The past, present, and future of fetal alcohol spectrum disorder work in Newfoundland and Labrador: A landscape paper for change
Objectives In this paper, we provide an overview of best practices in FASD prevention, diagnostic, and interventions and supports. In Canada, people diagnosed with Fetal Alcohol Spectrum Disorder (FASD) represent a fraction people living with FASD. While social stigma may deter people from seeking a...
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crwiley:10.1002/bdr2.1378 2024-03-17T08:59:03+00:00 The past, present, and future of fetal alcohol spectrum disorder work in Newfoundland and Labrador: A landscape paper for change Dunbar Winsor, Katharine Morton Ninomiya, Melody E. Memorial University of Newfoundland 2018 http://dx.doi.org/10.1002/bdr2.1378 https://api.wiley.com/onlinelibrary/tdm/v1/articles/10.1002%2Fbdr2.1378 https://onlinelibrary.wiley.com/doi/pdf/10.1002/bdr2.1378 en eng Wiley http://onlinelibrary.wiley.com/termsAndConditions#vor Birth Defects Research volume 110, issue 16, page 1215-1222 ISSN 2472-1727 2472-1727 Health, Toxicology and Mutagenesis Developmental Biology Toxicology Embryology Pediatrics, Perinatology and Child Health journal-article 2018 crwiley https://doi.org/10.1002/bdr2.1378 2024-02-22T01:56:38Z Objectives In this paper, we provide an overview of best practices in FASD prevention, diagnostic, and interventions and supports. In Canada, people diagnosed with Fetal Alcohol Spectrum Disorder (FASD) represent a fraction people living with FASD. While social stigma may deter people from seeking an FASD diagnosis, other deterrents include the lack of screening and diagnostic referrals, cost of travelling to a clinic, and lack of clarity of how a diagnosis may improve supports and services. Preventing FASD and improving lifelong outcomes for people living with FASD requires a coordinated approach between prevention, diagnostic, intervention, and support efforts. Methods Using the example of Newfoundland and Labrador, a province where 60% of the population lives in rural communities and benefits from being involved in national initiatives and partnerships, we discuss efforts underway in other Canadian provinces to address FASD. Results We make three recommendations that begin to address FASD‐specific needs in both rural and urban regions: a) a provincial FASD consultant position, b) an explicit partnership between provincial government and fasdNL, and c) increased access to FASD diagnostic teams. Conclusion While the recommendations are both modest and essential first steps, we also suggest that collaborations and resource‐sharing in FASD prevention and supports are more about doing things differently, rather than doing more. Article in Journal/Newspaper Newfoundland Wiley Online Library Canada Newfoundland Birth Defects Research 110 16 1215 1222 |
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Wiley Online Library |
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English |
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Health, Toxicology and Mutagenesis Developmental Biology Toxicology Embryology Pediatrics, Perinatology and Child Health |
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Health, Toxicology and Mutagenesis Developmental Biology Toxicology Embryology Pediatrics, Perinatology and Child Health Dunbar Winsor, Katharine Morton Ninomiya, Melody E. The past, present, and future of fetal alcohol spectrum disorder work in Newfoundland and Labrador: A landscape paper for change |
topic_facet |
Health, Toxicology and Mutagenesis Developmental Biology Toxicology Embryology Pediatrics, Perinatology and Child Health |
description |
Objectives In this paper, we provide an overview of best practices in FASD prevention, diagnostic, and interventions and supports. In Canada, people diagnosed with Fetal Alcohol Spectrum Disorder (FASD) represent a fraction people living with FASD. While social stigma may deter people from seeking an FASD diagnosis, other deterrents include the lack of screening and diagnostic referrals, cost of travelling to a clinic, and lack of clarity of how a diagnosis may improve supports and services. Preventing FASD and improving lifelong outcomes for people living with FASD requires a coordinated approach between prevention, diagnostic, intervention, and support efforts. Methods Using the example of Newfoundland and Labrador, a province where 60% of the population lives in rural communities and benefits from being involved in national initiatives and partnerships, we discuss efforts underway in other Canadian provinces to address FASD. Results We make three recommendations that begin to address FASD‐specific needs in both rural and urban regions: a) a provincial FASD consultant position, b) an explicit partnership between provincial government and fasdNL, and c) increased access to FASD diagnostic teams. Conclusion While the recommendations are both modest and essential first steps, we also suggest that collaborations and resource‐sharing in FASD prevention and supports are more about doing things differently, rather than doing more. |
author2 |
Memorial University of Newfoundland |
format |
Article in Journal/Newspaper |
author |
Dunbar Winsor, Katharine Morton Ninomiya, Melody E. |
author_facet |
Dunbar Winsor, Katharine Morton Ninomiya, Melody E. |
author_sort |
Dunbar Winsor, Katharine |
title |
The past, present, and future of fetal alcohol spectrum disorder work in Newfoundland and Labrador: A landscape paper for change |
title_short |
The past, present, and future of fetal alcohol spectrum disorder work in Newfoundland and Labrador: A landscape paper for change |
title_full |
The past, present, and future of fetal alcohol spectrum disorder work in Newfoundland and Labrador: A landscape paper for change |
title_fullStr |
The past, present, and future of fetal alcohol spectrum disorder work in Newfoundland and Labrador: A landscape paper for change |
title_full_unstemmed |
The past, present, and future of fetal alcohol spectrum disorder work in Newfoundland and Labrador: A landscape paper for change |
title_sort |
past, present, and future of fetal alcohol spectrum disorder work in newfoundland and labrador: a landscape paper for change |
publisher |
Wiley |
publishDate |
2018 |
url |
http://dx.doi.org/10.1002/bdr2.1378 https://api.wiley.com/onlinelibrary/tdm/v1/articles/10.1002%2Fbdr2.1378 https://onlinelibrary.wiley.com/doi/pdf/10.1002/bdr2.1378 |
geographic |
Canada Newfoundland |
geographic_facet |
Canada Newfoundland |
genre |
Newfoundland |
genre_facet |
Newfoundland |
op_source |
Birth Defects Research volume 110, issue 16, page 1215-1222 ISSN 2472-1727 2472-1727 |
op_rights |
http://onlinelibrary.wiley.com/termsAndConditions#vor |
op_doi |
https://doi.org/10.1002/bdr2.1378 |
container_title |
Birth Defects Research |
container_volume |
110 |
container_issue |
16 |
container_start_page |
1215 |
op_container_end_page |
1222 |
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1793769271218667520 |