Concerns experienced by parents of children treated for cancer: A qualitative study to inform adaptations to an internet‐administered, low‐intensity cognitive behavioral therapy intervention
Abstract Objective Childhood cancer treatment completion is associated with mental health difficulties and negative socioeconomic consequences for parents. However, psychological support needs are often unmet. We developed an internet‐administered, guided, low‐intensity cognitive behavioral therapy‐...
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crwiley:10.1002/pon.6074 2024-06-23T07:52:28+00:00 Concerns experienced by parents of children treated for cancer: A qualitative study to inform adaptations to an internet‐administered, low‐intensity cognitive behavioral therapy intervention Lundgren, Johan Thiblin, Ella Lutvica, Nina Reuther, Christina Farrand, Paul Woodford, Joanne von Essen, Louise 2022 http://dx.doi.org/10.1002/pon.6074 https://onlinelibrary.wiley.com/doi/pdf/10.1002/pon.6074 https://onlinelibrary.wiley.com/doi/full-xml/10.1002/pon.6074 en eng Wiley http://creativecommons.org/licenses/by-nc/4.0/ Psycho-Oncology volume 32, issue 2, page 237-246 ISSN 1057-9249 1099-1611 journal-article 2022 crwiley https://doi.org/10.1002/pon.6074 2024-06-11T04:50:28Z Abstract Objective Childhood cancer treatment completion is associated with mental health difficulties and negative socioeconomic consequences for parents. However, psychological support needs are often unmet. We developed an internet‐administered, guided, low‐intensity cognitive behavioral therapy‐based self‐help intervention (EJDeR) and examined feasibility and acceptability with a single‐arm feasibility trial (ENGAGE). Results suggest EJDeR is acceptable, however, adherence, especially for fathers, could be improved. Following the Medical Research Council complex interventions framework, this study explores concerns experienced by parents actively seeking support related to their child's cancer who were recruited into ENGAGE to inform further adaptation of EJDeR. Method Seventy‐three semi‐structured interviews (26 fathers, 47 mothers) were conducted, with data analyzed using manifest content analysis. Results Analysis resulted in seven categories: (1) Feeling lost and lonely in life; (2) Low mood; (3) Parenting difficulties; (4) Productivity difficulties; (5) Relationship challenges; (6) Stress reactions; and (7) Worry. With the exception of subcategories Afraid of not being a good parent , Cancer recurrence, and Child's development and future a somewhat higher percentage of mothers than fathers mentioned all identified concerns. Conclusion Parents described experiencing a range of concerns after their child had completed cancer treatment. EJDeR will be adapted to address these concerns and include indirect intervention modules targeting concerns such as stress. Information to support parenting, relationships, finance, and employment difficulties, alongside signposting to inform help‐seeking, will be included. Findings also suggest a need to improve the gender‐sensitivity of EJDeR. Article in Journal/Newspaper ejder Wiley Online Library Psycho-Oncology 32 2 237 246 |
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Abstract Objective Childhood cancer treatment completion is associated with mental health difficulties and negative socioeconomic consequences for parents. However, psychological support needs are often unmet. We developed an internet‐administered, guided, low‐intensity cognitive behavioral therapy‐based self‐help intervention (EJDeR) and examined feasibility and acceptability with a single‐arm feasibility trial (ENGAGE). Results suggest EJDeR is acceptable, however, adherence, especially for fathers, could be improved. Following the Medical Research Council complex interventions framework, this study explores concerns experienced by parents actively seeking support related to their child's cancer who were recruited into ENGAGE to inform further adaptation of EJDeR. Method Seventy‐three semi‐structured interviews (26 fathers, 47 mothers) were conducted, with data analyzed using manifest content analysis. Results Analysis resulted in seven categories: (1) Feeling lost and lonely in life; (2) Low mood; (3) Parenting difficulties; (4) Productivity difficulties; (5) Relationship challenges; (6) Stress reactions; and (7) Worry. With the exception of subcategories Afraid of not being a good parent , Cancer recurrence, and Child's development and future a somewhat higher percentage of mothers than fathers mentioned all identified concerns. Conclusion Parents described experiencing a range of concerns after their child had completed cancer treatment. EJDeR will be adapted to address these concerns and include indirect intervention modules targeting concerns such as stress. Information to support parenting, relationships, finance, and employment difficulties, alongside signposting to inform help‐seeking, will be included. Findings also suggest a need to improve the gender‐sensitivity of EJDeR. |
format |
Article in Journal/Newspaper |
author |
Lundgren, Johan Thiblin, Ella Lutvica, Nina Reuther, Christina Farrand, Paul Woodford, Joanne von Essen, Louise |
spellingShingle |
Lundgren, Johan Thiblin, Ella Lutvica, Nina Reuther, Christina Farrand, Paul Woodford, Joanne von Essen, Louise Concerns experienced by parents of children treated for cancer: A qualitative study to inform adaptations to an internet‐administered, low‐intensity cognitive behavioral therapy intervention |
author_facet |
Lundgren, Johan Thiblin, Ella Lutvica, Nina Reuther, Christina Farrand, Paul Woodford, Joanne von Essen, Louise |
author_sort |
Lundgren, Johan |
title |
Concerns experienced by parents of children treated for cancer: A qualitative study to inform adaptations to an internet‐administered, low‐intensity cognitive behavioral therapy intervention |
title_short |
Concerns experienced by parents of children treated for cancer: A qualitative study to inform adaptations to an internet‐administered, low‐intensity cognitive behavioral therapy intervention |
title_full |
Concerns experienced by parents of children treated for cancer: A qualitative study to inform adaptations to an internet‐administered, low‐intensity cognitive behavioral therapy intervention |
title_fullStr |
Concerns experienced by parents of children treated for cancer: A qualitative study to inform adaptations to an internet‐administered, low‐intensity cognitive behavioral therapy intervention |
title_full_unstemmed |
Concerns experienced by parents of children treated for cancer: A qualitative study to inform adaptations to an internet‐administered, low‐intensity cognitive behavioral therapy intervention |
title_sort |
concerns experienced by parents of children treated for cancer: a qualitative study to inform adaptations to an internet‐administered, low‐intensity cognitive behavioral therapy intervention |
publisher |
Wiley |
publishDate |
2022 |
url |
http://dx.doi.org/10.1002/pon.6074 https://onlinelibrary.wiley.com/doi/pdf/10.1002/pon.6074 https://onlinelibrary.wiley.com/doi/full-xml/10.1002/pon.6074 |
genre |
ejder |
genre_facet |
ejder |
op_source |
Psycho-Oncology volume 32, issue 2, page 237-246 ISSN 1057-9249 1099-1611 |
op_rights |
http://creativecommons.org/licenses/by-nc/4.0/ |
op_doi |
https://doi.org/10.1002/pon.6074 |
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Psycho-Oncology |
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32 |
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2 |
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237 |
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246 |
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1802643768559534080 |