Symptoms and health-related quality of life in patients with advanced cancer:A population-based study in Greenland
PURPOSE: The aims were to describe symptoms and health-related quality of life (HRQoL) in Greenlandic patients with advanced cancer and to assess the applicability and internal consistency of the Greenlandic version of the EORTC-QLQ-C30 core version 3.0. METHODS: A Greenlandic version of the EORTC Q...
Published in: | European Journal of Oncology Nursing |
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2017
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Online Access: | https://curis.ku.dk/portal/da/publications/symptoms-and-healthrelated-quality-of-life-in-patients-with-advanced-cancer(e611d9fa-7f7d-4d29-9b0a-1ef5582449c9).html https://doi.org/10.1016/j.ejon.2017.03.004 |
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ftcopenhagenunip:oai:pure.atira.dk:publications/e611d9fa-7f7d-4d29-9b0a-1ef5582449c9 2024-05-12T08:04:28+00:00 Symptoms and health-related quality of life in patients with advanced cancer:A population-based study in Greenland Augustussen, Mikaela Sjøgren, Per Timm, Helle Hounsgaard, Lise Pedersen, Michael Lynge 2017-06 https://curis.ku.dk/portal/da/publications/symptoms-and-healthrelated-quality-of-life-in-patients-with-advanced-cancer(e611d9fa-7f7d-4d29-9b0a-1ef5582449c9).html https://doi.org/10.1016/j.ejon.2017.03.004 eng eng info:eu-repo/semantics/closedAccess Augustussen , M , Sjøgren , P , Timm , H , Hounsgaard , L & Pedersen , M L 2017 , ' Symptoms and health-related quality of life in patients with advanced cancer : A population-based study in Greenland ' , European Journal of Oncology Nursing , vol. 28 , pp. 92-97 . https://doi.org/10.1016/j.ejon.2017.03.004 Adult Aged 80 and over Cross-Sectional Studies Female Greenland Humans Male Middle Aged Neoplasms/psychology Psychometrics Quality of Life/psychology Reproducibility of Results Surveys and Questionnaires Terminally Ill/psychology Translations article 2017 ftcopenhagenunip https://doi.org/10.1016/j.ejon.2017.03.004 2024-04-18T00:28:14Z PURPOSE: The aims were to describe symptoms and health-related quality of life (HRQoL) in Greenlandic patients with advanced cancer and to assess the applicability and internal consistency of the Greenlandic version of the EORTC-QLQ-C30 core version 3.0. METHODS: A Greenlandic version of the EORTC QLQ-C30 v.3.0 was developed. The translation process included independent forward translation, reconciliation and independent back translation by native Greenlandic-speaking translators who were fluent in English. After pilot testing, a population-based cross-sectional study of patients with advanced cancer receiving palliative treatment was conducted. Internal consistency was examined by calculating Cronbach's alpha coefficients for five function scales and three symptom scales. RESULTS: Of the 58 patients who participated in the study, 47% had reduced social functioning, 36% had reduced physical and role functioning and 19% had reduced emotional and cognitive functioning. Furthermore, 48% reported fatigue, and 33% reported financial problems. The Greenlandic version of the EORTC had good applicability in the assessment of symptoms and quality of life. Acceptable Cronbach's alpha coefficients (above 0.70) were observed for the physical, role and social functioning scales, the fatigue scale and the global health status scale. CONCLUSIONS: Patients with undergoing palliative treatment in Greenland for advanced cancer reported high levels of social and financial problems and reduced physical functioning. This indicates a potential for improving palliative care service and increasing the focus on symptom management. The Greenlandic version of the EORTC-QLQ-C30 represents an applicable and reliable tool to describe symptoms and health-related quality of life among Greenlandic patients with advanced cancer. Article in Journal/Newspaper Greenland greenlandic University of Copenhagen: Research Greenland European Journal of Oncology Nursing 28 92 97 |
institution |
Open Polar |
collection |
University of Copenhagen: Research |
op_collection_id |
ftcopenhagenunip |
language |
English |
topic |
Adult Aged 80 and over Cross-Sectional Studies Female Greenland Humans Male Middle Aged Neoplasms/psychology Psychometrics Quality of Life/psychology Reproducibility of Results Surveys and Questionnaires Terminally Ill/psychology Translations |
spellingShingle |
