Relatives’ level of satisfaction with advanced cancer care in Greenland – a mixed methods study
Palliative cancer care in Greenland is provided by health professionals at local level, the national Queen Ingrid’s Hospital and at Rigshospitalet in Denmark. To improve and develop care for relatives of patients with advanced cancer, we conducted a mixed method study examining relatives’ level of s...
Published in: | International Journal of Circumpolar Health |
---|---|
Main Authors: | , , , , |
Format: | Article in Journal/Newspaper |
Language: | English |
Published: |
Taylor & Francis Group
2017
|
Subjects: | |
Online Access: | https://doi.org/10.1080/22423982.2017.1335148 https://doaj.org/article/ae7aac1b4bff491694501b766c8ff05e |
id |
ftdoajarticles:oai:doaj.org/article:ae7aac1b4bff491694501b766c8ff05e |
---|---|
record_format |
openpolar |
spelling |
ftdoajarticles:oai:doaj.org/article:ae7aac1b4bff491694501b766c8ff05e 2023-05-15T15:15:57+02:00 Relatives’ level of satisfaction with advanced cancer care in Greenland – a mixed methods study Mikaela Augustussen Lise Hounsgaard Michael Lynge Pedersen Per Sjøgren Helle Timm 2017-01-01T00:00:00Z https://doi.org/10.1080/22423982.2017.1335148 https://doaj.org/article/ae7aac1b4bff491694501b766c8ff05e EN eng Taylor & Francis Group http://dx.doi.org/10.1080/22423982.2017.1335148 https://doaj.org/toc/2242-3982 2242-3982 doi:10.1080/22423982.2017.1335148 https://doaj.org/article/ae7aac1b4bff491694501b766c8ff05e International Journal of Circumpolar Health, Vol 76, Iss 1 (2017) Relatives advanced cancer care Greenland rural and remote areas satisfaction Arctic medicine. Tropical medicine RC955-962 article 2017 ftdoajarticles https://doi.org/10.1080/22423982.2017.1335148 2022-12-31T00:29:03Z Palliative cancer care in Greenland is provided by health professionals at local level, the national Queen Ingrid’s Hospital and at Rigshospitalet in Denmark. To improve and develop care for relatives of patients with advanced cancer, we conducted a mixed method study examining relatives’ level of satisfaction with care and treatment and their current main concerns. The aim was to investigate relatives’ level of satisfaction with advanced cancer care and bring to light their current main concerns. The FAMCARE-20 questionnaire was translated to Greenlandic and pilot tested. The questionnaire was supplemented by open-ended questions about relative’s current main concerns and analyzed with a phenomenological hermeneutical approach. Greenlandic patients with advanced cancer who were previously participating in a prospective study were asked if their closest adult relative would participate in the study. Telephone interviews were conducted and relatives responded to the questionnaire. A total of thirty-two relatives were contacted by telephone and 30 (94%) completed the FAMCARE-20 questionnaire and answered open-ended questions. The highest rate of satisfaction was with the availability of a hospital bed (66%) and relatives were the most dissatisfied with the lack of inclusion in decision making related to treatment and care (71%) and the length of time required to diagnose cancer (70%). Responses to the open-ended questions revealed that relatives faced challenges in gaining access to information from health professionals. They experienced a lack of security, worries about the future and a lack of support at home. The study showed a substantial level of dissatisfaction among relatives of patients with advanced cancer. We strongly recommend a focus on psychosocial care, more access to information and to include relatives in decision making and in the future planning of palliative care services. An assessment of relatives’ needs is essential to develop an adequate palliative care in a range of settings. Article in Journal/Newspaper Arctic Circumpolar Health Greenland greenlandic International Journal of Circumpolar Health Directory of Open Access Journals: DOAJ Articles Arctic Greenland International Journal of Circumpolar Health 76 1 1335148 |
institution |
Open Polar |
collection |
Directory of Open Access Journals: DOAJ Articles |
op_collection_id |
ftdoajarticles |
language |
English |
topic |
Relatives advanced cancer care Greenland rural and remote areas satisfaction Arctic medicine. Tropical medicine RC955-962 |
spellingShingle |
