Risky Obliviousness Within Fragmented Services: Experiences of Families With Disabled Children During the Covid‐19 Pandemic
Living on an island in a pandemic has its obvious advantages. However, in a globalised economy, border restrictions cannot keep the COVID‐19 virus completely at bay. Despite coordinated efforts at infection control and extensive vaccination, Iceland, a sparsely populated island in the north, was pla...
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ftcogitatiopress:oai:ojs.cogitatiopress.com:article/5642 2023-07-16T03:59:08+02:00 Risky Obliviousness Within Fragmented Services: Experiences of Families With Disabled Children During the Covid‐19 Pandemic Snæfríðar- Gunnarsdóttir, Hrafnhildur Ólafsdóttir, Tinna Björnsdóttir, Kristín Icelandic Research Fund (217502052) 2023-01-17 application/pdf https://www.cogitatiopress.com/socialinclusion/article/view/5642 https://doi.org/10.17645/si.v11i1.5642 eng eng Cogitatio Press https://www.cogitatiopress.com/socialinclusion/article/view/5642/5642 https://www.cogitatiopress.com/socialinclusion/article/view/5642 doi:10.17645/si.v11i1.5642 Copyright (c) 2023 Hrafnhildur Snæfríðar- Gunnarsdóttir, Tinna Ólafsdóttir, Kristín Björnsdóttir https://creativecommons.org/licenses/by/4.0 Social Inclusion; Vol 11, No 1 (2023): Disability and Social Inclusion: Lessons From the Pandemic; 5-15 2183-2803 Covid‐19 disabled children family support Iceland social inequality info:eu-repo/semantics/article info:eu-repo/semantics/publishedVersion 2023 ftcogitatiopress https://doi.org/10.17645/si.v11i1.5642 2023-06-28T00:04:37Z Living on an island in a pandemic has its obvious advantages. However, in a globalised economy, border restrictions cannot keep the COVID‐19 virus completely at bay. Despite coordinated efforts at infection control and extensive vaccination, Iceland, a sparsely populated island in the north, was placed among the countries in the highest risk category by the ECDC. In this article, wereport a qualitative study carried out at the peak of the fourth COVID‐19 wave in 2021, when the pandemic had severely hit the Icelandic social and healthcare system, with a record‐breaking number of infections. Semi‐structured interviews were conducted with parents with seven disabled children. Guided by feminist standpoint theory and critical disability studies, we focused on how service structures affected and shaped parents’ and children’s experiences during the first waves of the pandemic. The findings suggest that the pandemic intensified the already precarious position of the families. During the pandemic, the gaps in the already fragmented services widened, and the families were left to navigate this new reality on their own. Preventive measures enforced by municipalities and healthcare services centred on non‐disabled people’s experiences and needs. Unprepared service systems distanced themselves from the families while maintaining governance and supervision over defining their need for support. Article in Journal/Newspaper Iceland Cogitatio Press (E-Journals) Social Inclusion 11 1 |
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Cogitatio Press (E-Journals) |
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language |
English |
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Covid‐19 disabled children family support Iceland social inequality |
spellingShingle |
Covid‐19 disabled children family support Iceland social inequality Snæfríðar- Gunnarsdóttir, Hrafnhildur Ólafsdóttir, Tinna Björnsdóttir, Kristín Risky Obliviousness Within Fragmented Services: Experiences of Families With Disabled Children During the Covid‐19 Pandemic |
topic_facet |
Covid‐19 disabled children family support Iceland social inequality |
description |
Living on an island in a pandemic has its obvious advantages. However, in a globalised economy, border restrictions cannot keep the COVID‐19 virus completely at bay. Despite coordinated efforts at infection control and extensive vaccination, Iceland, a sparsely populated island in the north, was placed among the countries in the highest risk category by the ECDC. In this article, wereport a qualitative study carried out at the peak of the fourth COVID‐19 wave in 2021, when the pandemic had severely hit the Icelandic social and healthcare system, with a record‐breaking number of infections. Semi‐structured interviews were conducted with parents with seven disabled children. Guided by feminist standpoint theory and critical disability studies, we focused on how service structures affected and shaped parents’ and children’s experiences during the first waves of the pandemic. The findings suggest that the pandemic intensified the already precarious position of the families. During the pandemic, the gaps in the already fragmented services widened, and the families were left to navigate this new reality on their own. Preventive measures enforced by municipalities and healthcare services centred on non‐disabled people’s experiences and needs. Unprepared service systems distanced themselves from the families while maintaining governance and supervision over defining their need for support. |
author2 |
Icelandic Research Fund (217502052) |
format |
Article in Journal/Newspaper |
author |
Snæfríðar- Gunnarsdóttir, Hrafnhildur Ólafsdóttir, Tinna Björnsdóttir, Kristín |
author_facet |
Snæfríðar- Gunnarsdóttir, Hrafnhildur Ólafsdóttir, Tinna Björnsdóttir, Kristín |
author_sort |
Snæfríðar- Gunnarsdóttir, Hrafnhildur |
title |
Risky Obliviousness Within Fragmented Services: Experiences of Families With Disabled Children During the Covid‐19 Pandemic |
title_short |
Risky Obliviousness Within Fragmented Services: Experiences of Families With Disabled Children During the Covid‐19 Pandemic |
title_full |
Risky Obliviousness Within Fragmented Services: Experiences of Families With Disabled Children During the Covid‐19 Pandemic |
title_fullStr |
Risky Obliviousness Within Fragmented Services: Experiences of Families With Disabled Children During the Covid‐19 Pandemic |
title_full_unstemmed |
Risky Obliviousness Within Fragmented Services: Experiences of Families With Disabled Children During the Covid‐19 Pandemic |
title_sort |
risky obliviousness within fragmented services: experiences of families with disabled children during the covid‐19 pandemic |
publisher |
Cogitatio Press |
publishDate |
2023 |
url |
https://www.cogitatiopress.com/socialinclusion/article/view/5642 https://doi.org/10.17645/si.v11i1.5642 |
genre |
Iceland |
genre_facet |
Iceland |
op_source |
Social Inclusion; Vol 11, No 1 (2023): Disability and Social Inclusion: Lessons From the Pandemic; 5-15 2183-2803 |
op_relation |
https://www.cogitatiopress.com/socialinclusion/article/view/5642/5642 https://www.cogitatiopress.com/socialinclusion/article/view/5642 doi:10.17645/si.v11i1.5642 |
op_rights |
Copyright (c) 2023 Hrafnhildur Snæfríðar- Gunnarsdóttir, Tinna Ólafsdóttir, Kristín Björnsdóttir https://creativecommons.org/licenses/by/4.0 |
op_doi |
https://doi.org/10.17645/si.v11i1.5642 |
container_title |
Social Inclusion |
container_volume |
11 |
container_issue |
1 |
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1771546639799943168 |