Hemophilia care in the state of Rio de Janeiro, Brazil
In the developing countries of the world, few people with hemophilia receive adequate care. Nevertheless, Brazil has made significant advances in the treatment of hemophilia over the last decade. The provision of factor concentrates imported by the Government of Brazil is gradually increasing, and p...
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ftdoajarticles:oai:doaj.org/article:58c7b9f2ea4d473e880ddde74f596235 2023-05-15T15:10:56+02:00 Hemophilia care in the state of Rio de Janeiro, Brazil Eva M. A. Fontes Luiz Amorim Silvia M. Carvalho Miguel B. Farah 2003-03-01T00:00:00Z https://doi.org/10.1590/s1020-49892003000200013 https://doaj.org/article/58c7b9f2ea4d473e880ddde74f596235 EN ES PT eng spa por Pan American Health Organization http://www.scielosp.org/scielo.php?script=sci_arttext&pid=S1020-49892003000200013&lng=en&tlng=en https://doaj.org/toc/1020-4989 1020-4989 doi:10.1590/s1020-49892003000200013 https://doaj.org/article/58c7b9f2ea4d473e880ddde74f596235 Revista Panamericana de Salud Pública, Vol 13, Iss 2-3, Pp 124-128 (2003) Hemophilia health services Brazil Medicine R Arctic medicine. Tropical medicine RC955-962 Public aspects of medicine RA1-1270 article 2003 ftdoajarticles https://doi.org/10.1590/s1020-49892003000200013 2022-12-31T11:39:02Z In the developing countries of the world, few people with hemophilia receive adequate care. Nevertheless, Brazil has made significant advances in the treatment of hemophilia over the last decade. The provision of factor concentrates imported by the Government of Brazil is gradually increasing, and patients receive the concentrates for free. A national register was established as well as a coordinated program for comprehensive care. Of the 6 297 persons with hemophilia in Brazil who were registered as of January 2001, 689 of them (11.1%) were registered in the state of Rio de Janeiro. Of those 689, 664 of them were being monitored at the state's coordinating blood transfusion center, which is located in the city of Rio de Janeiro. Among those 664, factor VIII inhibitors were identified in 81 of them (12.2%). Among 653 of the Rio de Janeiro patients who were tested for transfusion-transmitted diseases, the overall prevalence found was 41.5%, with the specific rates being 13.3% for human immunodeficiency virus (HIV), 2.9% for hepatitis B virus (HBV), and 39.4% for hepatitis C virus (HCV). The state of Rio de Janeiro has adopted a comprehensive hemophilia management approach that includes medical, psychological, and social care. As a result, the quality of life of hemophilia patients has improved noticeably. For example, the rate of hospitalization among patients fell by 30% between 1998 and 2001, and there has also been a decline in the school and work activities that they have missed. Article in Journal/Newspaper Arctic Directory of Open Access Journals: DOAJ Articles Arctic Revista Panamericana de Salud Pública 13 2-3 124 128 |
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Hemophilia health services Brazil Medicine R Arctic medicine. Tropical medicine RC955-962 Public aspects of medicine RA1-1270 |
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Hemophilia health services Brazil Medicine R Arctic medicine. Tropical medicine RC955-962 Public aspects of medicine RA1-1270 Eva M. A. Fontes Luiz Amorim Silvia M. Carvalho Miguel B. Farah Hemophilia care in the state of Rio de Janeiro, Brazil |
topic_facet |
Hemophilia health services Brazil Medicine R Arctic medicine. Tropical medicine RC955-962 Public aspects of medicine RA1-1270 |
description |
In the developing countries of the world, few people with hemophilia receive adequate care. Nevertheless, Brazil has made significant advances in the treatment of hemophilia over the last decade. The provision of factor concentrates imported by the Government of Brazil is gradually increasing, and patients receive the concentrates for free. A national register was established as well as a coordinated program for comprehensive care. Of the 6 297 persons with hemophilia in Brazil who were registered as of January 2001, 689 of them (11.1%) were registered in the state of Rio de Janeiro. Of those 689, 664 of them were being monitored at the state's coordinating blood transfusion center, which is located in the city of Rio de Janeiro. Among those 664, factor VIII inhibitors were identified in 81 of them (12.2%). Among 653 of the Rio de Janeiro patients who were tested for transfusion-transmitted diseases, the overall prevalence found was 41.5%, with the specific rates being 13.3% for human immunodeficiency virus (HIV), 2.9% for hepatitis B virus (HBV), and 39.4% for hepatitis C virus (HCV). The state of Rio de Janeiro has adopted a comprehensive hemophilia management approach that includes medical, psychological, and social care. As a result, the quality of life of hemophilia patients has improved noticeably. For example, the rate of hospitalization among patients fell by 30% between 1998 and 2001, and there has also been a decline in the school and work activities that they have missed. |
format |
Article in Journal/Newspaper |
author |
Eva M. A. Fontes Luiz Amorim Silvia M. Carvalho Miguel B. Farah |
author_facet |
Eva M. A. Fontes Luiz Amorim Silvia M. Carvalho Miguel B. Farah |
author_sort |
Eva M. A. Fontes |
title |
Hemophilia care in the state of Rio de Janeiro, Brazil |
title_short |
Hemophilia care in the state of Rio de Janeiro, Brazil |
title_full |
Hemophilia care in the state of Rio de Janeiro, Brazil |
title_fullStr |
Hemophilia care in the state of Rio de Janeiro, Brazil |
title_full_unstemmed |
Hemophilia care in the state of Rio de Janeiro, Brazil |
title_sort |
hemophilia care in the state of rio de janeiro, brazil |
publisher |
Pan American Health Organization |
publishDate |
2003 |
url |
https://doi.org/10.1590/s1020-49892003000200013 https://doaj.org/article/58c7b9f2ea4d473e880ddde74f596235 |
geographic |
Arctic |
geographic_facet |
Arctic |
genre |
Arctic |
genre_facet |
Arctic |
op_source |
Revista Panamericana de Salud Pública, Vol 13, Iss 2-3, Pp 124-128 (2003) |
op_relation |
http://www.scielosp.org/scielo.php?script=sci_arttext&pid=S1020-49892003000200013&lng=en&tlng=en https://doaj.org/toc/1020-4989 1020-4989 doi:10.1590/s1020-49892003000200013 https://doaj.org/article/58c7b9f2ea4d473e880ddde74f596235 |
op_doi |
https://doi.org/10.1590/s1020-49892003000200013 |
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Revista Panamericana de Salud Pública |
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13 |
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2-3 |
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124 |
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128 |
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