Psychosocial resources developed and trialled for Indigenous people with autism spectrum disorder and their caregivers: a systematic review and catalogue
Abstract Background People with autism spectrum disorder (ASD) face many psychosocial challenges throughout life, highlighting the need for programs and resources promoting psychosocial wellbeing. Indigenous peoples with ASD and/or other neurodevelopmental disorders must overcome cultural and social...
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ftdoajarticles:oai:doaj.org/article:88b090b010b444d780d481ce103f3bd7 2023-05-15T16:17:05+02:00 Psychosocial resources developed and trialled for Indigenous people with autism spectrum disorder and their caregivers: a systematic review and catalogue Ian M. Shochet Jayne A. Orr Rachel L. Kelly Astrid M. Wurfl Beth R. Saggers Suzanne B. Carrington 2020-08-01T00:00:00Z https://doi.org/10.1186/s12939-020-01247-8 https://doaj.org/article/88b090b010b444d780d481ce103f3bd7 EN eng BMC http://link.springer.com/article/10.1186/s12939-020-01247-8 https://doaj.org/toc/1475-9276 doi:10.1186/s12939-020-01247-8 1475-9276 https://doaj.org/article/88b090b010b444d780d481ce103f3bd7 International Journal for Equity in Health, Vol 19, Iss 1, Pp 1-19 (2020) Systematic review Interventions – psychosocial/behavioural Autism spectrum disorder Neurodevelopmental disorder Indigenous First nations Public aspects of medicine RA1-1270 article 2020 ftdoajarticles https://doi.org/10.1186/s12939-020-01247-8 2022-12-31T11:27:29Z Abstract Background People with autism spectrum disorder (ASD) face many psychosocial challenges throughout life, highlighting the need for programs and resources promoting psychosocial wellbeing. Indigenous peoples with ASD and/or other neurodevelopmental disorders must overcome cultural and social barriers to access such supports. This study aimed to identify psychosocial programs and resources developed world-wide for this population by systematically reviewing research evaluating programs aiming to promote the psychosocial wellbeing of this population and/or their caregivers; and collating and reviewing resources developed to promote their psychosocial wellbeing. Methods Searches were last conducted in December 2019. The systematic review searched 28 electronic databases, and 25 electronic databases were searched for resources promoting psychosocial wellbeing. Additional published and unpublished studies were identified from relevant reviews, authors of eligible articles, and experts working in Indigenous Health. Articles and resources were screened for inclusion using pre-defined criteria. Articles included in the systematic review were assessed for quality using the Mixed Methods Assessment Tool. The diversity and paucity of outcomes reported precluded pooling of study findings for meta-analysis. Results Seven articles situated in the USA (2), Canada (3) and Australia (2); and eleven resources developed in Australia (9), Canada (1) and New Zealand (1) met inclusion criteria. All articles showed some promising findings for improving psychosocial wellbeing for Indigenous children with ASD and/or another neurodevelopmental disorder, and 5 of 7 evaluated the cultural adaptation of an existing evidence-based program for an Indigenous population. However, methodological quality was moderate or low (57% and 43% of articles respectively) and no studies had adult participants. The psychosocial wellbeing supports provided by the 11 resources included psychoeducation, community support, and services/workshops. ... Article in Journal/Newspaper First Nations Directory of Open Access Journals: DOAJ Articles Canada New Zealand International Journal for Equity in Health 19 1 |
institution |
Open Polar |
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Directory of Open Access Journals: DOAJ Articles |
op_collection_id |
ftdoajarticles |
language |
English |
topic |
Systematic review Interventions – psychosocial/behavioural Autism spectrum disorder Neurodevelopmental disorder Indigenous First nations Public aspects of medicine RA1-1270 |
spellingShingle |
Systematic review Interventions – psychosocial/behavioural Autism spectrum disorder Neurodevelopmental disorder Indigenous First nations Public aspects of medicine RA1-1270 Ian M. Shochet Jayne A. Orr Rachel L. Kelly Astrid M. Wurfl Beth R. Saggers Suzanne B. Carrington Psychosocial resources developed and trialled for Indigenous people with autism spectrum disorder and their caregivers: a systematic review and catalogue |
