Family impact and economic burden among caregivers of children with chronic kidney disease in Assiut, Egypt
Abstract Background Chronic disease greatly increases children’s dependency on parents/caregivers (usually mothers) as they face new problems associated with caring for a child with chronic disease. Thus, chronic kidney disease (CKD) presents a burden for children and their families that last throug...
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ftdoajarticles:oai:doaj.org/article:98b78a849f924a69bc9bfb25bf7a5a57 2023-05-15T15:12:47+02:00 Family impact and economic burden among caregivers of children with chronic kidney disease in Assiut, Egypt Manal M Darwish Shimaa Hosny Hassan Samaher Fathy Taha Hosnia Said Abd El-Megeed Taghreed Abdul-Aziz Mohammad Ismail 2020-10-01T00:00:00Z https://doi.org/10.1186/s42506-020-00058-7 https://doaj.org/article/98b78a849f924a69bc9bfb25bf7a5a57 EN eng SpringerOpen http://link.springer.com/article/10.1186/s42506-020-00058-7 https://doaj.org/toc/2090-262X doi:10.1186/s42506-020-00058-7 2090-262X https://doaj.org/article/98b78a849f924a69bc9bfb25bf7a5a57 Journal of the Egyptian Public Health Association, Vol 95, Iss 1, Pp 1-8 (2020) Pediatric Chronic renal disease Financial impact Caregivers Arctic medicine. Tropical medicine RC955-962 Public aspects of medicine RA1-1270 article 2020 ftdoajarticles https://doi.org/10.1186/s42506-020-00058-7 2022-12-31T01:56:03Z Abstract Background Chronic disease greatly increases children’s dependency on parents/caregivers (usually mothers) as they face new problems associated with caring for a child with chronic disease. Thus, chronic kidney disease (CKD) presents a burden for children and their families that last throughout life in different aspects. This study aimed to assess family impact and economic burden of chronic kidney disease (CKD) in children on their families. Methods A cross-sectional study was carried out on 250 caregivers of children with CKD attending tertiary care hospital/health insurance clinics in Assiut, Egypt using PedsQL™ family impact module (FIM) for assessing family impact and economic burden between January and May 2018. Results Seventy six percent of caregivers shared paying for treatment with health insurance while 14% paid the total expenses out of their pockets. Although the majority (87.2%) of caregivers suffered different degrees of financial hardship, more than 60% of them had no coping strategy. The regression module showed that responding caregiver, degree of financial hardship, treatment modality, and socioeconomic class were significant predictors of total FIM (β = 0.38, P < 0.001; β = 0.28, P < 0.001; β = 0.22, P < 0.001; β = 0.13, P = 0.006 respectively). Conclusion Most caregivers were involved in paying for treatment of their children either totally or sharing with health insurance and suffered different degrees of financial hardship. Mothers, caregivers with great financial hardship, and caregivers of children on dialysis had the lowest scores of PedsQL™ FIM. There is a high need for expansion of health insurance umbrella to reduce financial hardship together with continued multidimensional support to families. Article in Journal/Newspaper Arctic Directory of Open Access Journals: DOAJ Articles Arctic Journal of the Egyptian Public Health Association 95 1 |
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Directory of Open Access Journals: DOAJ Articles |
op_collection_id |
ftdoajarticles |
language |
English |
topic |
Pediatric Chronic renal disease Financial impact Caregivers Arctic medicine. Tropical medicine RC955-962 Public aspects of medicine RA1-1270 |
spellingShingle |
Pediatric Chronic renal disease Financial impact Caregivers Arctic medicine. Tropical medicine RC955-962 Public aspects of medicine RA1-1270 Manal M Darwish Shimaa Hosny Hassan Samaher Fathy Taha Hosnia Said Abd El-Megeed Taghreed Abdul-Aziz Mohammad Ismail Family impact and economic burden among caregivers of children with chronic kidney disease in Assiut, Egypt |
topic_facet |
Pediatric Chronic renal disease Financial impact Caregivers Arctic medicine. Tropical medicine RC955-962 Public aspects of medicine RA1-1270 |
description |
Abstract Background Chronic disease greatly increases children’s dependency on parents/caregivers (usually mothers) as they face new problems associated with caring for a child with chronic disease. Thus, chronic kidney disease (CKD) presents a burden for children and their families that last throughout life in different aspects. This study aimed to assess family impact and economic burden of chronic kidney disease (CKD) in children on their families. Methods A cross-sectional study was carried out on 250 caregivers of children with CKD attending tertiary care hospital/health insurance clinics in Assiut, Egypt using PedsQL™ family impact module (FIM) for assessing family impact and economic burden between January and May 2018. Results Seventy six percent of caregivers shared paying for treatment with health insurance while 14% paid the total expenses out of their pockets. Although the majority (87.2%) of caregivers suffered different degrees of financial hardship, more than 60% of them had no coping strategy. The regression module showed that responding caregiver, degree of financial hardship, treatment modality, and socioeconomic class were significant predictors of total FIM (β = 0.38, P < 0.001; β = 0.28, P < 0.001; β = 0.22, P < 0.001; β = 0.13, P = 0.006 respectively). Conclusion Most caregivers were involved in paying for treatment of their children either totally or sharing with health insurance and suffered different degrees of financial hardship. Mothers, caregivers with great financial hardship, and caregivers of children on dialysis had the lowest scores of PedsQL™ FIM. There is a high need for expansion of health insurance umbrella to reduce financial hardship together with continued multidimensional support to families. |
format |
Article in Journal/Newspaper |
author |
Manal M Darwish Shimaa Hosny Hassan Samaher Fathy Taha Hosnia Said Abd El-Megeed Taghreed Abdul-Aziz Mohammad Ismail |
author_facet |
Manal M Darwish Shimaa Hosny Hassan Samaher Fathy Taha Hosnia Said Abd El-Megeed Taghreed Abdul-Aziz Mohammad Ismail |
author_sort |
Manal M Darwish |
title |
Family impact and economic burden among caregivers of children with chronic kidney disease in Assiut, Egypt |
title_short |
Family impact and economic burden among caregivers of children with chronic kidney disease in Assiut, Egypt |
title_full |
Family impact and economic burden among caregivers of children with chronic kidney disease in Assiut, Egypt |
title_fullStr |
Family impact and economic burden among caregivers of children with chronic kidney disease in Assiut, Egypt |
title_full_unstemmed |
Family impact and economic burden among caregivers of children with chronic kidney disease in Assiut, Egypt |
title_sort |
family impact and economic burden among caregivers of children with chronic kidney disease in assiut, egypt |
publisher |
SpringerOpen |
publishDate |
2020 |
url |
https://doi.org/10.1186/s42506-020-00058-7 https://doaj.org/article/98b78a849f924a69bc9bfb25bf7a5a57 |
geographic |
Arctic |
geographic_facet |
Arctic |
genre |
Arctic |
genre_facet |
Arctic |
op_source |
Journal of the Egyptian Public Health Association, Vol 95, Iss 1, Pp 1-8 (2020) |
op_relation |
http://link.springer.com/article/10.1186/s42506-020-00058-7 https://doaj.org/toc/2090-262X doi:10.1186/s42506-020-00058-7 2090-262X https://doaj.org/article/98b78a849f924a69bc9bfb25bf7a5a57 |
op_doi |
https://doi.org/10.1186/s42506-020-00058-7 |
container_title |
Journal of the Egyptian Public Health Association |
container_volume |
95 |
container_issue |
1 |
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1766343428612816896 |