Shortcut to success? Negotiating genetic uniqueness in global biomedicine
Since the sequencing of the human genome, as well as the completion of the first Human Genome Diversity Project, the benefits of studying one human population over another has been an ongoing debate relating to the replicability of findings in other populations. The leveraging of specific population...
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crsagepubl:10.1177/0306312718801165 2024-09-15T18:13:50+00:00 Shortcut to success? Negotiating genetic uniqueness in global biomedicine Tarkkala, Heta Tupasela, Aaro Suomen Akatemia Suomen Akatemia H2020 European Research Council Helsingin Yliopisto 2018 http://dx.doi.org/10.1177/0306312718801165 http://journals.sagepub.com/doi/pdf/10.1177/0306312718801165 http://journals.sagepub.com/doi/full-xml/10.1177/0306312718801165 en eng SAGE Publications http://journals.sagepub.com/page/policies/text-and-data-mining-license Social Studies of Science volume 48, issue 5, page 740-761 ISSN 0306-3127 1460-3659 journal-article 2018 crsagepubl https://doi.org/10.1177/0306312718801165 2024-08-27T04:24:15Z Since the sequencing of the human genome, as well as the completion of the first Human Genome Diversity Project, the benefits of studying one human population over another has been an ongoing debate relating to the replicability of findings in other populations. The leveraging of specific populations into research markets has made headlines in cases such as deCode in Iceland, Quebec Founder Population, and Generation Scotland. In such cases, researchers and policy makers have used the genetic and historical uniqueness of their populations to attract scientific, commercial and political interest. In this article, we explore how in countries with population isolates, such as Finland, the researchers balance considerations relating to the generalization and replicability of findings in small yet unique research populations to global biomedical research interests. This highlights challenges related to forms of competition associated with genetics research markets, as well as what counts as the ‘right’ population for genetic research. Article in Journal/Newspaper Iceland SAGE Publications Social Studies of Science 48 5 740 761 |
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English |
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Since the sequencing of the human genome, as well as the completion of the first Human Genome Diversity Project, the benefits of studying one human population over another has been an ongoing debate relating to the replicability of findings in other populations. The leveraging of specific populations into research markets has made headlines in cases such as deCode in Iceland, Quebec Founder Population, and Generation Scotland. In such cases, researchers and policy makers have used the genetic and historical uniqueness of their populations to attract scientific, commercial and political interest. In this article, we explore how in countries with population isolates, such as Finland, the researchers balance considerations relating to the generalization and replicability of findings in small yet unique research populations to global biomedical research interests. This highlights challenges related to forms of competition associated with genetics research markets, as well as what counts as the ‘right’ population for genetic research. |
author2 |
Suomen Akatemia Suomen Akatemia H2020 European Research Council Helsingin Yliopisto |
format |
Article in Journal/Newspaper |
author |
Tarkkala, Heta Tupasela, Aaro |
spellingShingle |
Tarkkala, Heta Tupasela, Aaro Shortcut to success? Negotiating genetic uniqueness in global biomedicine |
author_facet |
Tarkkala, Heta Tupasela, Aaro |
author_sort |
Tarkkala, Heta |
title |
Shortcut to success? Negotiating genetic uniqueness in global biomedicine |
title_short |
Shortcut to success? Negotiating genetic uniqueness in global biomedicine |
title_full |
Shortcut to success? Negotiating genetic uniqueness in global biomedicine |
title_fullStr |
Shortcut to success? Negotiating genetic uniqueness in global biomedicine |
title_full_unstemmed |
Shortcut to success? Negotiating genetic uniqueness in global biomedicine |
title_sort |
shortcut to success? negotiating genetic uniqueness in global biomedicine |
publisher |
SAGE Publications |
publishDate |
2018 |
url |
http://dx.doi.org/10.1177/0306312718801165 http://journals.sagepub.com/doi/pdf/10.1177/0306312718801165 http://journals.sagepub.com/doi/full-xml/10.1177/0306312718801165 |
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Iceland |
genre_facet |
Iceland |
op_source |
Social Studies of Science volume 48, issue 5, page 740-761 ISSN 0306-3127 1460-3659 |
op_rights |
http://journals.sagepub.com/page/policies/text-and-data-mining-license |
op_doi |
https://doi.org/10.1177/0306312718801165 |
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Social Studies of Science |
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48 |
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5 |
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740 |
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761 |
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1810451596682723328 |