Strengthening individual and family resilience against leprosy-related discrimination: A pilot intervention study.
Background Leprosy and leprosy-related stigma can have a major impact on psychosocial wellbeing of persons affected and their family members. Resilience is a process that incorporates many of the core skills and abilities which may enable people to address stigma and discrimination. The current stud...
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ftdoajarticles:oai:doaj.org/article:1ae12403b85a44ce93a4d41ea6b9a6fb 2023-05-15T15:14:11+02:00 Strengthening individual and family resilience against leprosy-related discrimination: A pilot intervention study. Anna T Van't Noordende Zoica Bakirtzief da Silva Pereira Pritha Biswas Mohammed Ilyas Vijay Krishnan Jayaram Parasa Pim Kuipers 2021-04-01T00:00:00Z https://doi.org/10.1371/journal.pntd.0009329 https://doaj.org/article/1ae12403b85a44ce93a4d41ea6b9a6fb EN eng Public Library of Science (PLoS) https://doi.org/10.1371/journal.pntd.0009329 https://doaj.org/toc/1935-2727 https://doaj.org/toc/1935-2735 1935-2727 1935-2735 doi:10.1371/journal.pntd.0009329 https://doaj.org/article/1ae12403b85a44ce93a4d41ea6b9a6fb PLoS Neglected Tropical Diseases, Vol 15, Iss 4, p e0009329 (2021) Arctic medicine. Tropical medicine RC955-962 Public aspects of medicine RA1-1270 article 2021 ftdoajarticles https://doi.org/10.1371/journal.pntd.0009329 2022-12-31T13:12:52Z Background Leprosy and leprosy-related stigma can have a major impact on psychosocial wellbeing of persons affected and their family members. Resilience is a process that incorporates many of the core skills and abilities which may enable people to address stigma and discrimination. The current study aimed to develop and pilot an intervention to strengthen individual and family resilience against leprosy-related discrimination. Methodology We used a quasi-experimental, before-after study design with a mixed methods approach. The 10-week family-based intervention was designed to strengthen the resilience of individuals and families by enhancing their protective abilities and capacity to overcome adversity. The study was conducted in two sites, urban areas in Telangana state, and in rural areas in Odisha state, India. Persons affected and their family members were included using purposive sampling. Two questionnaires were used pre-and post-intervention: the Connor-Davidson Resilience Scale (CD-RISC, maximum score 100, with high scores reflecting greater resilience) and the WHOQOL-BREF (maximum score of 130, with higher scores reflecting higher quality of life). In addition, semi-structured interviews were conducted post-intervention. Data were collected at baseline, a few weeks after completion of the intervention, and in the Odisha cohort again at six months after completion. Paired t-tests measured differences pre- and post- intervention. Qualitative data were thematically analysed. Findings Eighty participants across 20 families were included in the study (23 persons affected and 57 family members). We found a significant increase in CD-RISC scores for persons affected and family members from Odisha state (baseline 46.5, first follow-up 77.0, second follow-up 70.0), this improvement was maintained at six-month follow-up. There was no increase in CD-RISC scores post-intervention among participants from Telangana state. WHOQOL-BREF scores were significantly higher at follow-up for persons affected in both states, ... Article in Journal/Newspaper Arctic Directory of Open Access Journals: DOAJ Articles Arctic Davidson ENVELOPE(-44.766,-44.766,-60.766,-60.766) PLOS Neglected Tropical Diseases 15 4 e0009329 |
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Directory of Open Access Journals: DOAJ Articles |
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English |
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Arctic medicine. Tropical medicine RC955-962 Public aspects of medicine RA1-1270 |
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Arctic medicine. Tropical medicine RC955-962 Public aspects of medicine RA1-1270 Anna T Van't Noordende Zoica Bakirtzief da Silva Pereira Pritha Biswas Mohammed Ilyas Vijay Krishnan Jayaram Parasa Pim Kuipers Strengthening individual and family resilience against leprosy-related discrimination: A pilot intervention study. |
