“If you understand you cope better with it”: the role of education in building palliative care capacity in four First Nations communities in Canada
Abstract Background In Canada, there is a growing need to develop community-based, culturally appropriate palliative care for Indigenous people living in First Nations communities. The public health approach to palliative care, which emphasizes community-based initiatives, is especially relevant in...
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ftdatacite:10.6084/m9.figshare.c.4545545 2023-05-15T16:15:14+02:00 “If you understand you cope better with it”: the role of education in building palliative care capacity in four First Nations communities in Canada Prince, Holly Shevaun Nadin Crow, Maxine Luanne Maki Monture, Lori Jeroline Smith Kelley, Mary 2019 https://dx.doi.org/10.6084/m9.figshare.c.4545545 https://springernature.figshare.com/collections/_If_you_understand_you_cope_better_with_it_the_role_of_education_in_building_palliative_care_capacity_in_four_First_Nations_communities_in_Canada/4545545 unknown Figshare https://dx.doi.org/10.1186/s12889-019-6983-y CC BY 4.0 https://creativecommons.org/licenses/by/4.0 CC-BY Medicine Ecology FOS Biological sciences Sociology FOS Sociology 69999 Biological Sciences not elsewhere classified Cancer Science Policy Collection article 2019 ftdatacite https://doi.org/10.6084/m9.figshare.c.4545545 https://doi.org/10.1186/s12889-019-6983-y 2021-11-05T12:55:41Z Abstract Background In Canada, there is a growing need to develop community-based, culturally appropriate palliative care for Indigenous people living in First Nations communities. The public health approach to palliative care, which emphasizes community-based initiatives, is especially relevant in First Nations communities because care is grounded in their distinct social and cultural context. Central to the public health approach are educational strategies that strengthen communities’ capacity to care for their vulnerable members as they die. This paper presents community-based research conducted with First Nations communities in Canada that aimed to assess and address local palliative care educational needs to improve community capacity in palliative care. Methods Participatory action research (PAR) was conducted with four First Nations communities in Canada over a six-year period (2010–2016). The research occurred in three phases. Phase 1: focus groups, interviews and surveys were employed to assess community specific needs and resources. Phase 2: recommendations were developed to guide the PAR process. Phase 3: educational resources were created to address the identified educational needs. These resources were implemented incrementally over 4 years. Ongoing process evaluation was employed, and revisions were made as required. Results Educational needs were identified for patients, families, community members and internal and external health care providers. A wide and comprehensive range of educational resources were created to address those needs. Those culturally appropriate educational resources are available in a very accessible and useable workbook format and are available for use by other Indigenous people and communities. Conclusions This research provides an example of the public health approach and offers implementation strategies around palliative care education. This paper contributes to the international literature on the public health approach to palliative care by presenting a case study from Canada that includes: conducting a culturally appropriate assessment of educational needs, creating recommendations, facilitating development and implementation of educational resources in the community to improve community capacity in palliative care. Article in Journal/Newspaper First Nations DataCite Metadata Store (German National Library of Science and Technology) Canada |
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DataCite Metadata Store (German National Library of Science and Technology) |
op_collection_id |
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unknown |
topic |
Medicine Ecology FOS Biological sciences Sociology FOS Sociology 69999 Biological Sciences not elsewhere classified Cancer Science Policy |
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Medicine Ecology FOS Biological sciences Sociology FOS Sociology 69999 Biological Sciences not elsewhere classified Cancer Science Policy Prince, Holly Shevaun Nadin Crow, Maxine Luanne Maki Monture, Lori Jeroline Smith Kelley, Mary “If you understand you cope better with it”: the role of education in building palliative care capacity in four First Nations communities in Canada |
topic_facet |
Medicine Ecology FOS Biological sciences Sociology FOS Sociology 69999 Biological Sciences not elsewhere classified Cancer Science Policy |
description |
Abstract Background In Canada, there is a growing need to develop community-based, culturally appropriate palliative care for Indigenous people living in First Nations communities. The public health approach to palliative care, which emphasizes community-based initiatives, is especially relevant in First Nations communities because care is grounded in their distinct social and cultural context. Central to the public health approach are educational strategies that strengthen communities’ capacity to care for their vulnerable members as they die. This paper presents community-based research conducted with First Nations communities in Canada that aimed to assess and address local palliative care educational needs to improve community capacity in palliative care. Methods Participatory action research (PAR) was conducted with four First Nations communities in Canada over a six-year period (2010–2016). The research occurred in three phases. Phase 1: focus groups, interviews and surveys were employed to assess community specific needs and resources. Phase 2: recommendations were developed to guide the PAR process. Phase 3: educational resources were created to address the identified educational needs. These resources were implemented incrementally over 4 years. Ongoing process evaluation was employed, and revisions were made as required. Results Educational needs were identified for patients, families, community members and internal and external health care providers. A wide and comprehensive range of educational resources were created to address those needs. Those culturally appropriate educational resources are available in a very accessible and useable workbook format and are available for use by other Indigenous people and communities. Conclusions This research provides an example of the public health approach and offers implementation strategies around palliative care education. This paper contributes to the international literature on the public health approach to palliative care by presenting a case study from Canada that includes: conducting a culturally appropriate assessment of educational needs, creating recommendations, facilitating development and implementation of educational resources in the community to improve community capacity in palliative care. |
format |
Article in Journal/Newspaper |
author |
Prince, Holly Shevaun Nadin Crow, Maxine Luanne Maki Monture, Lori Jeroline Smith Kelley, Mary |
author_facet |
Prince, Holly Shevaun Nadin Crow, Maxine Luanne Maki Monture, Lori Jeroline Smith Kelley, Mary |
author_sort |
Prince, Holly |
title |
“If you understand you cope better with it”: the role of education in building palliative care capacity in four First Nations communities in Canada |
title_short |
“If you understand you cope better with it”: the role of education in building palliative care capacity in four First Nations communities in Canada |
title_full |
“If you understand you cope better with it”: the role of education in building palliative care capacity in four First Nations communities in Canada |
title_fullStr |
“If you understand you cope better with it”: the role of education in building palliative care capacity in four First Nations communities in Canada |
title_full_unstemmed |
“If you understand you cope better with it”: the role of education in building palliative care capacity in four First Nations communities in Canada |
title_sort |
“if you understand you cope better with it”: the role of education in building palliative care capacity in four first nations communities in canada |
publisher |
Figshare |
publishDate |
2019 |
url |
https://dx.doi.org/10.6084/m9.figshare.c.4545545 https://springernature.figshare.com/collections/_If_you_understand_you_cope_better_with_it_the_role_of_education_in_building_palliative_care_capacity_in_four_First_Nations_communities_in_Canada/4545545 |
geographic |
Canada |
geographic_facet |
Canada |
genre |
First Nations |
genre_facet |
First Nations |
op_relation |
https://dx.doi.org/10.1186/s12889-019-6983-y |
op_rights |
CC BY 4.0 https://creativecommons.org/licenses/by/4.0 |
op_rightsnorm |
CC-BY |
op_doi |
https://doi.org/10.6084/m9.figshare.c.4545545 https://doi.org/10.1186/s12889-019-6983-y |
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1766000946722111488 |