Risky Obliviousness Within Fragmented Services: Experiences of Families With Disabled Children During the Covid‐19 Pandemic
Living on an island in a pandemic has its obvious advantages. However, in a globalised economy, border restrictions cannot keep the COVID‐19 virus completely at bay. Despite coordinated efforts at infection control and extensive vaccination, Iceland, a sparsely populated island in the north, was pla...
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ftdoajarticles:oai:doaj.org/article:913424a2937a4039a5fb3bbaf7617ebb 2023-05-15T16:48:12+02:00 Risky Obliviousness Within Fragmented Services: Experiences of Families With Disabled Children During the Covid‐19 Pandemic Hrafnhildur Snæfríðar- Gunnarsdóttir Tinna Ólafsdóttir Kristín Björnsdóttir 2023-01-01T00:00:00Z https://doi.org/10.17645/si.v11i1.5642 https://doaj.org/article/913424a2937a4039a5fb3bbaf7617ebb EN eng Cogitatio https://www.cogitatiopress.com/socialinclusion/article/view/5642 https://doaj.org/toc/2183-2803 2183-2803 doi:10.17645/si.v11i1.5642 https://doaj.org/article/913424a2937a4039a5fb3bbaf7617ebb Social Inclusion, Vol 11, Iss 1, Pp 5-15 (2023) covid‐19 disabled children family support iceland social inequality Sociology (General) HM401-1281 article 2023 ftdoajarticles https://doi.org/10.17645/si.v11i1.5642 2023-01-22T01:39:00Z Living on an island in a pandemic has its obvious advantages. However, in a globalised economy, border restrictions cannot keep the COVID‐19 virus completely at bay. Despite coordinated efforts at infection control and extensive vaccination, Iceland, a sparsely populated island in the north, was placed among the countries in the highest risk category by the ECDC. In this article, wereport a qualitative study carried out at the peak of the fourth COVID‐19 wave in 2021, when the pandemic had severely hit the Icelandic social and healthcare system, with a record‐breaking number of infections. Semi‐structured interviews were conducted with parents with seven disabled children. Guided by feminist standpoint theory and critical disability studies, we focused on how service structures affected and shaped parents’ and children’s experiences during the first waves of the pandemic. The findings suggest that the pandemic intensified the already precarious position of the families. During the pandemic, the gaps in the already fragmented services widened, and the families were left to navigate this new reality on their own. Preventive measures enforced by municipalities and healthcare services centred on non‐disabled people’s experiences and needs. Unprepared service systems distanced themselves from the families while maintaining governance and supervision over defining their need for support. Article in Journal/Newspaper Iceland Directory of Open Access Journals: DOAJ Articles Social Inclusion 11 1 |
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Directory of Open Access Journals: DOAJ Articles |
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ftdoajarticles |
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English |
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covid‐19 disabled children family support iceland social inequality Sociology (General) HM401-1281 |
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covid‐19 disabled children family support iceland social inequality Sociology (General) HM401-1281 Hrafnhildur Snæfríðar- Gunnarsdóttir Tinna Ólafsdóttir Kristín Björnsdóttir Risky Obliviousness Within Fragmented Services: Experiences of Families With Disabled Children During the Covid‐19 Pandemic |
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covid‐19 disabled children family support iceland social inequality Sociology (General) HM401-1281 |
description |
Living on an island in a pandemic has its obvious advantages. However, in a globalised economy, border restrictions cannot keep the COVID‐19 virus completely at bay. Despite coordinated efforts at infection control and extensive vaccination, Iceland, a sparsely populated island in the north, was placed among the countries in the highest risk category by the ECDC. In this article, wereport a qualitative study carried out at the peak of the fourth COVID‐19 wave in 2021, when the pandemic had severely hit the Icelandic social and healthcare system, with a record‐breaking number of infections. Semi‐structured interviews were conducted with parents with seven disabled children. Guided by feminist standpoint theory and critical disability studies, we focused on how service structures affected and shaped parents’ and children’s experiences during the first waves of the pandemic. The findings suggest that the pandemic intensified the already precarious position of the families. During the pandemic, the gaps in the already fragmented services widened, and the families were left to navigate this new reality on their own. Preventive measures enforced by municipalities and healthcare services centred on non‐disabled people’s experiences and needs. Unprepared service systems distanced themselves from the families while maintaining governance and supervision over defining their need for support. |
format |
Article in Journal/Newspaper |
author |
Hrafnhildur Snæfríðar- Gunnarsdóttir Tinna Ólafsdóttir Kristín Björnsdóttir |
author_facet |
Hrafnhildur Snæfríðar- Gunnarsdóttir Tinna Ólafsdóttir Kristín Björnsdóttir |
author_sort |
Hrafnhildur Snæfríðar- Gunnarsdóttir |
title |
Risky Obliviousness Within Fragmented Services: Experiences of Families With Disabled Children During the Covid‐19 Pandemic |
title_short |
Risky Obliviousness Within Fragmented Services: Experiences of Families With Disabled Children During the Covid‐19 Pandemic |
title_full |
Risky Obliviousness Within Fragmented Services: Experiences of Families With Disabled Children During the Covid‐19 Pandemic |
title_fullStr |
Risky Obliviousness Within Fragmented Services: Experiences of Families With Disabled Children During the Covid‐19 Pandemic |
title_full_unstemmed |
Risky Obliviousness Within Fragmented Services: Experiences of Families With Disabled Children During the Covid‐19 Pandemic |
title_sort |
risky obliviousness within fragmented services: experiences of families with disabled children during the covid‐19 pandemic |
publisher |
Cogitatio |
publishDate |
2023 |
url |
https://doi.org/10.17645/si.v11i1.5642 https://doaj.org/article/913424a2937a4039a5fb3bbaf7617ebb |
genre |
Iceland |
genre_facet |
Iceland |
op_source |
Social Inclusion, Vol 11, Iss 1, Pp 5-15 (2023) |
op_relation |
https://www.cogitatiopress.com/socialinclusion/article/view/5642 https://doaj.org/toc/2183-2803 2183-2803 doi:10.17645/si.v11i1.5642 https://doaj.org/article/913424a2937a4039a5fb3bbaf7617ebb |
op_doi |
https://doi.org/10.17645/si.v11i1.5642 |
container_title |
Social Inclusion |
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11 |
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1 |
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1766038316483870720 |