The gendered impact of Buruli ulcer on the household production of health and social support networks: Why decentralization favors women.
BACKGROUND:Buruli ulcer [BU] is a chronic and debilitating neglected tropical skin disease caused by Mycobacterium ulcerans. The treatment of moderate to severe BU affects the well-being of entire households and places a strain on both gender relations within households and social relations with kin...
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ftdoajarticles:oai:doaj.org/article:7cb5623b63234ca9af246c24218e2be1 2023-05-15T15:15:00+02:00 The gendered impact of Buruli ulcer on the household production of health and social support networks: Why decentralization favors women. Ines Elvire Agbo Roch Christian Johnson Ghislain Emmanuel Sopoh Mark Nichter 2019-04-01T00:00:00Z https://doi.org/10.1371/journal.pntd.0007317 https://doaj.org/article/7cb5623b63234ca9af246c24218e2be1 EN eng Public Library of Science (PLoS) http://europepmc.org/articles/PMC6483275?pdf=render https://doaj.org/toc/1935-2727 https://doaj.org/toc/1935-2735 1935-2727 1935-2735 doi:10.1371/journal.pntd.0007317 https://doaj.org/article/7cb5623b63234ca9af246c24218e2be1 PLoS Neglected Tropical Diseases, Vol 13, Iss 4, p e0007317 (2019) Arctic medicine. Tropical medicine RC955-962 Public aspects of medicine RA1-1270 article 2019 ftdoajarticles https://doi.org/10.1371/journal.pntd.0007317 2022-12-31T00:41:21Z BACKGROUND:Buruli ulcer [BU] is a chronic and debilitating neglected tropical skin disease caused by Mycobacterium ulcerans. The treatment of moderate to severe BU affects the well-being of entire households and places a strain on both gender relations within households and social relations with kin asked for various types of support. In this paper, we employ the conceptual lenses provided by the Household Production of Health approach to understanding the impact of illness on the household as a unit of analysis, gender studies, and social support related research to better understand BU health care decision making and the psychosocial experience of BU hospitalization. METHODS:An ethnography attentive to circumstance and the nested contexts within which stakeholders respond to BU was conducted employing semi-structured interviews, illness narratives, and case studies. An iterative process of data collection with preliminary analyses and reflection shaped subsequent interviews. Interviews were conducted with 45 women in households having a member afflicted with BU in two communes of Benin with high prevalence rates for BU. The first commune [ZE] has a well-established decentralized BU treatment program and a well-functioning referral network linked to the Allada reference hospital specializing in the care of BU and other chronic ulcers. The second commune [Ouinhi] is one of the last regions of the country to introduce a decentralized BU treatment program. A maximum variation purposeful sample was selected to identify information-rich health care decision cases for in-depth study. PRINCIPAL FINDINGS:Study results demonstrated that although men are the primary decision makers for healthcare decisions outside the home, women are largely responsible for arranging care for the afflicted in hospital in addition to managing their own households. A woman's agency and ability to influence the decision-making process is largely based on whatever social support and substitute labor she can mobilize from her own network of ... Article in Journal/Newspaper Arctic Directory of Open Access Journals: DOAJ Articles Arctic PLOS Neglected Tropical Diseases 13 4 e0007317 |
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Directory of Open Access Journals: DOAJ Articles |
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English |
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Arctic medicine. Tropical medicine RC955-962 Public aspects of medicine RA1-1270 |
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Arctic medicine. Tropical medicine RC955-962 Public aspects of medicine RA1-1270 Ines Elvire Agbo Roch Christian Johnson Ghislain Emmanuel Sopoh Mark Nichter The gendered impact of Buruli ulcer on the household production of health and social support networks: Why decentralization favors women. |
topic_facet |
Arctic medicine. Tropical medicine RC955-962 Public aspects of medicine RA1-1270 |
description |
BACKGROUND:Buruli ulcer [BU] is a chronic and debilitating neglected tropical skin disease caused by Mycobacterium ulcerans. The treatment of moderate to severe BU affects the well-being of entire households and places a strain on both gender relations within households and social relations with kin asked for various types of support. In this paper, we employ the conceptual lenses provided by the Household Production of Health approach to understanding the impact of illness on the household as a unit of analysis, gender studies, and social support related research to better understand BU health care decision making and the psychosocial experience of BU hospitalization. METHODS:An ethnography attentive to circumstance and the nested contexts within which stakeholders respond to BU was conducted employing semi-structured interviews, illness narratives, and case studies. An iterative process of data collection with preliminary analyses and reflection shaped subsequent interviews. Interviews were conducted with 45 women in households having a member afflicted with BU in two communes of Benin with high prevalence rates for BU. The first commune [ZE] has a well-established decentralized BU treatment program and a well-functioning referral network linked to the Allada reference hospital specializing in the care of BU and other chronic ulcers. The second commune [Ouinhi] is one of the last regions of the country to introduce a decentralized BU treatment program. A maximum variation purposeful sample was selected to identify information-rich health care decision cases for in-depth study. PRINCIPAL FINDINGS:Study results demonstrated that although men are the primary decision makers for healthcare decisions outside the home, women are largely responsible for arranging care for the afflicted in hospital in addition to managing their own households. A woman's agency and ability to influence the decision-making process is largely based on whatever social support and substitute labor she can mobilize from her own network of ... |
format |
Article in Journal/Newspaper |
author |
Ines Elvire Agbo Roch Christian Johnson Ghislain Emmanuel Sopoh Mark Nichter |
author_facet |
Ines Elvire Agbo Roch Christian Johnson Ghislain Emmanuel Sopoh Mark Nichter |
author_sort |
Ines Elvire Agbo |
title |
The gendered impact of Buruli ulcer on the household production of health and social support networks: Why decentralization favors women. |
title_short |
The gendered impact of Buruli ulcer on the household production of health and social support networks: Why decentralization favors women. |
title_full |
The gendered impact of Buruli ulcer on the household production of health and social support networks: Why decentralization favors women. |
title_fullStr |
The gendered impact of Buruli ulcer on the household production of health and social support networks: Why decentralization favors women. |
title_full_unstemmed |
The gendered impact of Buruli ulcer on the household production of health and social support networks: Why decentralization favors women. |
title_sort |
gendered impact of buruli ulcer on the household production of health and social support networks: why decentralization favors women. |
publisher |
Public Library of Science (PLoS) |
publishDate |
2019 |
url |
https://doi.org/10.1371/journal.pntd.0007317 https://doaj.org/article/7cb5623b63234ca9af246c24218e2be1 |
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Arctic |
geographic_facet |
Arctic |
genre |
Arctic |
genre_facet |
Arctic |
op_source |
PLoS Neglected Tropical Diseases, Vol 13, Iss 4, p e0007317 (2019) |
op_relation |
http://europepmc.org/articles/PMC6483275?pdf=render https://doaj.org/toc/1935-2727 https://doaj.org/toc/1935-2735 1935-2727 1935-2735 doi:10.1371/journal.pntd.0007317 https://doaj.org/article/7cb5623b63234ca9af246c24218e2be1 |
op_doi |
https://doi.org/10.1371/journal.pntd.0007317 |
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PLOS Neglected Tropical Diseases |
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13 |
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e0007317 |
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