Lessons from First Nations partnerships in hepatitis C research and the co-creation of knowledge
BACKGROUND: Administrative health data provide a rich and powerful tool for health services research. Partnership between researchers and the Ontario First Nations HIV/AIDS Education Circle (OFNHAEC) allowed for comprehensive analyses of the health and economic impacts of hepatitis C virus (HCV) inf...
Published in: | Canadian Liver Journal |
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University of Toronto Press Inc. (UTPress)
2023
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Online Access: | http://dx.doi.org/10.3138/canlivj-2022-0011 https://canlivj.utpjournals.press/doi/pdf/10.3138/canlivj-2022-0011 |
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crunivtoronpr:10.3138/canlivj-2022-0011 2024-09-09T19:40:12+00:00 Lessons from First Nations partnerships in hepatitis C research and the co-creation of knowledge Mendlowitz, Andrew B Bremner, Karen E Feld, Jordan J Jones, Lyndia Hill, Evelynne Antone, Elly Liberty, Laura Boucher, Rene Krahn, Murray D 2023 http://dx.doi.org/10.3138/canlivj-2022-0011 https://canlivj.utpjournals.press/doi/pdf/10.3138/canlivj-2022-0011 en eng University of Toronto Press Inc. (UTPress) Canadian Liver Journal volume 6, issue 1, page 46-55 ISSN 2561-4444 2561-4444 journal-article 2023 crunivtoronpr https://doi.org/10.3138/canlivj-2022-0011 2024-07-11T04:33:42Z BACKGROUND: Administrative health data provide a rich and powerful tool for health services research. Partnership between researchers and the Ontario First Nations HIV/AIDS Education Circle (OFNHAEC) allowed for comprehensive analyses of the health and economic impacts of hepatitis C virus (HCV) infection in First Nations populations across Ontario, using administrative data. Examples of meaningful involvement of First Nations partners in research using secondary data sources demonstrate how community-based participatory research principles can be adapted to empower First Nations stakeholders and decision-makers. The aim of this review is to summarize and reflect on lessons learned in producing meaningful and actionable First Nations HCV research using health administrative data, from the perspective of health services researchers who collaborated for the first time with First Nations partners. METHODS: We discuss how our relationship with OFNHAEC formed and how engagement contextualized findings and provided opportunities for fostering trust and mutual capacity building. Methods included adherence to data governance principles, agreements outlining ethical conduct, and establishing commitment between partners. RESULTS: Engagement with OFNHAEC enhanced cultural understandings in study conception, design, and analysis, and enabled meaningful lessons for both parties through contextualizing findings together. Partnership ensured attention to factors, such as strength-based approaches and limitations of administrative data in their representation of First Nations peoples, that are not considered in standard HCV health services research using administrative health data. CONCLUSIONS: Collaboration throughout the HCV research provided first-hand experience of the relevance, representation, and importance of incorporating First Nations perspectives in health services research using administrative data. Article in Journal/Newspaper First Nations University of Toronto Press (U Toronto Press) Canadian Liver Journal |
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Open Polar |
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University of Toronto Press (U Toronto Press) |
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crunivtoronpr |
language |
English |
description |
BACKGROUND: Administrative health data provide a rich and powerful tool for health services research. Partnership between researchers and the Ontario First Nations HIV/AIDS Education Circle (OFNHAEC) allowed for comprehensive analyses of the health and economic impacts of hepatitis C virus (HCV) infection in First Nations populations across Ontario, using administrative data. Examples of meaningful involvement of First Nations partners in research using secondary data sources demonstrate how community-based participatory research principles can be adapted to empower First Nations stakeholders and decision-makers. The aim of this review is to summarize and reflect on lessons learned in producing meaningful and actionable First Nations HCV research using health administrative data, from the perspective of health services researchers who collaborated for the first time with First Nations partners. METHODS: We discuss how our relationship with OFNHAEC formed and how engagement contextualized findings and provided opportunities for fostering trust and mutual capacity building. Methods included adherence to data governance principles, agreements outlining ethical conduct, and establishing commitment between partners. RESULTS: Engagement with OFNHAEC enhanced cultural understandings in study conception, design, and analysis, and enabled meaningful lessons for both parties through contextualizing findings together. Partnership ensured attention to factors, such as strength-based approaches and limitations of administrative data in their representation of First Nations peoples, that are not considered in standard HCV health services research using administrative health data. CONCLUSIONS: Collaboration throughout the HCV research provided first-hand experience of the relevance, representation, and importance of incorporating First Nations perspectives in health services research using administrative data. |
format |
Article in Journal/Newspaper |
author |
Mendlowitz, Andrew B Bremner, Karen E Feld, Jordan J Jones, Lyndia Hill, Evelynne Antone, Elly Liberty, Laura Boucher, Rene Krahn, Murray D |
spellingShingle |
Mendlowitz, Andrew B Bremner, Karen E Feld, Jordan J Jones, Lyndia Hill, Evelynne Antone, Elly Liberty, Laura Boucher, Rene Krahn, Murray D Lessons from First Nations partnerships in hepatitis C research and the co-creation of knowledge |
author_facet |
Mendlowitz, Andrew B Bremner, Karen E Feld, Jordan J Jones, Lyndia Hill, Evelynne Antone, Elly Liberty, Laura Boucher, Rene Krahn, Murray D |
author_sort |
Mendlowitz, Andrew B |
title |
Lessons from First Nations partnerships in hepatitis C research and the co-creation of knowledge |
title_short |
Lessons from First Nations partnerships in hepatitis C research and the co-creation of knowledge |
title_full |
Lessons from First Nations partnerships in hepatitis C research and the co-creation of knowledge |
title_fullStr |
Lessons from First Nations partnerships in hepatitis C research and the co-creation of knowledge |
title_full_unstemmed |
Lessons from First Nations partnerships in hepatitis C research and the co-creation of knowledge |
title_sort |
lessons from first nations partnerships in hepatitis c research and the co-creation of knowledge |
publisher |
University of Toronto Press Inc. (UTPress) |
publishDate |
2023 |
url |
http://dx.doi.org/10.3138/canlivj-2022-0011 https://canlivj.utpjournals.press/doi/pdf/10.3138/canlivj-2022-0011 |
genre |
First Nations |
genre_facet |
First Nations |
op_source |
Canadian Liver Journal volume 6, issue 1, page 46-55 ISSN 2561-4444 2561-4444 |
op_doi |
https://doi.org/10.3138/canlivj-2022-0011 |
container_title |
Canadian Liver Journal |
_version_ |
1809909516120096768 |