The cultural validation of two scales to assess social stigma in leprosy.
BACKGROUND:Stigma plays in an important role in the lives of persons affected by neglected tropical diseases, and assessment of stigma is important to document this. The aim of this study is to test the cross-cultural validity of the Community Stigma Scale (EMIC-CSS) and the Social Distance Scale (S...
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ftdoajarticles:oai:doaj.org/article:9e4b18a6dd2e4392931d6a170c24fdfd 2023-05-15T15:16:05+02:00 The cultural validation of two scales to assess social stigma in leprosy. Ruth M H Peters Dadun Wim H Van Brakel Marjolein B M Zweekhorst Rita Damayanti Joske F G Bunders Irwanto 2014-01-01T00:00:00Z https://doi.org/10.1371/journal.pntd.0003274 https://doaj.org/article/9e4b18a6dd2e4392931d6a170c24fdfd EN eng Public Library of Science (PLoS) http://europepmc.org/articles/PMC4222778?pdf=render https://doaj.org/toc/1935-2727 https://doaj.org/toc/1935-2735 1935-2727 1935-2735 doi:10.1371/journal.pntd.0003274 https://doaj.org/article/9e4b18a6dd2e4392931d6a170c24fdfd PLoS Neglected Tropical Diseases, Vol 8, Iss 11, p e3274 (2014) Arctic medicine. Tropical medicine RC955-962 Public aspects of medicine RA1-1270 article 2014 ftdoajarticles https://doi.org/10.1371/journal.pntd.0003274 2022-12-31T12:36:22Z BACKGROUND:Stigma plays in an important role in the lives of persons affected by neglected tropical diseases, and assessment of stigma is important to document this. The aim of this study is to test the cross-cultural validity of the Community Stigma Scale (EMIC-CSS) and the Social Distance Scale (SDS) in the field of leprosy in Cirebon District, Indonesia. METHODOLOGY/PRINCIPLE FINDINGS:Cultural equivalence was tested by assessing the conceptual, item, semantic, operational and measurement equivalence of these instruments. A qualitative exploratory study was conducted to increase our understanding of the concept of stigma in Cirebon District. A process of translation, discussions, trainings and a pilot study followed. A sample of 259 community members was selected through convenience sampling and 67 repeated measures were obtained to assess the psychometric measurement properties. The aspects and items in the SDS and EMIC-CSS seem equally relevant and important in the target culture. The response scales were adapted to ensure that meaning is transferred accurately and no changes to the scale format (e.g. lay out, statements or questions) of both scales were made. A positive correlation was found between the EMIC-CSS and the SDS total scores (r=0.41). Cronbach's alphas of 0.83 and 0.87 were found for the EMIC-CSS and SDS. The exploratory factor analysis indicated for both scales an adequate fit as unidimensional scale. A standard error of measurement of 2.38 was found in the EMIC-CSS and of 1.78 in the SDS. The test-retest reliability coefficient was respectively, 0.84 and 0.75. No floor or ceiling effects were found. CONCLUSIONS/SIGNIFICANCE:According to current international standards, our findings indicate that the EMIC-CSS and the SDS have adequate cultural validity to assess social stigma in leprosy in the Bahasa Indonesia-speaking population of Cirebon District. We believe the scales can be further improved, for instance, by adding, changing and rephrasing certain items. Finally, we provide suggestions for ... Article in Journal/Newspaper Arctic Directory of Open Access Journals: DOAJ Articles Arctic PLoS Neglected Tropical Diseases 8 11 e3274 |
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English |
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Arctic medicine. Tropical medicine RC955-962 Public aspects of medicine RA1-1270 |
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Arctic medicine. Tropical medicine RC955-962 Public aspects of medicine RA1-1270 Ruth M H Peters Dadun Wim H Van Brakel Marjolein B M Zweekhorst Rita Damayanti Joske F G Bunders Irwanto The cultural validation of two scales to assess social stigma in leprosy. |
topic_facet |
Arctic medicine. Tropical medicine RC955-962 Public aspects of medicine RA1-1270 |
description |
BACKGROUND:Stigma plays in an important role in the lives of persons affected by neglected tropical diseases, and assessment of stigma is important to document this. The aim of this study is to test the cross-cultural validity of the Community Stigma Scale (EMIC-CSS) and the Social Distance Scale (SDS) in the field of leprosy in Cirebon District, Indonesia. METHODOLOGY/PRINCIPLE FINDINGS:Cultural equivalence was tested by assessing the conceptual, item, semantic, operational and measurement equivalence of these instruments. A qualitative exploratory study was conducted to increase our understanding of the concept of stigma in Cirebon District. A process of translation, discussions, trainings and a pilot study followed. A sample of 259 community members was selected through convenience sampling and 67 repeated measures were obtained to assess the psychometric measurement properties. The aspects and items in the SDS and EMIC-CSS seem equally relevant and important in the target culture. The response scales were adapted to ensure that meaning is transferred accurately and no changes to the scale format (e.g. lay out, statements or questions) of both scales were made. A positive correlation was found between the EMIC-CSS and the SDS total scores (r=0.41). Cronbach's alphas of 0.83 and 0.87 were found for the EMIC-CSS and SDS. The exploratory factor analysis indicated for both scales an adequate fit as unidimensional scale. A standard error of measurement of 2.38 was found in the EMIC-CSS and of 1.78 in the SDS. The test-retest reliability coefficient was respectively, 0.84 and 0.75. No floor or ceiling effects were found. CONCLUSIONS/SIGNIFICANCE:According to current international standards, our findings indicate that the EMIC-CSS and the SDS have adequate cultural validity to assess social stigma in leprosy in the Bahasa Indonesia-speaking population of Cirebon District. We believe the scales can be further improved, for instance, by adding, changing and rephrasing certain items. Finally, we provide suggestions for ... |
format |
Article in Journal/Newspaper |
author |
Ruth M H Peters Dadun Wim H Van Brakel Marjolein B M Zweekhorst Rita Damayanti Joske F G Bunders Irwanto |
author_facet |
Ruth M H Peters Dadun Wim H Van Brakel Marjolein B M Zweekhorst Rita Damayanti Joske F G Bunders Irwanto |
author_sort |
Ruth M H Peters |
title |
The cultural validation of two scales to assess social stigma in leprosy. |
title_short |
The cultural validation of two scales to assess social stigma in leprosy. |
title_full |
The cultural validation of two scales to assess social stigma in leprosy. |
title_fullStr |
The cultural validation of two scales to assess social stigma in leprosy. |
title_full_unstemmed |
The cultural validation of two scales to assess social stigma in leprosy. |
title_sort |
cultural validation of two scales to assess social stigma in leprosy. |
publisher |
Public Library of Science (PLoS) |
publishDate |
2014 |
url |
https://doi.org/10.1371/journal.pntd.0003274 https://doaj.org/article/9e4b18a6dd2e4392931d6a170c24fdfd |
geographic |
Arctic |
geographic_facet |
Arctic |
genre |
Arctic |
genre_facet |
Arctic |
op_source |
PLoS Neglected Tropical Diseases, Vol 8, Iss 11, p e3274 (2014) |
op_relation |
http://europepmc.org/articles/PMC4222778?pdf=render https://doaj.org/toc/1935-2727 https://doaj.org/toc/1935-2735 1935-2727 1935-2735 doi:10.1371/journal.pntd.0003274 https://doaj.org/article/9e4b18a6dd2e4392931d6a170c24fdfd |
op_doi |
https://doi.org/10.1371/journal.pntd.0003274 |
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PLoS Neglected Tropical Diseases |
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8 |
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11 |
container_start_page |
e3274 |
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