topic_facet |
Arctic medicine. Tropical medicine RC955-962 Public aspects of medicine RA1-1270 |
description |
Background Leprosy and leprosy-related stigma can have a major impact on psychosocial wellbeing of persons affected and their family members. Resilience is a process that incorporates many of the core skills and abilities which may enable people to address stigma and discrimination. The current study aimed to develop and pilot an intervention to strengthen individual and family resilience against leprosy-related discrimination. Methodology We used a quasi-experimental, before-after study design with a mixed methods approach. The 10-week family-based intervention was designed to strengthen the resilience of individuals and families by enhancing their protective abilities and capacity to overcome adversity. The study was conducted in two sites, urban areas in Telangana state, and in rural areas in Odisha state, India. Persons affected and their family members were included using purposive sampling. Two questionnaires were used pre-and post-intervention: the Connor-Davidson Resilience Scale (CD-RISC, maximum score 100, with high scores reflecting greater resilience) and the WHOQOL-BREF (maximum score of 130, with higher scores reflecting higher quality of life). In addition, semi-structured interviews were conducted post-intervention. Data were collected at baseline, a few weeks after completion of the intervention, and in the Odisha cohort again at six months after completion. Paired t-tests measured differences pre- and post- intervention. Qualitative data were thematically analysed. Findings Eighty participants across 20 families were included in the study (23 persons affected and 57 family members). We found a significant increase in CD-RISC scores for persons affected and family members from Odisha state (baseline 46.5, first follow-up 77.0, second follow-up 70.0), this improvement was maintained at six-month follow-up. There was no increase in CD-RISC scores post-intervention among participants from Telangana state. WHOQOL-BREF scores were significantly higher at follow-up for persons affected in both states, ... |
format |
Article in Journal/Newspaper |
author |
Anna T Van't Noordende Zoica Bakirtzief da Silva Pereira Pritha Biswas Mohammed Ilyas Vijay Krishnan Jayaram Parasa Pim Kuipers |
author_facet |
Anna T Van't Noordende Zoica Bakirtzief da Silva Pereira Pritha Biswas Mohammed Ilyas Vijay Krishnan Jayaram Parasa Pim Kuipers |
author_sort |
Anna T Van't Noordende |
title |
Strengthening individual and family resilience against leprosy-related discrimination: A pilot intervention study. |
title_short |
Strengthening individual and family resilience against leprosy-related discrimination: A pilot intervention study. |
title_full |
Strengthening individual and family resilience against leprosy-related discrimination: A pilot intervention study. |
title_fullStr |
Strengthening individual and family resilience against leprosy-related discrimination: A pilot intervention study. |
title_full_unstemmed |
Strengthening individual and family resilience against leprosy-related discrimination: A pilot intervention study. |
title_sort |
strengthening individual and family resilience against leprosy-related discrimination: a pilot intervention study. |
publisher |
Public Library of Science (PLoS) |
publishDate |
2021 |
url |
https://doi.org/10.1371/journal.pntd.0009329 https://doaj.org/article/1ae12403b85a44ce93a4d41ea6b9a6fb |
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ENVELOPE(-44.766,-44.766,-60.766,-60.766) |
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Arctic Davidson |
geographic_facet |
Arctic Davidson |
genre |
Arctic |
genre_facet |
Arctic |
op_source |
PLoS Neglected Tropical Diseases, Vol 15, Iss 4, p e0009329 (2021) |
op_relation |
https://doi.org/10.1371/journal.pntd.0009329 https://doaj.org/toc/1935-2727 https://doaj.org/toc/1935-2735 1935-2727 1935-2735 doi:10.1371/journal.pntd.0009329 https://doaj.org/article/1ae12403b85a44ce93a4d41ea6b9a6fb |
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https://doi.org/10.1371/journal.pntd.0009329 |
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PLOS Neglected Tropical Diseases |
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e0009329 |
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