Data from national health registers as endpoints for the Tromsø Study: Correctness and completeness of stroke diagnoses
Aim: To assess whether stroke diagnoses in national health registers are sufficiently correct and complete to replace manual collection of endpoint data for the Tromsø Study, a population-based epidemiological study. Method: Using the Tromsø Study Cardiovascular Disease Register for 2013–2014 as the...
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Online Access: | http://dx.doi.org/10.1177/14034948211021191 http://journals.sagepub.com/doi/pdf/10.1177/14034948211021191 http://journals.sagepub.com/doi/full-xml/10.1177/14034948211021191 |
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crsagepubl:10.1177/14034948211021191 2024-05-19T07:49:32+00:00 Data from national health registers as endpoints for the Tromsø Study: Correctness and completeness of stroke diagnoses Varmdal, Torunn Løchen, Maja-Lisa Wilsgaard, Tom Njølstad, Inger Nyrnes, Audhild Grimsgaard, Sameline Mathiesen, Ellisiv B. 2021 http://dx.doi.org/10.1177/14034948211021191 http://journals.sagepub.com/doi/pdf/10.1177/14034948211021191 http://journals.sagepub.com/doi/full-xml/10.1177/14034948211021191 en eng SAGE Publications https://creativecommons.org/licenses/by/4.0/ Scandinavian Journal of Public Health volume 51, issue 7, page 1042-1049 ISSN 1403-4948 1651-1905 journal-article 2021 crsagepubl https://doi.org/10.1177/14034948211021191 2024-04-25T08:13:19Z Aim: To assess whether stroke diagnoses in national health registers are sufficiently correct and complete to replace manual collection of endpoint data for the Tromsø Study, a population-based epidemiological study. Method: Using the Tromsø Study Cardiovascular Disease Register for 2013–2014 as the gold standard, we calculated correctness (defined as positive predictive value, PPV) and completeness (defined as sensitivity) of stroke cases in four different data subsets derived from the Norwegian Patient Register and the Norwegian Stroke Register. We calculated the sensitivity and PPV with 95% confidence intervals (CIs) assuming a normal approximation of the binomial distribution. Results: In the Norwegian Stroke Register we found a sensitivity of 79.8% (95% CI 74.2–85.4) and a PPV of 97.5% (95% CI 95.1–99.9). In the Norwegian Patient Register the sensitivity was 86.4% (95% CI 81.6–91.1) and the PPV was 84.2% (95% CI 79.2–89.2). The overall highest levels were found in a subset based on a linkage between the Norwegian Stroke Register and the Norwegian Patient Register, with a sensitivity of 88.9% (95% CI 84.5–93.3), and a PPV of 89.3% (95% CI 85.0–93.6). Conclusions: Data from the Norwegian Patient Register and from the linked data set between the Norwegian Patient Register and the Norwegian Stroke Register had acceptable levels of correctness and completeness to be considered as endpoint sources for the Tromsø Study Cardiovascular Disease Register. The benefits of using data from national registers as endpoints in epidemiological studies must be weighed against the impact of potentially decreased data quality. Article in Journal/Newspaper Tromsø SAGE Publications Scandinavian Journal of Public Health 140349482110211 |
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English |
description |
Aim: To assess whether stroke diagnoses in national health registers are sufficiently correct and complete to replace manual collection of endpoint data for the Tromsø Study, a population-based epidemiological study. Method: Using the Tromsø Study Cardiovascular Disease Register for 2013–2014 as the gold standard, we calculated correctness (defined as positive predictive value, PPV) and completeness (defined as sensitivity) of stroke cases in four different data subsets derived from the Norwegian Patient Register and the Norwegian Stroke Register. We calculated the sensitivity and PPV with 95% confidence intervals (CIs) assuming a normal approximation of the binomial distribution. Results: In the Norwegian Stroke Register we found a sensitivity of 79.8% (95% CI 74.2–85.4) and a PPV of 97.5% (95% CI 95.1–99.9). In the Norwegian Patient Register the sensitivity was 86.4% (95% CI 81.6–91.1) and the PPV was 84.2% (95% CI 79.2–89.2). The overall highest levels were found in a subset based on a linkage between the Norwegian Stroke Register and the Norwegian Patient Register, with a sensitivity of 88.9% (95% CI 84.5–93.3), and a PPV of 89.3% (95% CI 85.0–93.6). Conclusions: Data from the Norwegian Patient Register and from the linked data set between the Norwegian Patient Register and the Norwegian Stroke Register had acceptable levels of correctness and completeness to be considered as endpoint sources for the Tromsø Study Cardiovascular Disease Register. The benefits of using data from national registers as endpoints in epidemiological studies must be weighed against the impact of potentially decreased data quality. |
format |
Article in Journal/Newspaper |
author |
Varmdal, Torunn Løchen, Maja-Lisa Wilsgaard, Tom Njølstad, Inger Nyrnes, Audhild Grimsgaard, Sameline Mathiesen, Ellisiv B. |
spellingShingle |
Varmdal, Torunn Løchen, Maja-Lisa Wilsgaard, Tom Njølstad, Inger Nyrnes, Audhild Grimsgaard, Sameline Mathiesen, Ellisiv B. Data from national health registers as endpoints for the Tromsø Study: Correctness and completeness of stroke diagnoses |
author_facet |
Varmdal, Torunn Løchen, Maja-Lisa Wilsgaard, Tom Njølstad, Inger Nyrnes, Audhild Grimsgaard, Sameline Mathiesen, Ellisiv B. |
author_sort |
Varmdal, Torunn |
title |
Data from national health registers as endpoints for the Tromsø Study: Correctness and completeness of stroke diagnoses |
title_short |
Data from national health registers as endpoints for the Tromsø Study: Correctness and completeness of stroke diagnoses |
title_full |
Data from national health registers as endpoints for the Tromsø Study: Correctness and completeness of stroke diagnoses |
title_fullStr |
Data from national health registers as endpoints for the Tromsø Study: Correctness and completeness of stroke diagnoses |
title_full_unstemmed |
Data from national health registers as endpoints for the Tromsø Study: Correctness and completeness of stroke diagnoses |
title_sort |
data from national health registers as endpoints for the tromsø study: correctness and completeness of stroke diagnoses |
publisher |
SAGE Publications |
publishDate |
2021 |
url |
http://dx.doi.org/10.1177/14034948211021191 http://journals.sagepub.com/doi/pdf/10.1177/14034948211021191 http://journals.sagepub.com/doi/full-xml/10.1177/14034948211021191 |
genre |
Tromsø |
genre_facet |
Tromsø |
op_source |
Scandinavian Journal of Public Health volume 51, issue 7, page 1042-1049 ISSN 1403-4948 1651-1905 |
op_rights |
https://creativecommons.org/licenses/by/4.0/ |
op_doi |
https://doi.org/10.1177/14034948211021191 |
container_title |
Scandinavian Journal of Public Health |
container_start_page |
140349482110211 |
_version_ |
1799468031446876160 |