Genomes and Genealogies: Decoding Debates about deCode

"Recent developments in biotechnology have opened up an entirely new biological and social world in which a multitude of different kinds of bodily components, such as blood, genes, gametes, enzymes, tissues, and organs, can be isolated and used for medical and scientific purposes. As a result,...

Full description

Bibliographic Details
Main Author: P??lsson, G??sli
Format: Conference Object
Language:English
Published: 2000
Subjects:
Online Access:http://hdl.handle.net/10535/1705
Description
Summary:"Recent developments in biotechnology have opened up an entirely new biological and social world in which a multitude of different kinds of bodily components, such as blood, genes, gametes, enzymes, tissues, and organs, can be isolated and used for medical and scientific purposes. As a result, newly identified bodily components are quickly absorbed into the market place where they are exchanged in the form of commodities. The commodities are both biological and informational, taking the form of genealogies, medical records, and genetic characteristics of individuals and entire populations. At the same time, many of these developments are met with heavy criticism and organized opposition. Developments in Iceland are a case in point. This paper reflects upon debates about plans for developing a central medical database on Icelanders following controversial laws passed by the Icelandic Parliament in December 1998. I attempt to situate these debates in the Icelandic and the international context, focusing on common property theory, public discourse of eugenics and gene action, and the contribution of anthropology to the understanding of the central issues involved. Among the many questions raised by ongoing biotechnological developments in Iceland are the following: What makes the Icelandic human genome a valuable commodity? How and why is it contested? In what sense are genetic information and genealogies common property? How are the tensions between private and communitarian perspectives played out in human genome projects?"