The Coexistent Temporalities: Multilayered Ethics in Birth Cohort Studies
Abstract The chapter analyzes how the ethical guidelines and prescriptions guiding cohort studies have changed from the mid-1960s to the present and asks how a cohort research community has adjusted to these changes. Birth cohort studies, due to their extensive use of human subjects and their usuall...
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2023
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crspringernat:10.1007/978-3-031-20671-9_4 2024-03-10T08:36:27+00:00 The Coexistent Temporalities: Multilayered Ethics in Birth Cohort Studies Parhi, Katariina 2023 http://dx.doi.org/10.1007/978-3-031-20671-9_4 https://link.springer.com/content/pdf/10.1007/978-3-031-20671-9_4 unknown Springer International Publishing https://creativecommons.org/licenses/by/4.0 https://creativecommons.org/licenses/by/4.0 Medicine and Biomedical Sciences in Modern History Historical Explorations of Modern Epidemiology page 73-95 ISSN 2947-9142 2947-9150 ISBN 9783031206702 9783031206719 book-chapter 2023 crspringernat https://doi.org/10.1007/978-3-031-20671-9_4 2024-02-13T15:58:35Z Abstract The chapter analyzes how the ethical guidelines and prescriptions guiding cohort studies have changed from the mid-1960s to the present and asks how a cohort research community has adjusted to these changes. Birth cohort studies, due to their extensive use of human subjects and their usually extended length, are particularly well suited for investigating the issue. The case through which the issue is tackled is the Northern Finland Birth Cohorts 1966 and 1986 (NFBC). Launched in 1965, the NFBC initially comprised 12,231 children and their mothers. The second birth cohort was started in 1985. It consisted of 9,479 children and their mothers. The main finding of the chapter is that the NFBC scientists share a similar understanding of research ethics, an understanding that acknowledges past circumstances in epidemiological knowledge-production but also constantly seeks to adjust to changes in research ethics. Their understanding of ethical research is thus temporally multi-layered. The history of research ethics in birth cohort studies offers a way to examine how epidemiological knowledge-production has been governed and affected by temporality. Book Part Northern Finland Springer Nature 73 95 |
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description |
Abstract The chapter analyzes how the ethical guidelines and prescriptions guiding cohort studies have changed from the mid-1960s to the present and asks how a cohort research community has adjusted to these changes. Birth cohort studies, due to their extensive use of human subjects and their usually extended length, are particularly well suited for investigating the issue. The case through which the issue is tackled is the Northern Finland Birth Cohorts 1966 and 1986 (NFBC). Launched in 1965, the NFBC initially comprised 12,231 children and their mothers. The second birth cohort was started in 1985. It consisted of 9,479 children and their mothers. The main finding of the chapter is that the NFBC scientists share a similar understanding of research ethics, an understanding that acknowledges past circumstances in epidemiological knowledge-production but also constantly seeks to adjust to changes in research ethics. Their understanding of ethical research is thus temporally multi-layered. The history of research ethics in birth cohort studies offers a way to examine how epidemiological knowledge-production has been governed and affected by temporality. |
format |
Book Part |
author |
Parhi, Katariina |
spellingShingle |
Parhi, Katariina The Coexistent Temporalities: Multilayered Ethics in Birth Cohort Studies |
author_facet |
Parhi, Katariina |
author_sort |
Parhi, Katariina |
title |
The Coexistent Temporalities: Multilayered Ethics in Birth Cohort Studies |
title_short |
The Coexistent Temporalities: Multilayered Ethics in Birth Cohort Studies |
title_full |
The Coexistent Temporalities: Multilayered Ethics in Birth Cohort Studies |
title_fullStr |
The Coexistent Temporalities: Multilayered Ethics in Birth Cohort Studies |
title_full_unstemmed |
The Coexistent Temporalities: Multilayered Ethics in Birth Cohort Studies |
title_sort |
coexistent temporalities: multilayered ethics in birth cohort studies |
publisher |
Springer International Publishing |
publishDate |
2023 |
url |
http://dx.doi.org/10.1007/978-3-031-20671-9_4 https://link.springer.com/content/pdf/10.1007/978-3-031-20671-9_4 |
genre |
Northern Finland |
genre_facet |
Northern Finland |
op_source |
Medicine and Biomedical Sciences in Modern History Historical Explorations of Modern Epidemiology page 73-95 ISSN 2947-9142 2947-9150 ISBN 9783031206702 9783031206719 |
op_rights |
https://creativecommons.org/licenses/by/4.0 https://creativecommons.org/licenses/by/4.0 |
op_doi |
https://doi.org/10.1007/978-3-031-20671-9_4 |
container_start_page |
73 |
op_container_end_page |
95 |
_version_ |
1793133113886375936 |