topic_facet |
Systematic review Interventions – psychosocial/behavioural Autism spectrum disorder Neurodevelopmental disorder Indigenous First nations Public aspects of medicine RA1-1270 |
description |
Abstract Background People with autism spectrum disorder (ASD) face many psychosocial challenges throughout life, highlighting the need for programs and resources promoting psychosocial wellbeing. Indigenous peoples with ASD and/or other neurodevelopmental disorders must overcome cultural and social barriers to access such supports. This study aimed to identify psychosocial programs and resources developed world-wide for this population by systematically reviewing research evaluating programs aiming to promote the psychosocial wellbeing of this population and/or their caregivers; and collating and reviewing resources developed to promote their psychosocial wellbeing. Methods Searches were last conducted in December 2019. The systematic review searched 28 electronic databases, and 25 electronic databases were searched for resources promoting psychosocial wellbeing. Additional published and unpublished studies were identified from relevant reviews, authors of eligible articles, and experts working in Indigenous Health. Articles and resources were screened for inclusion using pre-defined criteria. Articles included in the systematic review were assessed for quality using the Mixed Methods Assessment Tool. The diversity and paucity of outcomes reported precluded pooling of study findings for meta-analysis. Results Seven articles situated in the USA (2), Canada (3) and Australia (2); and eleven resources developed in Australia (9), Canada (1) and New Zealand (1) met inclusion criteria. All articles showed some promising findings for improving psychosocial wellbeing for Indigenous children with ASD and/or another neurodevelopmental disorder, and 5 of 7 evaluated the cultural adaptation of an existing evidence-based program for an Indigenous population. However, methodological quality was moderate or low (57% and 43% of articles respectively) and no studies had adult participants. The psychosocial wellbeing supports provided by the 11 resources included psychoeducation, community support, and services/workshops. ... |
format |
Article in Journal/Newspaper |
author |
Ian M. Shochet Jayne A. Orr Rachel L. Kelly Astrid M. Wurfl Beth R. Saggers Suzanne B. Carrington |
author_facet |
Ian M. Shochet Jayne A. Orr Rachel L. Kelly Astrid M. Wurfl Beth R. Saggers Suzanne B. Carrington |
author_sort |
Ian M. Shochet |
title |
Psychosocial resources developed and trialled for Indigenous people with autism spectrum disorder and their caregivers: a systematic review and catalogue |
title_short |
Psychosocial resources developed and trialled for Indigenous people with autism spectrum disorder and their caregivers: a systematic review and catalogue |
title_full |
Psychosocial resources developed and trialled for Indigenous people with autism spectrum disorder and their caregivers: a systematic review and catalogue |
title_fullStr |
Psychosocial resources developed and trialled for Indigenous people with autism spectrum disorder and their caregivers: a systematic review and catalogue |
title_full_unstemmed |
Psychosocial resources developed and trialled for Indigenous people with autism spectrum disorder and their caregivers: a systematic review and catalogue |
title_sort |
psychosocial resources developed and trialled for indigenous people with autism spectrum disorder and their caregivers: a systematic review and catalogue |
publisher |
BMC |
publishDate |
2020 |
url |
https://doi.org/10.1186/s12939-020-01247-8 https://doaj.org/article/88b090b010b444d780d481ce103f3bd7 |
geographic |
Canada New Zealand |
geographic_facet |
Canada New Zealand |
genre |
First Nations |
genre_facet |
First Nations |
op_source |
International Journal for Equity in Health, Vol 19, Iss 1, Pp 1-19 (2020) |
op_relation |
http://link.springer.com/article/10.1186/s12939-020-01247-8 https://doaj.org/toc/1475-9276 doi:10.1186/s12939-020-01247-8 1475-9276 https://doaj.org/article/88b090b010b444d780d481ce103f3bd7 |
op_doi |
https://doi.org/10.1186/s12939-020-01247-8 |
container_title |
International Journal for Equity in Health |
container_volume |
19 |
container_issue |
1 |
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1766002924625854464 |