Completeness of regional cancer registry data in Northwest Russia 2008-2017 ...

• Main Authors: Barchuk, Anton, Tursun-zade, Rustam, Nazarova, Ekaterina, Komarov, Yuri, Tyurina, Ekaterina, Tumanova, Yulia, Belyaev, Alexey, Znaor, Ariana
• Format: Article in Journal/Newspaper
• Language: unknown
• Published: figshare 2023
• Subjects: Environmental Sciences not elsewhere classified; Ecology; FOS Biological sciences; Immunology; FOS Clinical medicine; Biological Sciences not elsewhere classified; Science Policy; Petersen; Northwest Russia
• Online Access: https://dx.doi.org/10.6084/m9.figshare.c.6887228.v1; https://springernature.figshare.com/collections/Completeness_of_regional_cancer_registry_data_in_Northwest_Russia_2008-2017/6887228/1

Abstract Background A national framework for population-based cancer registration was established in Russia in the late 1990s. Data comparability and validity analyses found substantial differences across ten population-based cancer registries (PBCRs)in Northwest Russia, and only four out of ten met international standards. This study aimed to assess the completeness of the PBCR data of those registries. Methods Qualitative and quantitative methods recommended for completeness and timeliness assessment were applied to the data from ten Russian regional PBCRs in Northwest Russia, covering a population of 13 million. We used historic data methods (using several European PBCRs reference rates), mortality-to-incidence ratios (M:I) comparison, and death certificate methods to calculate the proportion of unregistered cases (Lincoln-Petersen estimator and Ajiki formula). Results Incidence rate trends of different cancer types were stable over time (except one region - Leningrad oblast). A slight drop in incidence ...