Service providers’ perceptions of support needs for Indigenous cancer patients in Saskatchewan: a needs assessment

Abstract Background In Saskatchewan, Canada, Indigenous cancer care services at the municipal, provincial, and federal levels are intended to improve quality care but can result in a complex, fragmented, and multi-jurisdictional health care system. A multi-phase needs assessment project was initiate...

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Main Authors: Sedgewick, Jennifer R., Ali, Anum, Badea, Andreea, Carr, Tracey, Groot, Gary
Format: Article in Journal/Newspaper
Language:unknown
Published: figshare 2021
Subjects:
Online Access:https://dx.doi.org/10.6084/m9.figshare.c.5576368
https://springernature.figshare.com/collections/Service_providers_perceptions_of_support_needs_for_Indigenous_cancer_patients_in_Saskatchewan_a_needs_assessment/5576368
id ftdatacite:10.6084/m9.figshare.c.5576368
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spelling ftdatacite:10.6084/m9.figshare.c.5576368 2023-05-15T16:17:12+02:00 Service providers’ perceptions of support needs for Indigenous cancer patients in Saskatchewan: a needs assessment Sedgewick, Jennifer R. Ali, Anum Badea, Andreea Carr, Tracey Groot, Gary 2021 https://dx.doi.org/10.6084/m9.figshare.c.5576368 https://springernature.figshare.com/collections/Service_providers_perceptions_of_support_needs_for_Indigenous_cancer_patients_in_Saskatchewan_a_needs_assessment/5576368 unknown figshare https://dx.doi.org/10.1186/s12913-021-06821-6 Creative Commons Attribution 4.0 International https://creativecommons.org/licenses/by/4.0/legalcode cc-by-4.0 CC-BY Medicine Sociology FOS Sociology 69999 Biological Sciences not elsewhere classified FOS Biological sciences Science Policy Collection article 2021 ftdatacite https://doi.org/10.6084/m9.figshare.c.5576368 https://doi.org/10.1186/s12913-021-06821-6 2021-11-05T12:55:41Z Abstract Background In Saskatchewan, Canada, Indigenous cancer care services at the municipal, provincial, and federal levels are intended to improve quality care but can result in a complex, fragmented, and multi-jurisdictional health care system. A multi-phase needs assessment project was initiated to document Indigenous cancer care needs. Guided by Indigenous patient partners, clinicians, academics, and policy makers, the present study reflects a needs assessment of Indigenous cancer supports from the perspectives of cancer care service providers. Methods Qualitative data were collected through three focus groups with 20 service providers for cancer patients and their families at three Saskatchewan cities. Participants included chemotherapy and radiation nurses, social workers, a patient navigator, dieticians, and practicum students. A semi-structured interview guide was used to conduct the sessions to allow for freedom of responses. Data were recorded, transcribed verbatim, and analyzed using thematic analysis. Results Service providers’ perspectives were categorized into five themes: 1) addressing travel-related issues, 2) logistical challenges, 3) improvements to Indigenous-specific health care supports, 4) cultural sensitivity in health care, and 5) consistency in care. Supports provided differed for the two Indigenous groups, First Nations and Métis. Service providers made recommendations regarding how needs could be met. They saw language translation providers and Elder supports as important. Recommendations for improving travel were for medical taxis to include breaks so that passengers may alleviate any uncomfortable side effects of their cancer treatment. Further, Indigenous-specific accommodations were recommended for those requiring medical travel. These recommendations aligned with supports that are available in four other Canadian provinces. Conclusions These results identified gaps in supports and outlined recommendations to address barriers to cancer care from the perspectives of service providers. These recommendations may inform evidence-based health system interventions for Indigenous cancer patients and ultimately aim to improve cancer care services, quality of life, and health outcomes of Indigenous patients throughout their cancer journey. Article in Journal/Newspaper First Nations DataCite Metadata Store (German National Library of Science and Technology) Canada
institution Open Polar
collection DataCite Metadata Store (German National Library of Science and Technology)
op_collection_id ftdatacite
language unknown
topic Medicine
Sociology
FOS Sociology
69999 Biological Sciences not elsewhere classified
FOS Biological sciences
Science Policy
spellingShingle Medicine
Sociology
FOS Sociology
69999 Biological Sciences not elsewhere classified
FOS Biological sciences
Science Policy
Sedgewick, Jennifer R.