Relatives advanced cancer care Greenland rural and remote areas satisfaction Arctic medicine. Tropical medicine RC955-962 Mikaela Augustussen Lise Hounsgaard Michael Lynge Pedersen Per Sjøgren Helle Timm Relatives’ level of satisfaction with advanced cancer care in Greenland – a mixed methods study |
topic_facet |
Relatives advanced cancer care Greenland rural and remote areas satisfaction Arctic medicine. Tropical medicine RC955-962 |
description |
Palliative cancer care in Greenland is provided by health professionals at local level, the national Queen Ingrid’s Hospital and at Rigshospitalet in Denmark. To improve and develop care for relatives of patients with advanced cancer, we conducted a mixed method study examining relatives’ level of satisfaction with care and treatment and their current main concerns. The aim was to investigate relatives’ level of satisfaction with advanced cancer care and bring to light their current main concerns. The FAMCARE-20 questionnaire was translated to Greenlandic and pilot tested. The questionnaire was supplemented by open-ended questions about relative’s current main concerns and analyzed with a phenomenological hermeneutical approach. Greenlandic patients with advanced cancer who were previously participating in a prospective study were asked if their closest adult relative would participate in the study. Telephone interviews were conducted and relatives responded to the questionnaire. A total of thirty-two relatives were contacted by telephone and 30 (94%) completed the FAMCARE-20 questionnaire and answered open-ended questions. The highest rate of satisfaction was with the availability of a hospital bed (66%) and relatives were the most dissatisfied with the lack of inclusion in decision making related to treatment and care (71%) and the length of time required to diagnose cancer (70%). Responses to the open-ended questions revealed that relatives faced challenges in gaining access to information from health professionals. They experienced a lack of security, worries about the future and a lack of support at home. The study showed a substantial level of dissatisfaction among relatives of patients with advanced cancer. We strongly recommend a focus on psychosocial care, more access to information and to include relatives in decision making and in the future planning of palliative care services. An assessment of relatives’ needs is essential to develop an adequate palliative care in a range of settings. |
format |
Article in Journal/Newspaper |
author |
Mikaela Augustussen Lise Hounsgaard Michael Lynge Pedersen Per Sjøgren Helle Timm |
author_facet |
Mikaela Augustussen Lise Hounsgaard Michael Lynge Pedersen Per Sjøgren Helle Timm |
author_sort |
Mikaela Augustussen |
title |
Relatives’ level of satisfaction with advanced cancer care in Greenland – a mixed methods study |
title_short |
Relatives’ level of satisfaction with advanced cancer care in Greenland – a mixed methods study |
title_full |
Relatives’ level of satisfaction with advanced cancer care in Greenland – a mixed methods study |
title_fullStr |
Relatives’ level of satisfaction with advanced cancer care in Greenland – a mixed methods study |
title_full_unstemmed |
Relatives’ level of satisfaction with advanced cancer care in Greenland – a mixed methods study |
title_sort |
relatives’ level of satisfaction with advanced cancer care in greenland – a mixed methods study |
publisher |
Taylor & Francis Group |
publishDate |
2017 |
url |
https://doi.org/10.1080/22423982.2017.1335148 https://doaj.org/article/ae7aac1b4bff491694501b766c8ff05e |
geographic |
Arctic Greenland |
geographic_facet |
Arctic Greenland |
genre |
Arctic Circumpolar Health Greenland greenlandic International Journal of Circumpolar Health |
genre_facet |
Arctic Circumpolar Health Greenland greenlandic International Journal of Circumpolar Health |
op_source |
International Journal of Circumpolar Health, Vol 76, Iss 1 (2017) |
op_relation |
http://dx.doi.org/10.1080/22423982.2017.1335148 https://doaj.org/toc/2242-3982 2242-3982 doi:10.1080/22423982.2017.1335148 https://doaj.org/article/ae7aac1b4bff491694501b766c8ff05e |
op_doi |
https://doi.org/10.1080/22423982.2017.1335148 |
container_title |
International Journal of Circumpolar Health |
container_volume |
76 |
container_issue |
1 |
container_start_page |
1335148 |
_version_ |
1766346266629898240 |