distributed pan-Canadian network including members in all 13 provinces and territories. In February 2021, the organizations partnered with the objective to provide researchers with efficient access to multi-regional CLSA data linked to other health/health-related data through HDRN Canada’s data centres. A Steering Committee was convened including representatives from all parties to oversee the process from data sharing agreements (DSAs), negotiating terms of access, through to data transfer and linkage. Results In Spring 2024, linkage was complete at four data centres (Ontario, New Brunswick, British Columbia, and Nova Scotia), with a DSA also in place for Newfoundland and Labrador. DSAs are nearing approval at three others (Manitoba, Prince Edward Island, and Quebec), and in progress in Alberta. Saskatchewan is working towards participation. Conclusions The HDRN Canada-CLSA partnership is on the way to making linked provincial CLSA cohort data available in all participating jurisdictions, facilitated by streamlined agreements and processes. Implications Collaborative efforts of organizations such as HDRN Canada and CLSA to foster data linkages and streamline data access at a multi-regional level offers an unparalleled opportunity to explore the intersection between aging and health care utilization. Research enabled by this initiative will inform health care decision making and evidence-based policy development at multiple levels, from the individual to multiple levels of government. |
format |
Article in Journal/Newspaper |
author |
Anne Hayes Sophie Hogeveen Jodi Gatley Andrew Costa Lauren Griffith Aaron Jones Sarah Youssef Parminder Raina Andrea Gruneir Carrie Anne Whyte Carla Hovey Marie-Chantal Ethier Donna Curtis Maillet Mahmoud Azimaee Erik Youngson Tim Choi Lindsey Gilbert Magda Nunes De Melo Lindsay Stewart Kendra Lester Katelyn Frizzell Robyn Kydd Mary-Ann Standing Charles Burchill Dave Towns Jean-Francois Cantin |
author_facet |
Anne Hayes Sophie Hogeveen Jodi Gatley Andrew Costa Lauren Griffith Aaron Jones Sarah Youssef Parminder Raina Andrea Gruneir Carrie Anne Whyte Carla Hovey Marie-Chantal Ethier Donna Curtis Maillet Mahmoud Azimaee Erik Youngson Tim Choi Lindsey Gilbert Magda Nunes De Melo Lindsay Stewart Kendra Lester Katelyn Frizzell Robyn Kydd Mary-Ann Standing Charles Burchill Dave Towns Jean-Francois Cantin |
author_sort |
Anne Hayes |
title |
Outcomes of the Health Data Research Network (HDRN) Canada and Canadian Longitudinal Study on Aging (CLSA) Partnership |
title_short |
Outcomes of the Health Data Research Network (HDRN) Canada and Canadian Longitudinal Study on Aging (CLSA) Partnership |
title_full |
Outcomes of the Health Data Research Network (HDRN) Canada and Canadian Longitudinal Study on Aging (CLSA) Partnership |
title_fullStr |
Outcomes of the Health Data Research Network (HDRN) Canada and Canadian Longitudinal Study on Aging (CLSA) Partnership |
title_full_unstemmed |
Outcomes of the Health Data Research Network (HDRN) Canada and Canadian Longitudinal Study on Aging (CLSA) Partnership |
title_sort |
outcomes of the health data research network (hdrn) canada and canadian longitudinal study on aging (clsa) partnership |
publisher |
Swansea University |
publishDate |
2024 |
url |
https://doi.org/10.23889/ijpds.v9i5.2745 https://doaj.org/article/b15cd4b723b04d7ebc280ea80b24bc1a |
long_lat |
ENVELOPE(-125.003,-125.003,54.000,54.000) |
geographic |
British Columbia Canada Newfoundland |
geographic_facet |
British Columbia Canada Newfoundland |
genre |
Newfoundland Prince Edward Island |
genre_facet |
Newfoundland Prince Edward Island |
op_source |
International Journal of Population Data Science, Vol 9, Iss 5 (2024) |
op_relation |
https://ijpds.org/article/view/2745 https://doaj.org/toc/2399-4908 doi:10.23889/ijpds.v9i5.2745 2399-4908 https://doaj.org/article/b15cd4b723b04d7ebc280ea80b24bc1a |
op_doi |
https://doi.org/10.23889/ijpds.v9i5.2745 |
container_title |
International Journal of Population Data Science |
container_volume |
9 |
container_issue |
5 |
_version_ |
1811641514528342016 |