Adult Aged 80 and over Cross-Sectional Studies Female Greenland Humans Male Middle Aged Neoplasms/psychology Psychometrics Quality of Life/psychology Reproducibility of Results Surveys and Questionnaires Terminally Ill/psychology Translations Augustussen, Mikaela Sjøgren, Per Timm, Helle Hounsgaard, Lise Pedersen, Michael Lynge Symptoms and health-related quality of life in patients with advanced cancer:A population-based study in Greenland |
topic_facet |
Adult Aged 80 and over Cross-Sectional Studies Female Greenland Humans Male Middle Aged Neoplasms/psychology Psychometrics Quality of Life/psychology Reproducibility of Results Surveys and Questionnaires Terminally Ill/psychology Translations |
description |
PURPOSE: The aims were to describe symptoms and health-related quality of life (HRQoL) in Greenlandic patients with advanced cancer and to assess the applicability and internal consistency of the Greenlandic version of the EORTC-QLQ-C30 core version 3.0. METHODS: A Greenlandic version of the EORTC QLQ-C30 v.3.0 was developed. The translation process included independent forward translation, reconciliation and independent back translation by native Greenlandic-speaking translators who were fluent in English. After pilot testing, a population-based cross-sectional study of patients with advanced cancer receiving palliative treatment was conducted. Internal consistency was examined by calculating Cronbach's alpha coefficients for five function scales and three symptom scales. RESULTS: Of the 58 patients who participated in the study, 47% had reduced social functioning, 36% had reduced physical and role functioning and 19% had reduced emotional and cognitive functioning. Furthermore, 48% reported fatigue, and 33% reported financial problems. The Greenlandic version of the EORTC had good applicability in the assessment of symptoms and quality of life. Acceptable Cronbach's alpha coefficients (above 0.70) were observed for the physical, role and social functioning scales, the fatigue scale and the global health status scale. CONCLUSIONS: Patients with undergoing palliative treatment in Greenland for advanced cancer reported high levels of social and financial problems and reduced physical functioning. This indicates a potential for improving palliative care service and increasing the focus on symptom management. The Greenlandic version of the EORTC-QLQ-C30 represents an applicable and reliable tool to describe symptoms and health-related quality of life among Greenlandic patients with advanced cancer. |
format |
Article in Journal/Newspaper |
author |
Augustussen, Mikaela Sjøgren, Per Timm, Helle Hounsgaard, Lise Pedersen, Michael Lynge |
author_facet |
Augustussen, Mikaela Sjøgren, Per Timm, Helle Hounsgaard, Lise Pedersen, Michael Lynge |
author_sort |
Augustussen, Mikaela |
title |
Symptoms and health-related quality of life in patients with advanced cancer:A population-based study in Greenland |
title_short |
Symptoms and health-related quality of life in patients with advanced cancer:A population-based study in Greenland |
title_full |
Symptoms and health-related quality of life in patients with advanced cancer:A population-based study in Greenland |
title_fullStr |
Symptoms and health-related quality of life in patients with advanced cancer:A population-based study in Greenland |
title_full_unstemmed |
Symptoms and health-related quality of life in patients with advanced cancer:A population-based study in Greenland |
title_sort |
symptoms and health-related quality of life in patients with advanced cancer:a population-based study in greenland |
publishDate |
2017 |
url |
https://curis.ku.dk/portal/da/publications/symptoms-and-healthrelated-quality-of-life-in-patients-with-advanced-cancer(e611d9fa-7f7d-4d29-9b0a-1ef5582449c9).html https://doi.org/10.1016/j.ejon.2017.03.004 |
geographic |
Greenland |
geographic_facet |
Greenland |
genre |
Greenland greenlandic |
genre_facet |
Greenland greenlandic |
op_source |
Augustussen , M , Sjøgren , P , Timm , H , Hounsgaard , L & Pedersen , M L 2017 , ' Symptoms and health-related quality of life in patients with advanced cancer : A population-based study in Greenland ' , European Journal of Oncology Nursing , vol. 28 , pp. 92-97 . https://doi.org/10.1016/j.ejon.2017.03.004 |
op_rights |
info:eu-repo/semantics/closedAccess |
op_doi |
https://doi.org/10.1016/j.ejon.2017.03.004 |
container_title |
European Journal of Oncology Nursing |
container_volume |
28 |
container_start_page |
92 |
op_container_end_page |
97 |
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1798846672042721280 |