Ali, Anum
Badea, Andreea
Carr, Tracey
Groot, Gary
Service providers’ perceptions of support needs for Indigenous cancer patients in Saskatchewan: a needs assessment
topic_facet Medicine
Sociology
FOS Sociology
69999 Biological Sciences not elsewhere classified
FOS Biological sciences
Science Policy
description Abstract Background In Saskatchewan, Canada, Indigenous cancer care services at the municipal, provincial, and federal levels are intended to improve quality care but can result in a complex, fragmented, and multi-jurisdictional health care system. A multi-phase needs assessment project was initiated to document Indigenous cancer care needs. Guided by Indigenous patient partners, clinicians, academics, and policy makers, the present study reflects a needs assessment of Indigenous cancer supports from the perspectives of cancer care service providers. Methods Qualitative data were collected through three focus groups with 20 service providers for cancer patients and their families at three Saskatchewan cities. Participants included chemotherapy and radiation nurses, social workers, a patient navigator, dieticians, and practicum students. A semi-structured interview guide was used to conduct the sessions to allow for freedom of responses. Data were recorded, transcribed verbatim, and analyzed using thematic analysis. Results Service providers’ perspectives were categorized into five themes: 1) addressing travel-related issues, 2) logistical challenges, 3) improvements to Indigenous-specific health care supports, 4) cultural sensitivity in health care, and 5) consistency in care. Supports provided differed for the two Indigenous groups, First Nations and Métis. Service providers made recommendations regarding how needs could be met. They saw language translation providers and Elder supports as important. Recommendations for improving travel were for medical taxis to include breaks so that passengers may alleviate any uncomfortable side effects of their cancer treatment. Further, Indigenous-specific accommodations were recommended for those requiring medical travel. These recommendations aligned with supports that are available in four other Canadian provinces. Conclusions These results identified gaps in supports and outlined recommendations to address barriers to cancer care from the perspectives of service providers. These recommendations may inform evidence-based health system interventions for Indigenous cancer patients and ultimately aim to improve cancer care services, quality of life, and health outcomes of Indigenous patients throughout their cancer journey.
format Article in Journal/Newspaper
author Sedgewick, Jennifer R.
Ali, Anum
Badea, Andreea
Carr, Tracey
Groot, Gary
author_facet Sedgewick, Jennifer R.
Ali, Anum
Badea, Andreea
Carr, Tracey
Groot, Gary
author_sort Sedgewick, Jennifer R.
title Service providers’ perceptions of support needs for Indigenous cancer patients in Saskatchewan: a needs assessment
title_short Service providers’ perceptions of support needs for Indigenous cancer patients in Saskatchewan: a needs assessment
title_full Service providers’ perceptions of support needs for Indigenous cancer patients in Saskatchewan: a needs assessment
title_fullStr Service providers’ perceptions of support needs for Indigenous cancer patients in Saskatchewan: a needs assessment
title_full_unstemmed Service providers’ perceptions of support needs for Indigenous cancer patients in Saskatchewan: a needs assessment
title_sort service providers’ perceptions of support needs for indigenous cancer patients in saskatchewan: a needs assessment
publisher figshare
publishDate 2021
url https://dx.doi.org/10.6084/m9.figshare.c.5576368
https://springernature.figshare.com/collections/Service_providers_perceptions_of_support_needs_for_Indigenous_cancer_patients_in_Saskatchewan_a_needs_assessment/5576368
geographic Canada
geographic_facet Canada
genre First Nations
genre_facet First Nations
op_relation https://dx.doi.org/10.1186/s12913-021-06821-6
op_rights Creative Commons Attribution 4.0 International
https://creativecommons.org/licenses/by/4.0/legalcode
cc-by-4.0
op_rightsnorm CC-BY
op_doi https://doi.org/10.6084/m9.figshare.c.5576368
https://doi.org/10.1186/s12913-021-06821-6
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