Children's Rights in Clinical Research
Purpose: To address the use of children and children's genetic information in research, analyze Icelandic laws as an example, review existing literature on children in clinical research, and describe nurses' actions as children's advocates. Method: An integrated literature review was...
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Online Access: | http://dx.doi.org/10.1111/j.1547-5069.2000.00179.x https://api.wiley.com/onlinelibrary/tdm/v1/articles/10.1111%2Fj.1547-5069.2000.00179.x https://sigmapubs.onlinelibrary.wiley.com/doi/pdf/10.1111/j.1547-5069.2000.00179.x |
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crwiley:10.1111/j.1547-5069.2000.00179.x 2024-10-13T14:08:24+00:00 Children's Rights in Clinical Research Bragadóttir, Helga 2000 http://dx.doi.org/10.1111/j.1547-5069.2000.00179.x https://api.wiley.com/onlinelibrary/tdm/v1/articles/10.1111%2Fj.1547-5069.2000.00179.x https://sigmapubs.onlinelibrary.wiley.com/doi/pdf/10.1111/j.1547-5069.2000.00179.x en eng Wiley http://onlinelibrary.wiley.com/termsAndConditions#vor Journal of Nursing Scholarship volume 32, issue 2, page 179-184 ISSN 1527-6546 1547-5069 journal-article 2000 crwiley https://doi.org/10.1111/j.1547-5069.2000.00179.x 2024-09-19T04:18:39Z Purpose: To address the use of children and children's genetic information in research, analyze Icelandic laws as an example, review existing literature on children in clinical research, and describe nurses' actions as children's advocates. Method: An integrated literature review was conducted using theoretical and empirical literature on children as human subjects in clinical research. Five Icelandic laws were analyzed. Findings: Legal protection of children as human subjects is an international issue and is lacking in Icelandic legislation. In spite of an identified need to protect children as human subjects, research on children's rights in clinical research is scarce. Nurses have not taken an active stance in protecting children as human subjects. Conclusions: The recently passed Bill on Health Sector Database in Iceland raises questions about protection of human subjects regardless of age and stature. The effects of this Icelandic case could have international implications regarding centralized health care databases, ownership of data, and related ethical and legal decisions. Article in Journal/Newspaper Iceland Wiley Online Library Journal of Nursing Scholarship 32 2 179 184 |
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Wiley Online Library |
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English |
description |
Purpose: To address the use of children and children's genetic information in research, analyze Icelandic laws as an example, review existing literature on children in clinical research, and describe nurses' actions as children's advocates. Method: An integrated literature review was conducted using theoretical and empirical literature on children as human subjects in clinical research. Five Icelandic laws were analyzed. Findings: Legal protection of children as human subjects is an international issue and is lacking in Icelandic legislation. In spite of an identified need to protect children as human subjects, research on children's rights in clinical research is scarce. Nurses have not taken an active stance in protecting children as human subjects. Conclusions: The recently passed Bill on Health Sector Database in Iceland raises questions about protection of human subjects regardless of age and stature. The effects of this Icelandic case could have international implications regarding centralized health care databases, ownership of data, and related ethical and legal decisions. |
format |
Article in Journal/Newspaper |
author |
Bragadóttir, Helga |
spellingShingle |
Bragadóttir, Helga Children's Rights in Clinical Research |
author_facet |
Bragadóttir, Helga |
author_sort |
Bragadóttir, Helga |
title |
Children's Rights in Clinical Research |
title_short |
Children's Rights in Clinical Research |
title_full |
Children's Rights in Clinical Research |
title_fullStr |
Children's Rights in Clinical Research |
title_full_unstemmed |
Children's Rights in Clinical Research |
title_sort |
children's rights in clinical research |
publisher |
Wiley |
publishDate |
2000 |
url |
http://dx.doi.org/10.1111/j.1547-5069.2000.00179.x https://api.wiley.com/onlinelibrary/tdm/v1/articles/10.1111%2Fj.1547-5069.2000.00179.x https://sigmapubs.onlinelibrary.wiley.com/doi/pdf/10.1111/j.1547-5069.2000.00179.x |
genre |
Iceland |
genre_facet |
Iceland |
op_source |
Journal of Nursing Scholarship volume 32, issue 2, page 179-184 ISSN 1527-6546 1547-5069 |
op_rights |
http://onlinelibrary.wiley.com/termsAndConditions#vor |
op_doi |
https://doi.org/10.1111/j.1547-5069.2000.00179.x |
container_title |
Journal of Nursing Scholarship |
container_volume |
32 |
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2 |
container_start_page |
179 |
op_container_end_page |
184 |
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1812815090205851648 |