The Meaning of Leprosy and Everyday Experiences: An Exploration in Cirebon, Indonesia
It is imperative to consider the meaning of leprosy and everyday experiences of people affected by leprosy and key persons in the community if one aims to make leprosy services more effective, which appears necessary in Indonesia given the large numbers of new cases detected annually. However, littl...
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ftdoajarticles:oai:doaj.org/article:38237068537c4604b758685f5b317587 2024-09-09T19:25:53+00:00 The Meaning of Leprosy and Everyday Experiences: An Exploration in Cirebon, Indonesia Ruth M. H. Peters Dadun Mimi Lusli Beatriz Miranda-Galarza Wim H. van Brakel Marjolein B. M. Zweekhorst Rita Damayanti Francisia S. S. E. Seda Joske F. G. Bunders Irwanto 2013-01-01T00:00:00Z https://doi.org/10.1155/2013/507034 https://doaj.org/article/38237068537c4604b758685f5b317587 EN eng Wiley http://dx.doi.org/10.1155/2013/507034 https://doaj.org/toc/1687-9686 https://doaj.org/toc/1687-9694 1687-9686 1687-9694 doi:10.1155/2013/507034 https://doaj.org/article/38237068537c4604b758685f5b317587 Journal of Tropical Medicine, Vol 2013 (2013) Arctic medicine. Tropical medicine RC955-962 article 2013 ftdoajarticles https://doi.org/10.1155/2013/507034 2024-08-05T17:48:43Z It is imperative to consider the meaning of leprosy and everyday experiences of people affected by leprosy and key persons in the community if one aims to make leprosy services more effective, which appears necessary in Indonesia given the large numbers of new cases detected annually. However, little is written in the international literature about the experiences of people currently being treated for leprosy, those cured, or other key informants. This paper analyses the narratives of the people by drawing upon in-depth interviews with 53 participants and 20 focus groups discussions. The participants were purposively selected. We provide insights into the experiences of people and the meaning they give to leprosy and highlight aspect of aetiology, spirituality, religion, darkening of the skin, and sorcery. We also examine experiences of seeking care and focused on the impact of the disease in particular on the elderly and children. In conclusion, the continued need for implementation of leprosy services in Indonesia is very evident. The diversities in people’s experiences with leprosy indicate a demand for responsive leprosy services to serve the diverse needs, including services for those formally declared to be “cured.” Article in Journal/Newspaper Arctic Directory of Open Access Journals: DOAJ Articles Arctic Journal of Tropical Medicine 2013 1 10 |
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Open Polar |
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Directory of Open Access Journals: DOAJ Articles |
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English |
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Arctic medicine. Tropical medicine RC955-962 |
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Arctic medicine. Tropical medicine RC955-962 Ruth M. H. Peters Dadun Mimi Lusli Beatriz Miranda-Galarza Wim H. van Brakel Marjolein B. M. Zweekhorst Rita Damayanti Francisia S. S. E. Seda Joske F. G. Bunders Irwanto The Meaning of Leprosy and Everyday Experiences: An Exploration in Cirebon, Indonesia |
topic_facet |
Arctic medicine. Tropical medicine RC955-962 |
description |
It is imperative to consider the meaning of leprosy and everyday experiences of people affected by leprosy and key persons in the community if one aims to make leprosy services more effective, which appears necessary in Indonesia given the large numbers of new cases detected annually. However, little is written in the international literature about the experiences of people currently being treated for leprosy, those cured, or other key informants. This paper analyses the narratives of the people by drawing upon in-depth interviews with 53 participants and 20 focus groups discussions. The participants were purposively selected. We provide insights into the experiences of people and the meaning they give to leprosy and highlight aspect of aetiology, spirituality, religion, darkening of the skin, and sorcery. We also examine experiences of seeking care and focused on the impact of the disease in particular on the elderly and children. In conclusion, the continued need for implementation of leprosy services in Indonesia is very evident. The diversities in people’s experiences with leprosy indicate a demand for responsive leprosy services to serve the diverse needs, including services for those formally declared to be “cured.” |
format |
Article in Journal/Newspaper |
author |
Ruth M. H. Peters Dadun Mimi Lusli Beatriz Miranda-Galarza Wim H. van Brakel Marjolein B. M. Zweekhorst Rita Damayanti Francisia S. S. E. Seda Joske F. G. Bunders Irwanto |
author_facet |
Ruth M. H. Peters Dadun Mimi Lusli Beatriz Miranda-Galarza Wim H. van Brakel Marjolein B. M. Zweekhorst Rita Damayanti Francisia S. S. E. Seda Joske F. G. Bunders Irwanto |
author_sort |
Ruth M. H. Peters |
title |
The Meaning of Leprosy and Everyday Experiences: An Exploration in Cirebon, Indonesia |
title_short |
The Meaning of Leprosy and Everyday Experiences: An Exploration in Cirebon, Indonesia |
title_full |
The Meaning of Leprosy and Everyday Experiences: An Exploration in Cirebon, Indonesia |
title_fullStr |
The Meaning of Leprosy and Everyday Experiences: An Exploration in Cirebon, Indonesia |
title_full_unstemmed |
The Meaning of Leprosy and Everyday Experiences: An Exploration in Cirebon, Indonesia |
title_sort |
meaning of leprosy and everyday experiences: an exploration in cirebon, indonesia |
publisher |
Wiley |
publishDate |
2013 |
url |
https://doi.org/10.1155/2013/507034 https://doaj.org/article/38237068537c4604b758685f5b317587 |
geographic |
Arctic |
geographic_facet |
Arctic |
genre |
Arctic |
genre_facet |
Arctic |
op_source |
Journal of Tropical Medicine, Vol 2013 (2013) |
op_relation |
http://dx.doi.org/10.1155/2013/507034 https://doaj.org/toc/1687-9686 https://doaj.org/toc/1687-9694 1687-9686 1687-9694 doi:10.1155/2013/507034 https://doaj.org/article/38237068537c4604b758685f5b317587 |
op_doi |
https://doi.org/10.1155/2013/507034 |
container_title |
Journal of Tropical Medicine |
container_volume |
2013 |
container_start_page |
1 |
op_container_end_page |
10 |
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1809895587925983232 |