Experiences of living with leprosy: A systematic review and qualitative evidence synthesis.
Objective The objective of the review was to identify, appraise, and synthesise qualitative studies on the lived experience of individuals diagnosed with leprosy, the impact of the disease, and how they coped with the disease burden. Introduction Leprosy is a chronic disease with long-term biopsycho...
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ftdoajarticles:oai:doaj.org/article:5a8c3f6192674c21a84dc53424f42339 2023-05-15T15:15:29+02:00 Experiences of living with leprosy: A systematic review and qualitative evidence synthesis. Norana Abdul Rahman Vaikunthan Rajaratnam George L Burchell Ruth M H Peters Marjolein B M Zweekhorst 2022-10-01T00:00:00Z https://doi.org/10.1371/journal.pntd.0010761 https://doaj.org/article/5a8c3f6192674c21a84dc53424f42339 EN eng Public Library of Science (PLoS) https://doi.org/10.1371/journal.pntd.0010761 https://doaj.org/toc/1935-2727 https://doaj.org/toc/1935-2735 1935-2727 1935-2735 doi:10.1371/journal.pntd.0010761 https://doaj.org/article/5a8c3f6192674c21a84dc53424f42339 PLoS Neglected Tropical Diseases, Vol 16, Iss 10, p e0010761 (2022) Arctic medicine. Tropical medicine RC955-962 Public aspects of medicine RA1-1270 article 2022 ftdoajarticles https://doi.org/10.1371/journal.pntd.0010761 2022-12-30T20:31:07Z Objective The objective of the review was to identify, appraise, and synthesise qualitative studies on the lived experience of individuals diagnosed with leprosy, the impact of the disease, and how they coped with the disease burden. Introduction Leprosy is a chronic disease with long-term biopsychosocial impact and is a leading cause of preventable disabilities. It traps the individuals with leprosy in a vicious circle of disease, stigma, and poverty. The efforts to reduce stigma and discrimination and improve their quality of life have not kept pace with the success of the multidrug treatment. Inclusion criteria This review considered published literature on the lived experience of individuals diagnosed with leprosy. There were no limitations on gender, background, or country. All qualitative or mixed-methods studies were accepted. Methods The review followed the JBI meta-aggregation approach for qualitative systematic reviews. A structured literature search was undertaken using multiple electronic databases: PubMed, Embase, Web of Science, and CINAHL. Results The search identified 723 publications, and there were 446 articles after deduplication. Forty-nine studies met the inclusion criteria. The final 173 findings were synthesised into ten categories and aggregated into four synthesised findings: biophysical impact, social impact, economic impact, and mental and emotional impact. These synthesised findings were consistent across the included studies from a patient's perspective. The way people coped with leprosy depended on their interpretation of the disease and its treatment. It affected their help-seeking behaviour and their adherence to treatment and self-care. The review has identified a multi-domain effect on the affected individuals, which goes beyond the biological and physical effects, looking at the social issues, specific difficulties, emotions, and economic hardships. Conclusions The researchers, health professionals, and policymakers could use the synthesised findings to address the concerns and ... Article in Journal/Newspaper Arctic Directory of Open Access Journals: DOAJ Articles Arctic PLOS Neglected Tropical Diseases 16 10 e0010761 |
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Directory of Open Access Journals: DOAJ Articles |
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Arctic medicine. Tropical medicine RC955-962 Public aspects of medicine RA1-1270 |
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Arctic medicine. Tropical medicine RC955-962 Public aspects of medicine RA1-1270 Norana Abdul Rahman Vaikunthan Rajaratnam George L Burchell Ruth M H Peters Marjolein B M Zweekhorst Experiences of living with leprosy: A systematic review and qualitative evidence synthesis. |
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Arctic medicine. Tropical medicine RC955-962 Public aspects of medicine RA1-1270 |
description |
Objective The objective of the review was to identify, appraise, and synthesise qualitative studies on the lived experience of individuals diagnosed with leprosy, the impact of the disease, and how they coped with the disease burden. Introduction Leprosy is a chronic disease with long-term biopsychosocial impact and is a leading cause of preventable disabilities. It traps the individuals with leprosy in a vicious circle of disease, stigma, and poverty. The efforts to reduce stigma and discrimination and improve their quality of life have not kept pace with the success of the multidrug treatment. Inclusion criteria This review considered published literature on the lived experience of individuals diagnosed with leprosy. There were no limitations on gender, background, or country. All qualitative or mixed-methods studies were accepted. Methods The review followed the JBI meta-aggregation approach for qualitative systematic reviews. A structured literature search was undertaken using multiple electronic databases: PubMed, Embase, Web of Science, and CINAHL. Results The search identified 723 publications, and there were 446 articles after deduplication. Forty-nine studies met the inclusion criteria. The final 173 findings were synthesised into ten categories and aggregated into four synthesised findings: biophysical impact, social impact, economic impact, and mental and emotional impact. These synthesised findings were consistent across the included studies from a patient's perspective. The way people coped with leprosy depended on their interpretation of the disease and its treatment. It affected their help-seeking behaviour and their adherence to treatment and self-care. The review has identified a multi-domain effect on the affected individuals, which goes beyond the biological and physical effects, looking at the social issues, specific difficulties, emotions, and economic hardships. Conclusions The researchers, health professionals, and policymakers could use the synthesised findings to address the concerns and ... |
format |
Article in Journal/Newspaper |
author |
Norana Abdul Rahman Vaikunthan Rajaratnam George L Burchell Ruth M H Peters Marjolein B M Zweekhorst |
author_facet |
Norana Abdul Rahman Vaikunthan Rajaratnam George L Burchell Ruth M H Peters Marjolein B M Zweekhorst |
author_sort |
Norana Abdul Rahman |
title |
Experiences of living with leprosy: A systematic review and qualitative evidence synthesis. |
title_short |
Experiences of living with leprosy: A systematic review and qualitative evidence synthesis. |
title_full |
Experiences of living with leprosy: A systematic review and qualitative evidence synthesis. |
title_fullStr |
Experiences of living with leprosy: A systematic review and qualitative evidence synthesis. |
title_full_unstemmed |
Experiences of living with leprosy: A systematic review and qualitative evidence synthesis. |
title_sort |
experiences of living with leprosy: a systematic review and qualitative evidence synthesis. |
publisher |
Public Library of Science (PLoS) |
publishDate |
2022 |
url |
https://doi.org/10.1371/journal.pntd.0010761 https://doaj.org/article/5a8c3f6192674c21a84dc53424f42339 |
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Arctic |
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Arctic |
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Arctic |
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Arctic |
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PLoS Neglected Tropical Diseases, Vol 16, Iss 10, p e0010761 (2022) |
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https://doi.org/10.1371/journal.pntd.0010761 https://doaj.org/toc/1935-2727 https://doaj.org/toc/1935-2735 1935-2727 1935-2735 doi:10.1371/journal.pntd.0010761 https://doaj.org/article/5a8c3f6192674c21a84dc53424f42339 |
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https://doi.org/10.1371/journal.pntd.0010761 |
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PLOS Neglected Tropical Diseases |
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