Perspectives on Linkage Involving Indigenous data

• Published in: International Journal of Population Data Science
• Main Authors: Jennifer Walker, Bonnie Healy, Chyloe Healy, Tina Apsassin, William Wadsworth, Carmen Jones, Jeff Reading, Laurel Lemchuk-Favel, Raymond Lovett, Donna Cormack, Stephanie Rainie, Desi Rodriguez-Lonebear, Robyn Rowe
• Format: Article in Journal/Newspaper
• Language: English
• Published: Swansea University 2018
• Subjects: Demography. Population. Vital events; HB848-3697; British Columbia; Canada; New Zealand; Rodriguez; First Nations
• Online Access: https://doi.org/10.23889/ijpds.v3i4.999; https://doaj.org/article/a0533c79a31d4a629402c45735b9cad1

Topic: Perspectives on Linkage Involving Indigenous data Indigenous populations across the globe are reaffirming their sovereignty rights in the collection and use of Indigenous data. The Indigenous data sovereignty movement has been widely influential and can be unsettling for those who routinely use population-level linked data that include Indigenous identifiers. Ethical policies that stipulate community engagement for access, interpretation and dissemination of Indigenous data create an enabling environment through the critical process of negotiating and navigating data access in partnership with communities. This session will be designed to create space for leading Indigenous voices to set the tone for the discussion around Indigenous population data linkage. Objectives: • To provide participants with an opportunity to build on the themes of Indigenous Data Sovereignty presented in the keynote session as they apply to diverse Indigenous populations. • To explore approaches to the linkage of Indigenous-identified population data across four countries, including First Nations in three Canadian regions. • To share practical applications of Indigenous data sovereignty on data linkage and analysis and discussion. • To center Indigenous-driven data linkage and research. Facilitator: Jennifer Walker. Canada Research Chair in Indigenous Health, Laurentian University and Indigenous Lead, Institute for Clinical Evaluative Sciences. Collaborators: • Alberta: Bonnie Healy, Tina Apsassin, Chyloe Healy and William Wadsworth (Alberta First Nations Information Governance Centre) • Ontario: Carmen R. Jones (Chiefs of Ontario) and Jennifer Walker (Institute for Clinical Evaluative Sciences) • British Columbia: Jeff Reading (Providence Health Centre) and Laurel Lemchuk-Favel (First Nations Health Authority) • Australia: Raymond Lovett (Australian National University) • Aotearoa / New Zealand: Donna Cormack (University of Otago) • United States: Stephanie Rainie and Desi Rodriguez-Lonebear (University of Arizona) Session ...