Family Caregivers’ Satisfaction With Specialized End-of-Life Care Provided at Home

• Published in: Journal of Hospice & Palliative Nursing
• Main Authors: Hjörleifsdóttir, Elísabet, Einarsdóttir, Audur, Óskarsson, Gudmundur Kristján, Frímannsson, Gudmundur Heidar
• Format: Article in Journal/Newspaper
• Language: English
• Published: Ovid Technologies (Wolters Kluwer Health) 2019
• Subjects: Advanced and Specialized Nursing; Community and Home Care; Iceland
• Online Access: http://dx.doi.org/10.1097/njh.0000000000000583; https://journals.lww.com/10.1097/NJH.0000000000000583

Several studies have highlighted the significant role of families in end-of-life care. Carers’ well-being may depend on how they experience the care and support provided to their loved ones. This study was conducted to investigate family caregivers’ assessment of specialized end-of-life care in a sample of 119 close family members in Iceland. The response rate was 58.8% (n = 70). Furthermore, the aim was to assess the psychometric characteristics of the Icelandic version of Family Assessment of Treatment at the End of Life (FATE). Descriptive statistics were used to describe the characteristics of the data. Results indicate that good communication and understanding of all parties concerned are the foundation for family caregivers’ satisfaction with end-of-life care. Participants were generally satisfied with the care provided, whereas some important aspects of care were rated as excellent. Evaluation of management of symptoms reported in this study should be given specific attention in future studies considering its unsatisfactory outcomes. Nurses need to be aware of the impact that physical suffering of the patient might have on the family caregivers. The Icelandic version of the Family Assessment of Treatment at the End of Life instrument is a psychometrically sound instrument useful for measuring caregivers’ satisfaction with service provided at the end of life, although modifications would improve the instrument for use on this population.