The Ethics and Governance of Human Genetic Databases
The Medical Biobank of Umeå in Sweden, deCODE's Health Sector Database in Iceland, the Estonian Genome Project and the UK Biobank contain health data and genetic data from large populations. Some include genealogical or lifestyle information. They are resources for research in human genetics an...
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2007
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crcambridgeupr:10.1017/cbo9780511611087 2024-06-09T07:47:09+00:00 The Ethics and Governance of Human Genetic Databases European Perspectives Häyry, Matti Chadwick, Ruth Árnason, Vilhjálmur Árnason, Gardar 2007 http://dx.doi.org/10.1017/cbo9780511611087 unknown Cambridge University Press https://www.cambridge.org/core/terms ISBN 9781107652576 9780521856621 9780521672573 9780511611087 monograph 2007 crcambridgeupr https://doi.org/10.1017/cbo9780511611087 2024-05-15T12:59:38Z The Medical Biobank of Umeå in Sweden, deCODE's Health Sector Database in Iceland, the Estonian Genome Project and the UK Biobank contain health data and genetic data from large populations. Some include genealogical or lifestyle information. They are resources for research in human genetics and medicine, exploring interaction between genes, lifestyle, environmental factors and health and diseases. The collection, storage and use of this data raise ethical, legal and social issues. In this book, first published in 2007, bioethics scholars examine whether existing ethical frameworks and social policies reflect people's concerns, and how they may need to change in light of new scientific and technological developments. The ethical issues of social justice, genetic discrimination, informational privacy, trust in science and consent to participation in database research are analyzed, whilst an empirical survey, conducted in the four countries, demonstrates public views of privacy and related moral values in the context of human genetic databases. Book Iceland Cambridge University Press |
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Cambridge University Press |
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crcambridgeupr |
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unknown |
description |
The Medical Biobank of Umeå in Sweden, deCODE's Health Sector Database in Iceland, the Estonian Genome Project and the UK Biobank contain health data and genetic data from large populations. Some include genealogical or lifestyle information. They are resources for research in human genetics and medicine, exploring interaction between genes, lifestyle, environmental factors and health and diseases. The collection, storage and use of this data raise ethical, legal and social issues. In this book, first published in 2007, bioethics scholars examine whether existing ethical frameworks and social policies reflect people's concerns, and how they may need to change in light of new scientific and technological developments. The ethical issues of social justice, genetic discrimination, informational privacy, trust in science and consent to participation in database research are analyzed, whilst an empirical survey, conducted in the four countries, demonstrates public views of privacy and related moral values in the context of human genetic databases. |
format |
Book |
author |
Häyry, Matti Chadwick, Ruth Árnason, Vilhjálmur Árnason, Gardar |
spellingShingle |
Häyry, Matti Chadwick, Ruth Árnason, Vilhjálmur Árnason, Gardar The Ethics and Governance of Human Genetic Databases |
author_facet |
Häyry, Matti Chadwick, Ruth Árnason, Vilhjálmur Árnason, Gardar |
author_sort |
Häyry, Matti |
title |
The Ethics and Governance of Human Genetic Databases |
title_short |
The Ethics and Governance of Human Genetic Databases |
title_full |
The Ethics and Governance of Human Genetic Databases |
title_fullStr |
The Ethics and Governance of Human Genetic Databases |
title_full_unstemmed |
The Ethics and Governance of Human Genetic Databases |
title_sort |
ethics and governance of human genetic databases |
publisher |
Cambridge University Press |
publishDate |
2007 |
url |
http://dx.doi.org/10.1017/cbo9780511611087 |
genre |
Iceland |
genre_facet |
Iceland |
op_source |
ISBN 9781107652576 9780521856621 9780521672573 9780511611087 |
op_rights |
https://www.cambridge.org/core/terms |
op_doi |
https://doi.org/10.1017/cbo9780511611087 |
_version_ |
1801378075797094400 |