Going Into a Community, We Need to Start From Where They’re At: Caregiver and Advocate Perspectives
Abstract We recorded and inductively coded an open-ended discussion of jargon surrounding “dementia” with the “Supporting Dementia Caregivers After Death” community advisory board (CAB). CAB-members included current and former caregivers of PLWD due to early- and normal-onset Alzheimer’s, Lewy body,...
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2021
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Online Access: | http://dx.doi.org/10.1093/geroni/igab046.1783 https://academic.oup.com/innovateage/article-pdf/5/Supplement_1/461/43183858/igab046.1783.pdf |
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croxfordunivpr:10.1093/geroni/igab046.1783 2023-05-15T13:29:03+02:00 Going Into a Community, We Need to Start From Where They’re At: Caregiver and Advocate Perspectives Baker, Zachary 2021 http://dx.doi.org/10.1093/geroni/igab046.1783 https://academic.oup.com/innovateage/article-pdf/5/Supplement_1/461/43183858/igab046.1783.pdf en eng Oxford University Press (OUP) http://creativecommons.org/licenses/by/4.0/ CC-BY Innovation in Aging volume 5, issue Supplement_1, page 461-461 ISSN 2399-5300 Life-span and Life-course Studies Health Professions (miscellaneous) Health (social science) journal-article 2021 croxfordunivpr https://doi.org/10.1093/geroni/igab046.1783 2022-04-15T06:28:38Z Abstract We recorded and inductively coded an open-ended discussion of jargon surrounding “dementia” with the “Supporting Dementia Caregivers After Death” community advisory board (CAB). CAB-members included current and former caregivers of PLWD due to early- and normal-onset Alzheimer’s, Lewy body, and Parkinson’s, a co-president of the Alzheimer’s Association (ALZ) Young Champions, a dementia trainer/consultant and member of a Catholic church that preserves American Indian spiritual traditions, a senior program manager at ALZ who was entrusted by American Indian reservation elders to provide dementia education, a care partner support group leader, and an Alzheimer’s Ambassador chosen by multiple US senators. Themes identified included differential inclusiveness of terms like “memory loss” versus “dementia”, misuse and misunderstanding of “dementia” versus “Alzheimer’s,” and the difficulty of translating “dementia” into the American Indian Ojibwe (i.e., Anishinaabemowin) language where suggested translations directly translated to “slow memory loss”, “brain deterioration”, “absent mindedness”, or even “craziness”. Article in Journal/Newspaper anishina* Oxford University Press (via Crossref) Indian Innovation in Aging 5 Supplement_1 463 463 |
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Open Polar |
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Oxford University Press (via Crossref) |
op_collection_id |
croxfordunivpr |
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English |
topic |
Life-span and Life-course Studies Health Professions (miscellaneous) Health (social science) |
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Life-span and Life-course Studies Health Professions (miscellaneous) Health (social science) Baker, Zachary Going Into a Community, We Need to Start From Where They’re At: Caregiver and Advocate Perspectives |
topic_facet |
Life-span and Life-course Studies Health Professions (miscellaneous) Health (social science) |
description |
Abstract We recorded and inductively coded an open-ended discussion of jargon surrounding “dementia” with the “Supporting Dementia Caregivers After Death” community advisory board (CAB). CAB-members included current and former caregivers of PLWD due to early- and normal-onset Alzheimer’s, Lewy body, and Parkinson’s, a co-president of the Alzheimer’s Association (ALZ) Young Champions, a dementia trainer/consultant and member of a Catholic church that preserves American Indian spiritual traditions, a senior program manager at ALZ who was entrusted by American Indian reservation elders to provide dementia education, a care partner support group leader, and an Alzheimer’s Ambassador chosen by multiple US senators. Themes identified included differential inclusiveness of terms like “memory loss” versus “dementia”, misuse and misunderstanding of “dementia” versus “Alzheimer’s,” and the difficulty of translating “dementia” into the American Indian Ojibwe (i.e., Anishinaabemowin) language where suggested translations directly translated to “slow memory loss”, “brain deterioration”, “absent mindedness”, or even “craziness”. |
format |
Article in Journal/Newspaper |
author |
Baker, Zachary |
author_facet |
Baker, Zachary |
author_sort |
Baker, Zachary |
title |
Going Into a Community, We Need to Start From Where They’re At: Caregiver and Advocate Perspectives |
title_short |
Going Into a Community, We Need to Start From Where They’re At: Caregiver and Advocate Perspectives |
title_full |
Going Into a Community, We Need to Start From Where They’re At: Caregiver and Advocate Perspectives |
title_fullStr |
Going Into a Community, We Need to Start From Where They’re At: Caregiver and Advocate Perspectives |
title_full_unstemmed |
Going Into a Community, We Need to Start From Where They’re At: Caregiver and Advocate Perspectives |
title_sort |
going into a community, we need to start from where they’re at: caregiver and advocate perspectives |
publisher |
Oxford University Press (OUP) |
publishDate |
2021 |
url |
http://dx.doi.org/10.1093/geroni/igab046.1783 https://academic.oup.com/innovateage/article-pdf/5/Supplement_1/461/43183858/igab046.1783.pdf |
geographic |
Indian |
geographic_facet |
Indian |
genre |
anishina* |
genre_facet |
anishina* |
op_source |
Innovation in Aging volume 5, issue Supplement_1, page 461-461 ISSN 2399-5300 |
op_rights |
http://creativecommons.org/licenses/by/4.0/ |
op_rightsnorm |
CC-BY |
op_doi |
https://doi.org/10.1093/geroni/igab046.1783 |
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Innovation in Aging |
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5 |
container_issue |
Supplement_1 |
container_start_page |
463 |
op_container_end_page |
463 |
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1765998179815260160 |