Connecting cohorts of Finnish biobanks creates a research resource for the study of healthy ageing ...
Aims:Connecting cohorts with biobanks is a Finnish biobank collaboration, creating an infrastructure for the study of healthy ageing. We aimed to develop a model for data integration and harmonisation between different biobanks with procedures for joint access.Methods:The heart of the collaboration...
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ftdatacite:10.25384/sage.c.7107031 2024-04-28T08:10:12+00:00 Connecting cohorts of Finnish biobanks creates a research resource for the study of healthy ageing ... Eklund, Niina Pätsi, Salla-Maaria Lehtiniemi, Heli Rohkimainen, Samppa Kivelä, Juha Öhman, Hanna Sauramo, Minttu Sutinen, Kyösti Keskinarkaus, Anja Terho, Perttu Seppänen, Tapio Nyberg, Pia Männikkö, Minna Silander, Kaisa 2024 https://dx.doi.org/10.25384/sage.c.7107031 https://sage.figshare.com/collections/Connecting_cohorts_of_Finnish_biobanks_creates_a_research_resource_for_the_study_of_healthy_ageing/7107031 unknown SAGE Journals Creative Commons Attribution 4.0 International https://creativecommons.org/licenses/by/4.0/legalcode cc-by-4.0 Public Health and Health Services not elsewhere classified Collection article 2024 ftdatacite https://doi.org/10.25384/sage.c.7107031 2024-04-02T10:19:35Z Aims:Connecting cohorts with biobanks is a Finnish biobank collaboration, creating an infrastructure for the study of healthy ageing. We aimed to develop a model for data integration and harmonisation between different biobanks with procedures for joint access.Methods:The heart of the collaboration is the integrated datasets formed by using data from three biobanks: (a) Arctic Biobank, hosting regional birth cohorts and cohorts of elderly; (b) hospital-affiliated Borealis Biobank of Northern Finland; and (c) THL Biobank, hosting population-based cohorts. The datasets were created by developing a data dictionary, harmonising cohort data and with a joint pseudonymisation process.Results:The connecting cohorts with biobanks resource at its widest consists altogether of almost 1.4 million individuals from collaborating biobanks. Utilising data from 107,000 cohort participants, we created harmonised datasets that contain attributes describing metabolic risk and frailty for studies of healthy ageing. These data ... Article in Journal/Newspaper Arctic Northern Finland DataCite Metadata Store (German National Library of Science and Technology) |
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DataCite Metadata Store (German National Library of Science and Technology) |
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Public Health and Health Services not elsewhere classified |
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Public Health and Health Services not elsewhere classified Eklund, Niina Pätsi, Salla-Maaria Lehtiniemi, Heli Rohkimainen, Samppa Kivelä, Juha Öhman, Hanna Sauramo, Minttu Sutinen, Kyösti Keskinarkaus, Anja Terho, Perttu Seppänen, Tapio Nyberg, Pia Männikkö, Minna Silander, Kaisa Connecting cohorts of Finnish biobanks creates a research resource for the study of healthy ageing ... |
topic_facet |
Public Health and Health Services not elsewhere classified |
description |
Aims:Connecting cohorts with biobanks is a Finnish biobank collaboration, creating an infrastructure for the study of healthy ageing. We aimed to develop a model for data integration and harmonisation between different biobanks with procedures for joint access.Methods:The heart of the collaboration is the integrated datasets formed by using data from three biobanks: (a) Arctic Biobank, hosting regional birth cohorts and cohorts of elderly; (b) hospital-affiliated Borealis Biobank of Northern Finland; and (c) THL Biobank, hosting population-based cohorts. The datasets were created by developing a data dictionary, harmonising cohort data and with a joint pseudonymisation process.Results:The connecting cohorts with biobanks resource at its widest consists altogether of almost 1.4 million individuals from collaborating biobanks. Utilising data from 107,000 cohort participants, we created harmonised datasets that contain attributes describing metabolic risk and frailty for studies of healthy ageing. These data ... |
format |
Article in Journal/Newspaper |
author |
Eklund, Niina Pätsi, Salla-Maaria Lehtiniemi, Heli Rohkimainen, Samppa Kivelä, Juha Öhman, Hanna Sauramo, Minttu Sutinen, Kyösti Keskinarkaus, Anja Terho, Perttu Seppänen, Tapio Nyberg, Pia Männikkö, Minna Silander, Kaisa |
author_facet |
Eklund, Niina Pätsi, Salla-Maaria Lehtiniemi, Heli Rohkimainen, Samppa Kivelä, Juha Öhman, Hanna Sauramo, Minttu Sutinen, Kyösti Keskinarkaus, Anja Terho, Perttu Seppänen, Tapio Nyberg, Pia Männikkö, Minna Silander, Kaisa |
author_sort |
Eklund, Niina |
title |
Connecting cohorts of Finnish biobanks creates a research resource for the study of healthy ageing ... |
title_short |
Connecting cohorts of Finnish biobanks creates a research resource for the study of healthy ageing ... |
title_full |
Connecting cohorts of Finnish biobanks creates a research resource for the study of healthy ageing ... |
title_fullStr |
Connecting cohorts of Finnish biobanks creates a research resource for the study of healthy ageing ... |
title_full_unstemmed |
Connecting cohorts of Finnish biobanks creates a research resource for the study of healthy ageing ... |
title_sort |
connecting cohorts of finnish biobanks creates a research resource for the study of healthy ageing ... |
publisher |
SAGE Journals |
publishDate |
2024 |
url |
https://dx.doi.org/10.25384/sage.c.7107031 https://sage.figshare.com/collections/Connecting_cohorts_of_Finnish_biobanks_creates_a_research_resource_for_the_study_of_healthy_ageing/7107031 |
genre |
Arctic Northern Finland |
genre_facet |
Arctic Northern Finland |
op_rights |
Creative Commons Attribution 4.0 International https://creativecommons.org/licenses/by/4.0/legalcode cc-by-4.0 |
op_doi |
https://doi.org/10.25384/sage.c.7107031 |
_version_ |
1797578206555930624 |